<strong>So when i was a child i was never taught anything about cf, my family lived with my illness as of "Here take this, your sick, don't ask questions" So i am all the time asking on here advice because i wasn't educated when i was little. </strong>
<strong>I went to Dayton Childrens and they admitted me, i knew since last october i was sick, and my previous clinic was refusing to help me (as some of you might have read) </strong>
<strong>they did a panel of vitamin levels, checked what my body was growing too, turns out non of it is good. My vitamin levels are all extremely low, vitamin d for example is normal between 20 and 30, my level is 9. My dr came in tonight (late, bc of the severe wind storms in ohio knocked out almost 300,000 peoples electric yesterday) he said that my body is growing staph infection, we are still checking for what type to make sure its not MRSA. My body also is growing a Fungus in my airways....whhhhat? a fungus?? mucus plugs, fungus what next, what else do i not know about. I feel like a lot of this is coming as a surprise to me and it really shouldn't. I'll be 27 in october and i feel as if i should know all of this by now. Of course i am used to reading and learning everything i can about a subject i find fasinating.</strong>
<strong>I am not coughing up hardly anything, sometimes not anything at all. the amount I am coughing up is less then half a size of a dime. I am on 3 very powerful antibiotics, 7% hypertonic saline (4 times a day) Pulmazyme (2 a day) Albuterol (4 times a day) Tobi (2 times a day )and a 45 minute vest treatment (4 times a day), I have been here since monday and the amount of secretions i am coughing up hasn't increased at all. I am still barely able to walk though my PFTS are 61/65% ( i was used to them being high 80s). I don't know i guess i needed to vent, i really pray that they find out about kalydeco monday, i think its the only thing stopping me from having a complete mental breakdown from depression, i guess that "we need to crack down, we can't put off your treatment any further, its not going to end well" talk had more of an effect on me then i thought, especially having my little boy. The idea of kalydeco, and a clear future is holding me up.</strong>
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<strong>I went to Dayton Childrens and they admitted me, i knew since last october i was sick, and my previous clinic was refusing to help me (as some of you might have read) </strong>
<strong>they did a panel of vitamin levels, checked what my body was growing too, turns out non of it is good. My vitamin levels are all extremely low, vitamin d for example is normal between 20 and 30, my level is 9. My dr came in tonight (late, bc of the severe wind storms in ohio knocked out almost 300,000 peoples electric yesterday) he said that my body is growing staph infection, we are still checking for what type to make sure its not MRSA. My body also is growing a Fungus in my airways....whhhhat? a fungus?? mucus plugs, fungus what next, what else do i not know about. I feel like a lot of this is coming as a surprise to me and it really shouldn't. I'll be 27 in october and i feel as if i should know all of this by now. Of course i am used to reading and learning everything i can about a subject i find fasinating.</strong>
<strong>I am not coughing up hardly anything, sometimes not anything at all. the amount I am coughing up is less then half a size of a dime. I am on 3 very powerful antibiotics, 7% hypertonic saline (4 times a day) Pulmazyme (2 a day) Albuterol (4 times a day) Tobi (2 times a day )and a 45 minute vest treatment (4 times a day), I have been here since monday and the amount of secretions i am coughing up hasn't increased at all. I am still barely able to walk though my PFTS are 61/65% ( i was used to them being high 80s). I don't know i guess i needed to vent, i really pray that they find out about kalydeco monday, i think its the only thing stopping me from having a complete mental breakdown from depression, i guess that "we need to crack down, we can't put off your treatment any further, its not going to end well" talk had more of an effect on me then i thought, especially having my little boy. The idea of kalydeco, and a clear future is holding me up.</strong>
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