Immunosuppressant meds

[meech]

Does anyone know how being on an immunosuppressant could effect cf? I have an auto-immune condition and my neurologist is contacting my cf clinic to find out if it would be ok to start me on one. I just wondered if anyone had any experience with this?
thanks

 

[imported_Momto2]

I've been on methyltrexate for 9 months and I've handled it pretty well. Makes me tired though. I have to get blood work done every couple of weeks too.

 

[meech]

Ok, thanks. You haven't found you've been more susceptible to infections on the immunosuppressants?

 

[Jennyvb17]

I was on methotrexate for about 6 months. I didn't notice a difference.
My cf dr was actually curious to see if it would help reduce my lung inflammation... That could have been nice

 

[imported_Momto2]

I have noticed a difference with MTX, less inflammation overall. Havent had a problem with increased infection rates, but prior to the MTX, my immune cell counts were way high and the drug just brought them back into the normal range. I am very careful though, always washing my hands and using sanitizer, wear a mask in any health care situation or on a plane, and stay far away from known sick folks. Think I'm going to have to stop it though if I want to try Orkambi....

Jennyvb17, sorry it didnt work for you. For me, it got me off the daily doses of prednisone.

 

[meech]

Ok, thanks both so much. They are hesitant to go the prednisone route with me as my blood sugars can go unstable so easily.