in hospital and very depressed

L

lilywing

New member
Hi all
I'm posting from the hospital right now. I feel extremely depressed. I just spent some time with my doctor...all I want to hear is that everything will be ok, but he can't tell me that. PLEASE help me to re-focus, because I feel like I am going to have a break down. Can anybody help me out?

Kelly
age 30, w/CF, diagnosed at 2, growing pseudamonas a., aspergillus, w/ABPH, possibly mycobacteria?, ITP (idiopathic thrombocytopenia purpura...an autoimmune disorder that causes my body to attack and destroy my platelets: I am a bleeder and a bleeding risk!)
Looking at bronchoscopy and port installation next week.

<img src="i/expressions/face-icon-small-sad.gif" border="0">
 
L

lilywing

New member
Hi all
I'm posting from the hospital right now. I feel extremely depressed. I just spent some time with my doctor...all I want to hear is that everything will be ok, but he can't tell me that. PLEASE help me to re-focus, because I feel like I am going to have a break down. Can anybody help me out?

Kelly
age 30, w/CF, diagnosed at 2, growing pseudamonas a., aspergillus, w/ABPH, possibly mycobacteria?, ITP (idiopathic thrombocytopenia purpura...an autoimmune disorder that causes my body to attack and destroy my platelets: I am a bleeder and a bleeding risk!)
Looking at bronchoscopy and port installation next week.

<img src="i/expressions/face-icon-small-sad.gif" border="0">
 
L

lilywing

New member
Hi all
I'm posting from the hospital right now. I feel extremely depressed. I just spent some time with my doctor...all I want to hear is that everything will be ok, but he can't tell me that. PLEASE help me to re-focus, because I feel like I am going to have a break down. Can anybody help me out?

Kelly
age 30, w/CF, diagnosed at 2, growing pseudamonas a., aspergillus, w/ABPH, possibly mycobacteria?, ITP (idiopathic thrombocytopenia purpura...an autoimmune disorder that causes my body to attack and destroy my platelets: I am a bleeder and a bleeding risk!)
Looking at bronchoscopy and port installation next week.

<img src="i/expressions/face-icon-small-sad.gif" border="0">
 
L

lilywing

New member
Hi all
I'm posting from the hospital right now. I feel extremely depressed. I just spent some time with my doctor...all I want to hear is that everything will be ok, but he can't tell me that. PLEASE help me to re-focus, because I feel like I am going to have a break down. Can anybody help me out?

Kelly
age 30, w/CF, diagnosed at 2, growing pseudamonas a., aspergillus, w/ABPH, possibly mycobacteria?, ITP (idiopathic thrombocytopenia purpura...an autoimmune disorder that causes my body to attack and destroy my platelets: I am a bleeder and a bleeding risk!)
Looking at bronchoscopy and port installation next week.

<img src="i/expressions/face-icon-small-sad.gif" border="0">
 
L

lilywing

New member
Hi all
<br />I'm posting from the hospital right now. I feel extremely depressed. I just spent some time with my doctor...all I want to hear is that everything will be ok, but he can't tell me that. PLEASE help me to re-focus, because I feel like I am going to have a break down. Can anybody help me out?
<br />
<br />Kelly
<br />age 30, w/CF, diagnosed at 2, growing pseudamonas a., aspergillus, w/ABPH, possibly mycobacteria?, ITP (idiopathic thrombocytopenia purpura...an autoimmune disorder that causes my body to attack and destroy my platelets: I am a bleeder and a bleeding risk!)
<br />Looking at bronchoscopy and port installation next week.
<br />
<br /><img src="i/expressions/face-icon-small-sad.gif" border="0">
 
L

lightNlife

New member
I'm so sorry to hear that you're feeling so low. Some days you just need to have a good cry over the injustice of CF. I know I have days like that.

You asked for someone to help you redirect your thoughts, so I thought I'd give it a try for you. First, welcome to the forums! There are so many people here who can relate to what you're going through. For example, I too have aspergilliosis and I'm a bleeder; I'm also close to you in age (I'm 28).

Secondly, HOORAY for getting a port. Some people think of getting a port as a sign that they're getting sicker. Think of it this way, you'll be able to save yourself all that time and agony that goes with having a PICC line. I got my first port 11 years ago and WOW was I glad I got it! It's so much easier to deal with.

Thirdly, if your doctor is anything like mine and attended the National CF Conference, he's probably full of new ideas for how to treat you. The focus of the Conference this year was on meeting adult CFers' needs. Who knows what sort of exciting and productive treatment plans will work well for you?

I'm about to be admitted to the hospital myself, so I probably won't have computer access to check on you, but know that you'll be in my thoughts. You're not alone in this fight. We're here for you. {hugs}
 
L

lightNlife

New member
I'm so sorry to hear that you're feeling so low. Some days you just need to have a good cry over the injustice of CF. I know I have days like that.

