Im starting pulmonary rehab!! Very stoked!..Time to raise my numbers!

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carly23

New member
Im starting pulmonary rehab to raise my fev and oxygen numbers to where i will not need oxygen i understand this will not happen over night and i understand itll be hard but im very
Strong minded and will give everything i have!..my sats just siting is 97/98no oxygen but when i walk i do drop to 90 sometimes 87 soo its time to change that and help myself..i also would like to share i enrolled in getting my ged today i start classes july9th!..i must say this is the happiest ive felt about myself in along time im going to raise my fev to my goal to start which is 37% what i was two years ago! The transplant team told me they have had patients who required 6litres of oxygen for exercise an now dont need anything..so it is possible but will proly take me a minute to get there..i will update eveyone on my road to a new life and raising my fev!!! :-D
 
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CyrilCrodius

New member
You are on the transplant list? I have about the same FEV1, but am not on the transplant list and my SPO2 has been sitting around 92-94 for as long as I can remember (even when I had >37%). I'm curious as to why you are already on the transplant list, if you are. MRSA?
I'm especially interested in what they have you do for pulmonary rehab.
 
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beleache

New member
bu

Hi Carly,
I am currently in a pulmonary rehab program & love it !! It's been about 2 mos. since I've started so I dont know if my scores have gone up yet but I am hopeful & more importantly I feel great !! I hope you have good results..
<img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 
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carly23

New member
Joni whats your fev?..and when do you go to check them to see if youve had any improvement <img src="i/expressions/face-icon-small-smile.gif" border="0"> ...i am not listed on the list but the team is in the picture and i touch base with them every 3months! Im at that point where i want to see better numbers my body is telling me i have it in me i just need that boost!..when im sitting i sit at 97-96 sometimes 98!..walking i do drop to 90 and 87..but with this program im giving great dedication i know it could take months but nothing is ever given easy..everything is a struggle to begin with <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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scarecrow

New member
Good for you!!! I have been walking and getting as much exercise as possible since I was in the hospital last year. Last visit didn't show any improvement in FEV1 but I FEEL BETTER !! and that has to be a good thing. My goal for now is to be able to say on most days,"I feel better than I did a year ago."

Good luck !! and don't give up. If you stay with it, it will pay off in the long run.
 
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garanza

New member
I would like prejudice about the program of pulmonary rehabilitation and centers recommended, thanks to all
 
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garanza

New member
<span class="hps">I would like <span class="hps">information <span class="hps">on <span class="hps">pulmonary <span class="hps">rehabilitation <span class="hps">centers <span class="hps">where it is <span class="hps">done<span>, thanks
<span>garanza
 
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AnnieT

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>garanza</b></i> <span class="hps">I would like</u> <span class="hps">information</u> <span class="hps">on</u> <span class="hps">pulmonary</u> <span class="hps">rehabilitation</u> <span class="hps">centers</u> <span class="hps">where it is</u> <span class="hps">done</u><span>, thanks</u> <span>garanza</u></end quote>

<span class="hps"><span class="hps"><span class="hps"><span class="hps"><span class="hps"><span class="hps"><span class="hps"><span class="hps"><span><span>Call your local hospital and then have your pulmonologist or PCP refer you.
 
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AnnieT

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rhonda21</b></i> MY daughter is 26 now and pfts usually in her 50's. When should she consider pulmonary/cardiac therapy?</end quote>

My dr. referred me in 2009 to Pulmonary Rehab (while I was the *youngest* there, lol) it def. helped me and I still do the respiratory excersises I was taught there at home. She can speak to her dr. about it and if deemed necessary they can refer her <img title="Laughing" src="include/wysiwyg/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-laughing.gif" alt="Laughing" border="0" />
 
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AnnieT

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>carly23</b></i> Im starting pulmonary rehab to raise my fev and oxygen numbers to where i will not need oxygen i understand this will not happen over night and i understand itll be hard but im very Strong minded and will give everything i have!..my sats just siting is 97/98no oxygen but when i walk i do drop to 90 sometimes 87 soo its time to change that and help myself..i also would like to share i enrolled in getting my ged today i start classes july9th!..i must say this is the happiest ive felt about myself in along time im going to raise my fev to my goal to start which is 37% what i was two years ago! The transplant team told me they have had patients who required 6litres of oxygen for exercise an now dont need anything..so it is possible but will proly take me a minute to get there..i will update eveyone on my road to a new life and raising my fev!!! :-D</end quote>

Congrats on moving forward with obtaining your GED!! yay!! That is such an exciting goal!! And I do hope Pulm. Rehab helps you get your numbers up!!
 
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mightymeleah

New member
Is pulmonary therapy more than just our regular rt treatments medications and exercise? I am always looking for new things to add to my respiratory health routine. May I ask what it involves?
 
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pencf

Guest
My daughter started Pulmo Rehab in March and still does it. It was 3x per wk., and now she is dropping down to 2x a week because she is a busy teenage (17yrs old). It wasnt' till she started did she realize (and GET IT) that she needs to work her lung muscles to ask them to work for her. She has a less then 30% lung function and her numbers when we checked in May were stable but not much improved. If you get stronger and the numbers don't follow, I think still it is a great way to just fight back and hold your own. I hope you get that 40% anything is possible, and I am sure your lungs will like you more if you give them a work out!
Good Luck! Post your results. All I can say for sure is it helped us alot!!!! Muscle weighs more then fat! : )
 
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