In a "Fog" need a pep talk to get out of it!!

SARAHSARAH253

New member
Hi there,
Things have been going great for our little man. I'm very thankful for him being so healthy. However my family had some sad news last week. My husbands partner at work lost his sister to CF last week. Very sad! I don't think my husband wanted to tell me about it. But, I'm glad he did. I didn't think it would have such and effect on us. It's like my heart is broken, and I feel gulity for not being strong for my husband. I know he is trying to be strong. He has to be strong for us and everyone in the office.  I know it's normal that it scared the hell out of us. Never had it hit so close to home. Just never expeirenced what I'm feeling. It's very hard to explain. I just want to slap myself for going back into this dark place. I'm sure we will pull through this. Just need a pep talk to keep fighting!
Thanks,Sarah
 

SARAHSARAH253

New member
Hi there,
Things have been going great for our little man. I'm very thankful for him being so healthy. Howevermy family had some sad news last week. My husbands partner at work lost his sister to CF last week. Very sad! I don't think my husband wanted to tell me about it. But, I'm glad he did. I didn't think it would have such and effect on us. It's like my heart is broken, and I feel gulity for not being strong for my husband. I know he is trying to be strong. He has to be strong forus and everyone in the office. I know it's normal that it scared the hell out of us. Never had it hit so close to home. Just never expeirenced what I'm feeling. It's very hard to explain. I just want to slap myself for going back into this dark place. I'm sure we will pull through this. Just need a pep talk to keep fighting!
Thanks,Sarah
 

SARAHSARAH253

New member
<p>Hi there,
<p>Things have been going great for our little man. I'm very thankful for him being so healthy. Howevermy family had some sad news last week. My husbands partner at work lost his sister to CF last week. Very sad! I don't think my husband wanted to tell me about it. But, I'm glad he did. I didn't think it would have such and effect on us. It's like my heart is broken, and I feel gulity for not being strong for my husband. I know he is trying to be strong. He has to be strong forus and everyone in the office. I know it's normal that it scared the hell out of us. Never had it hit so close to home. Just never expeirenced what I'm feeling. It's very hard to explain. I just want to slap myself for going back into this dark place. I'm sure we will pull through this. Just need a pep talk to keep fighting!
<p>Thanks,<br /><br />Sarah
 
M

Mommafirst

Guest
In a

Ya know, Sarah, you are allowed to feel the weight and pain of this. It is not a fair disease and it does hit close to home. I think it is so important that you not add extra pain and stress by being hard on yourself over how you react.

This disease can be unpredictable and cruel. But there are a lot of amazing hopeful things right now that didn't exist when your husband's partner's sister was little. We know so much more. . . we can give better preventative care. . . we can be more proactive and fight this damn thing. I have no idea what the future holds for any of us or our kids, but I do know that we educated CF fighters will do everything we can to work hard today to them more tomorrows!!

(((HUGS)))

You will grow strength again.
 
M

Mommafirst

Guest
In a

Ya know, Sarah, you are allowed to feel the weight and pain of this. It is not a fair disease and it does hit close to home. I think it is so important that you not add extra pain and stress by being hard on yourself over how you react.

This disease can be unpredictable and cruel. But there are a lot of amazing hopeful things right now that didn't exist when your husband's partner's sister was little. We know so much more. . . we can give better preventative care. . . we can be more proactive and fight this damn thing. I have no idea what the future holds for any of us or our kids, but I do know that we educated CF fighters will do everything we can to work hard today to them more tomorrows!!

(((HUGS)))

You will grow strength again.
 
M

Mommafirst

Guest
In a

Ya know, Sarah, you are allowed to feel the weight and pain of this. It is not a fair disease and it does hit close to home. I think it is so important that you not add extra pain and stress by being hard on yourself over how you react.
<br />
<br />This disease can be unpredictable and cruel. But there are a lot of amazing hopeful things right now that didn't exist when your husband's partner's sister was little. We know so much more. . . we can give better preventative care. . . we can be more proactive and fight this damn thing. I have no idea what the future holds for any of us or our kids, but I do know that we educated CF fighters will do everything we can to work hard today to them more tomorrows!!
<br />
<br />(((HUGS)))
<br />
<br />You will grow strength again.
<br />
<br />
 

JORDYSMOM

New member
In a

I'm so sorry.  Of course it hits hard, and you are allowed to feel this sadness.  Some time ago, a member of this site lost her son.  He was very close in age to my son.  It hit me so hard!  I cried off and on for weeks.  I just kept thinking that could be my child.    I understand how you feel.  (((hugs)))
Stacey
 

JORDYSMOM

New member
In a

I'm so sorry. Of course it hits hard, and you are allowed to feel this sadness.Some time ago,a member of this site lost her son. He was very close in age to my son. It hit me so hard! I cried off and on for weeks. I just kept thinking that could be my child. I understand how you feel. (((hugs)))
Stacey
 

JORDYSMOM

New member
In a

<p>I'm so sorry. Of course it hits hard, and you are allowed to feel this sadness.Some time ago,a member of this site lost her son. He was very close in age to my son. It hit me so hard! I cried off and on for weeks. I just kept thinking that could be my child. I understand how you feel. (((hugs)))
<p>Stacey
 

Rebjane

Super Moderator
In a

Sarah,

First off, I just have to say, your children are beautiful. I love that photo of them. Really don't have any advice. I have this low level anxiety lately I just can't shake. It's annoying. I guess Just try to enjoy all the precious moments with our children and know we have that special gift knowing every moment is special.
 