You asked for someone to help you redirect your thoughts, so I thought I'd give it a try for you. First, welcome to the forums! There are so many people here who can relate to what you're going through. For example, I too have aspergilliosis and I'm a bleeder; I'm also close to you in age (I'm 28).

Secondly, HOORAY for getting a port. Some people think of getting a port as a sign that they're getting sicker. Think of it this way, you'll be able to save yourself all that time and agony that goes with having a PICC line. I got my first port 11 years ago and WOW was I glad I got it! It's so much easier to deal with.

Thirdly, if your doctor is anything like mine and attended the National CF Conference, he's probably full of new ideas for how to treat you. The focus of the Conference this year was on meeting adult CFers' needs. Who knows what sort of exciting and productive treatment plans will work well for you?

I'm about to be admitted to the hospital myself, so I probably won't have computer access to check on you, but know that you'll be in my thoughts. You're not alone in this fight. We're here for you. {hugs}
 
L

lightNlife

New member
I'm so sorry to hear that you're feeling so low. Some days you just need to have a good cry over the injustice of CF. I know I have days like that.

You asked for someone to help you redirect your thoughts, so I thought I'd give it a try for you. First, welcome to the forums! There are so many people here who can relate to what you're going through. For example, I too have aspergilliosis and I'm a bleeder; I'm also close to you in age (I'm 28).

Secondly, HOORAY for getting a port. Some people think of getting a port as a sign that they're getting sicker. Think of it this way, you'll be able to save yourself all that time and agony that goes with having a PICC line. I got my first port 11 years ago and WOW was I glad I got it! It's so much easier to deal with.

Thirdly, if your doctor is anything like mine and attended the National CF Conference, he's probably full of new ideas for how to treat you. The focus of the Conference this year was on meeting adult CFers' needs. Who knows what sort of exciting and productive treatment plans will work well for you?

I'm about to be admitted to the hospital myself, so I probably won't have computer access to check on you, but know that you'll be in my thoughts. You're not alone in this fight. We're here for you. {hugs}
 
L

lightNlife

New member
I'm so sorry to hear that you're feeling so low. Some days you just need to have a good cry over the injustice of CF. I know I have days like that.

You asked for someone to help you redirect your thoughts, so I thought I'd give it a try for you. First, welcome to the forums! There are so many people here who can relate to what you're going through. For example, I too have aspergilliosis and I'm a bleeder; I'm also close to you in age (I'm 28).

Secondly, HOORAY for getting a port. Some people think of getting a port as a sign that they're getting sicker. Think of it this way, you'll be able to save yourself all that time and agony that goes with having a PICC line. I got my first port 11 years ago and WOW was I glad I got it! It's so much easier to deal with.

Thirdly, if your doctor is anything like mine and attended the National CF Conference, he's probably full of new ideas for how to treat you. The focus of the Conference this year was on meeting adult CFers' needs. Who knows what sort of exciting and productive treatment plans will work well for you?

I'm about to be admitted to the hospital myself, so I probably won't have computer access to check on you, but know that you'll be in my thoughts. You're not alone in this fight. We're here for you. {hugs}
 
L

lightNlife

New member
I'm so sorry to hear that you're feeling so low. Some days you just need to have a good cry over the injustice of CF. I know I have days like that.
<br />
<br />You asked for someone to help you redirect your thoughts, so I thought I'd give it a try for you. First, welcome to the forums! There are so many people here who can relate to what you're going through. For example, I too have aspergilliosis and I'm a bleeder; I'm also close to you in age (I'm 28).
<br />
<br />Secondly, HOORAY for getting a port. Some people think of getting a port as a sign that they're getting sicker. Think of it this way, you'll be able to save yourself all that time and agony that goes with having a PICC line. I got my first port 11 years ago and WOW was I glad I got it! It's so much easier to deal with.
<br />
<br />Thirdly, if your doctor is anything like mine and attended the National CF Conference, he's probably full of new ideas for how to treat you. The focus of the Conference this year was on meeting adult CFers' needs. Who knows what sort of exciting and productive treatment plans will work well for you?
<br />
<br />I'm about to be admitted to the hospital myself, so I probably won't have computer access to check on you, but know that you'll be in my thoughts. You're not alone in this fight. We're here for you. {hugs}
 
L

lilywing

New member
THANK YOU!! I was beginning to think there was no one out there. I'm sure I don't have to tell you how much it helps just to know that there is SOMEbody! out there who knows what you're feeling.
I had to reach out via this forum because I am feeling so overwhelmed. I can't do this on my own. Thank you for being that person to reach back. It means so much.

