I'm trying REALLY hard to not let CF get me down

b12bc

New member
Thanks so much every one. I havent been on for a couple of days to check in, on friday night I spiked a very very high fever and was coughing and vomiting all night. Early saturday AM I had a seizure and was admitted to ICU, got out last night. We don't know if it is a reaction to something or caused by something else, my CF is very atypical. I will try to be on here soon when I am thinking a bit clearer.
 

b12bc

New member
Thanks so much every one. I havent been on for a couple of days to check in, on friday night I spiked a very very high fever and was coughing and vomiting all night. Early saturday AM I had a seizure and was admitted to ICU, got out last night. We don't know if it is a reaction to something or caused by something else, my CF is very atypical. I will try to be on here soon when I am thinking a bit clearer.
 

colinmaydahl

New member
I had a seizure once when I had been out of the hospital for less than 24 hrs. I had my blood sugar was on the low side of normal, but not much. I was just feeling weird and then I came to in a ambulance. That is the only time I have ever had a seizure, and I had a MRI but it showed nothing. Kind of weird. I'm a double delta F508 and seem to be a "normal" CFer.

Colin
 

colinmaydahl

New member
I had a seizure once when I had been out of the hospital for less than 24 hrs. I had my blood sugar was on the low side of normal, but not much. I was just feeling weird and then I came to in a ambulance. That is the only time I have ever had a seizure, and I had a MRI but it showed nothing. Kind of weird. I'm a double delta F508 and seem to be a "normal" CFer.

Colin
 

colinmaydahl

New member
I had a seizure once when I had been out of the hospital for less than 24 hrs. I had my blood sugar was on the low side of normal, but not much. I was just feeling weird and then I came to in a ambulance. That is the only time I have ever had a seizure, and I had a MRI but it showed nothing. Kind of weird. I'm a double delta F508 and seem to be a "normal" CFer.
<br />
<br />Colin
 

beleache

New member
There is a lot of comfort "talking" to others that are going through similar problems ... Please dont ever hesitate to vent, that is what we are all here for, to help each other ...

Do you ever get into chat at 9 pm est ??? Its a great place to vent, get support & sometimes even laugh !! Please check it out if you haven't already... {{{{{hugs}}}} to you ..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
There is a lot of comfort "talking" to others that are going through similar problems ... Please dont ever hesitate to vent, that is what we are all here for, to help each other ...

Do you ever get into chat at 9 pm est ??? Its a great place to vent, get support & sometimes even laugh !! Please check it out if you haven't already... {{{{{hugs}}}} to you ..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
There is a lot of comfort "talking" to others that are going through similar problems ... Please dont ever hesitate to vent, that is what we are all here for, to help each other ...
<br />
<br />Do you ever get into chat at 9 pm est ??? Its a great place to vent, get support & sometimes even laugh !! Please check it out if you haven't already... {{{{{hugs}}}} to you ..
<br />
<br /> <img src="i/expressions/heart.gif" border="0"> joni
 
Top