Rebjane

Super Moderator
In a

Sarah,

First off, I just have to say, your children are beautiful. I love that photo of them. Really don't have any advice. I have this low level anxiety lately I just can't shake. It's annoying. I guess Just try to enjoy all the precious moments with our children and know we have that special gift knowing every moment is special.
 

Rebjane

Super Moderator
In a

Sarah,
<br />
<br />First off, I just have to say, your children are beautiful. I love that photo of them. Really don't have any advice. I have this low level anxiety lately I just can't shake. It's annoying. I guess Just try to enjoy all the precious moments with our children and know we have that special gift knowing every moment is special.
 

SARAHSARAH253

New member
In a

Thanks everyone that responded. Today is a much better day!! It's soo tough and we haven't even got to the hard part yet<img src="i/expressions/face-icon-small-sad.gif" border="0"> Just have to keep reminding myself not to give into fear, and keep fighting! Thanks again...Everyone enjoy your Mothers Day weekend! Happy Cinco De Mayo tonight!!

Love,

Sarah

Mommy to Johnny almost 4 w/cf and bailey 1 1/2
 

SARAHSARAH253

New member
In a

Thanks everyone that responded. Today is a much better day!! It's soo tough and we haven't even got to the hard part yet<img src="i/expressions/face-icon-small-sad.gif" border="0"> Just have to keep reminding myself not to give into fear, and keep fighting! Thanks again...Everyone enjoy your Mothers Day weekend! Happy Cinco De Mayo tonight!!

Love,

Sarah

Mommy to Johnny almost 4 w/cf and bailey 1 1/2
 

SARAHSARAH253

New member
In a

Thanks everyone that responded. Today is a much better day!! It's soo tough and we haven't even got to the hard part yet<img src="i/expressions/face-icon-small-sad.gif" border="0"> Just have to keep reminding myself not to give into fear, and keep fighting! Thanks again...Everyone enjoy your Mothers Day weekend! Happy Cinco De Mayo tonight!!
<br />
<br />Love,
<br />
<br />Sarah
<br />
<br />Mommy to Johnny almost 4 w/cf and bailey 1 1/2
 

rubyroselee

New member
Hi Sarah, I think the most important thing to help you (and your husband) get through this awful news, is to talk to each other. It's not the most pleasant thing to talk about, but being able to get your feelings out with each other might be the best thing you two can do.
Just recently I lost a good friend with CF who was my age.  She was post-transplant and had a wonderful 15-year stint with the lungs, but then rejection creeped in.  We had spent many nights hanging out, talking about the struggles of CF and comparing stories.  We hadn't talked much in the recent years, but when she passed, it was like a piece of me was crushed. 
I had a hard time focusing for a couple days - I just kept evaluting my life, wondering why this happened to her.  Why?  But luckily my spouse was a great support system for me.  We talked about it and I was able to get my frustrations out.  It helped so much to be able to talk to someone, being that this friend's death did hit close to home.  Talking to someone who understands is great.
 

rubyroselee

New member
Hi Sarah, I think the most important thing to help you (and your husband) get through this awful news, is to talk to each other. It's not the most pleasant thing to talk about, but being able to get your feelings out with each other might be the best thing you two can do.
Just recently I lost a good friend with CF who was my age. She was post-transplant and had a wonderful 15-year stint with the lungs, but then rejection creeped in. We had spent many nights hanging out, talking about the struggles of CF and comparing stories. We hadn't talked much in the recent years, but when she passed, it was like a piece of me was crushed.
I had a hard time focusing for a couple days - I just kept evaluting my life, wondering why this happened to her. Why? But luckily my spouse was a great support system for me. We talked about it and I was able to get my frustrations out. It helped so much to be able to talk to someone, being that this friend's death did hit close to home. Talking to someone who understands is great.
 

rubyroselee

New member
<p>Hi Sarah, <br /><br />I think the most important thing to help you (and your husband) get through this awful news, is to talk to each other. It's not the most pleasant thing to talk about, but being able to get your feelings out with each other might be the best thing you two can do.
<p>Just recently I lost a good friend with CF who was my age. She was post-transplant and had a wonderful 15-year stint with the lungs, but then rejection creeped in. We had spent many nights hanging out, talking about the struggles of CF and comparing stories. We hadn't talked much in the recent years, but when she passed, it was like a piece of me was crushed.
<p>I had a hard time focusing for a couple days - I just kept evaluting my life, wondering why this happened to her. Why? But luckily my spouse was a great support system for me. We talked about it and I was able to get my frustrations out. It helped so much to be able to talk to someone, being that this friend's death did hit close to home. Talking to someone who understands is great.
 
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