YOU take care in hospital, and I look forward to hearing from you again,
Peace and calm (trying!!),
Kelly
 
L

lilywing

New member
THANK YOU!! I was beginning to think there was no one out there. I'm sure I don't have to tell you how much it helps just to know that there is SOMEbody! out there who knows what you're feeling.
I had to reach out via this forum because I am feeling so overwhelmed. I can't do this on my own. Thank you for being that person to reach back. It means so much.

YOU take care in hospital, and I look forward to hearing from you again,
Peace and calm (trying!!),
Kelly
 
L

lilywing

New member
THANK YOU!! I was beginning to think there was no one out there. I'm sure I don't have to tell you how much it helps just to know that there is SOMEbody! out there who knows what you're feeling.
I had to reach out via this forum because I am feeling so overwhelmed. I can't do this on my own. Thank you for being that person to reach back. It means so much.

YOU take care in hospital, and I look forward to hearing from you again,
Peace and calm (trying!!),
Kelly
 
L

lilywing

New member
THANK YOU!! I was beginning to think there was no one out there. I'm sure I don't have to tell you how much it helps just to know that there is SOMEbody! out there who knows what you're feeling.
I had to reach out via this forum because I am feeling so overwhelmed. I can't do this on my own. Thank you for being that person to reach back. It means so much.

YOU take care in hospital, and I look forward to hearing from you again,
Peace and calm (trying!!),
Kelly
 
L

lilywing

New member
THANK YOU!! I was beginning to think there was no one out there. I'm sure I don't have to tell you how much it helps just to know that there is SOMEbody! out there who knows what you're feeling.
<br />I had to reach out via this forum because I am feeling so overwhelmed. I can't do this on my own. Thank you for being that person to reach back. It means so much.
<br />
<br />YOU take care in hospital, and I look forward to hearing from you again,
<br />Peace and calm (trying!!),
<br />Kelly
<br />
<br />
 
L

ladybug

New member
Hey, Kelly...

So sorry to hear you're feeling bummed. I know we all go through that some time or other... and sometimes more than others. Just know we're ALL here for you and wish you peace.

I know this disease can be really frustrating, especially cause as we age, there is such variance in how to treat us... but, there are promising things that come out for CF every year... be it therapies, drug combos, infection control guidelines, etc.... These all serve to make us healthier and live longer. I honestly feel that each year I am here, I am living into a more lucrative and likely future managing this disease.

Best wishes to you. I hope this cleanout helps you and you can find peace.
 
L

ladybug

New member
Hey, Kelly...

So sorry to hear you're feeling bummed. I know we all go through that some time or other... and sometimes more than others. Just know we're ALL here for you and wish you peace.

I know this disease can be really frustrating, especially cause as we age, there is such variance in how to treat us... but, there are promising things that come out for CF every year... be it therapies, drug combos, infection control guidelines, etc.... These all serve to make us healthier and live longer. I honestly feel that each year I am here, I am living into a more lucrative and likely future managing this disease.

Best wishes to you. I hope this cleanout helps you and you can find peace.
 
L

ladybug

New member
Hey, Kelly...

So sorry to hear you're feeling bummed. I know we all go through that some time or other... and sometimes more than others. Just know we're ALL here for you and wish you peace.

I know this disease can be really frustrating, especially cause as we age, there is such variance in how to treat us... but, there are promising things that come out for CF every year... be it therapies, drug combos, infection control guidelines, etc.... These all serve to make us healthier and live longer. I honestly feel that each year I am here, I am living into a more lucrative and likely future managing this disease.

Best wishes to you. I hope this cleanout helps you and you can find peace.
 
L

ladybug

New member
Hey, Kelly...

So sorry to hear you're feeling bummed. I know we all go through that some time or other... and sometimes more than others. Just know we're ALL here for you and wish you peace.

I know this disease can be really frustrating, especially cause as we age, there is such variance in how to treat us... but, there are promising things that come out for CF every year... be it therapies, drug combos, infection control guidelines, etc.... These all serve to make us healthier and live longer. I honestly feel that each year I am here, I am living into a more lucrative and likely future managing this disease.

Best wishes to you. I hope this cleanout helps you and you can find peace.
 
L

ladybug

New member
Hey, Kelly...
<br />
<br />So sorry to hear you're feeling bummed. I know we all go through that some time or other... and sometimes more than others. Just know we're ALL here for you and wish you peace.
<br />
<br />I know this disease can be really frustrating, especially cause as we age, there is such variance in how to treat us... but, there are promising things that come out for CF every year... be it therapies, drug combos, infection control guidelines, etc.... These all serve to make us healthier and live longer. I honestly feel that each year I am here, I am living into a more lucrative and likely future managing this disease.
<br />
<br />Best wishes to you. I hope this cleanout helps you and you can find peace.
<br />
 
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