Rosie Foreman
New member
My names Rosie and I'm 20 years old from the UK. This is the first post I've made to the forum and I'm not quite sure what I'm asking for here, reassurance, help or some honesty but here is my situation.
I've had my "head in the sand" about my cf for quite a while now and kind of refused to acknowledge it, I have been admitted for IV's roughly once every 8 months to a year since I was 13, and every but in the last year or so it's really knocked me and is now becoming tricky for me to ignore, which has lead to a lot of over thinking and generally feeling quite down about it. My most recent admission 4 weeks ago has resulted in my lung functions going down. I'm doing the treatments and taking the meds and I don't feel like I'm getting anywhere, it's getting disheartening.
I hate my cf and I simply don't want to do any of it, but what choice do I have? If I don't take the meds I'll get worse... If I do I'll simply slow it down. And that's what I'm struggling with, the fact that it's probably not going to get better despite my best efforts and I don't really know where to turn. In the last year I've lost two jobs due to time off ill, I've lost so much confidence and feel quite isolated, not going out and doing much has lead to having no friends and health problems mean I've had to move back with my parents after living with my partner. I can't help but feel that things would be very different if I didn't have my cf and it's really getting me down, how am I meant to fix this negative thinking, find some motivation and keep compliance up?
Thankyou in advance x
I've had my "head in the sand" about my cf for quite a while now and kind of refused to acknowledge it, I have been admitted for IV's roughly once every 8 months to a year since I was 13, and every but in the last year or so it's really knocked me and is now becoming tricky for me to ignore, which has lead to a lot of over thinking and generally feeling quite down about it. My most recent admission 4 weeks ago has resulted in my lung functions going down. I'm doing the treatments and taking the meds and I don't feel like I'm getting anywhere, it's getting disheartening.
I hate my cf and I simply don't want to do any of it, but what choice do I have? If I don't take the meds I'll get worse... If I do I'll simply slow it down. And that's what I'm struggling with, the fact that it's probably not going to get better despite my best efforts and I don't really know where to turn. In the last year I've lost two jobs due to time off ill, I've lost so much confidence and feel quite isolated, not going out and doing much has lead to having no friends and health problems mean I've had to move back with my parents after living with my partner. I can't help but feel that things would be very different if I didn't have my cf and it's really getting me down, how am I meant to fix this negative thinking, find some motivation and keep compliance up?
Thankyou in advance x