In Vitro Preimplantation Genetic Testing-Anyone done it?

hbendz

New member
Good morning!

When Maggie-Faye turns one in September, Bob and I are considering getting started on baby #2. I will be 40 in December and as one friend put it..."you're pushing the envelope a bit aren't you?" We are considering In Vitro so that only embryos without CF are implanted. We know there are many moral, religious points of view on this and are considering all of that information when making are decision. I'm not looking for a debate here. I am hoping to see if anyone has taken this route and what they experienced. Also, what did the cost look like? I work for a company that pays up to $10K for in vitro as part of the insurance coverage. I'm trying to get a sense of how much over that we will be paying out of pocket.

Thank you!

Holly

Mother to Maggie-Faye

9 months old, double DeltaF508
 

hbendz

New member
Good morning!

When Maggie-Faye turns one in September, Bob and I are considering getting started on baby #2. I will be 40 in December and as one friend put it..."you're pushing the envelope a bit aren't you?" We are considering In Vitro so that only embryos without CF are implanted. We know there are many moral, religious points of view on this and are considering all of that information when making are decision. I'm not looking for a debate here. I am hoping to see if anyone has taken this route and what they experienced. Also, what did the cost look like? I work for a company that pays up to $10K for in vitro as part of the insurance coverage. I'm trying to get a sense of how much over that we will be paying out of pocket.

Thank you!

Holly

Mother to Maggie-Faye

9 months old, double DeltaF508
 

hbendz

New member
Good morning!

When Maggie-Faye turns one in September, Bob and I are considering getting started on baby #2. I will be 40 in December and as one friend put it..."you're pushing the envelope a bit aren't you?" We are considering In Vitro so that only embryos without CF are implanted. We know there are many moral, religious points of view on this and are considering all of that information when making are decision. I'm not looking for a debate here. I am hoping to see if anyone has taken this route and what they experienced. Also, what did the cost look like? I work for a company that pays up to $10K for in vitro as part of the insurance coverage. I'm trying to get a sense of how much over that we will be paying out of pocket.

Thank you!

Holly

Mother to Maggie-Faye

9 months old, double DeltaF508
 

hbendz

New member
Good morning!

When Maggie-Faye turns one in September, Bob and I are considering getting started on baby #2. I will be 40 in December and as one friend put it..."you're pushing the envelope a bit aren't you?" We are considering In Vitro so that only embryos without CF are implanted. We know there are many moral, religious points of view on this and are considering all of that information when making are decision. I'm not looking for a debate here. I am hoping to see if anyone has taken this route and what they experienced. Also, what did the cost look like? I work for a company that pays up to $10K for in vitro as part of the insurance coverage. I'm trying to get a sense of how much over that we will be paying out of pocket.

Thank you!

Holly

Mother to Maggie-Faye

9 months old, double DeltaF508
 

hbendz

New member
Good morning!

When Maggie-Faye turns one in September, Bob and I are considering getting started on baby #2. I will be 40 in December and as one friend put it..."you're pushing the envelope a bit aren't you?" We are considering In Vitro so that only embryos without CF are implanted. We know there are many moral, religious points of view on this and are considering all of that information when making are decision. I'm not looking for a debate here. I am hoping to see if anyone has taken this route and what they experienced. Also, what did the cost look like? I work for a company that pays up to $10K for in vitro as part of the insurance coverage. I'm trying to get a sense of how much over that we will be paying out of pocket.

Thank you!

Holly

Mother to Maggie-Faye

9 months old, double DeltaF508
 

hbendz

New member
Good morning!

When Maggie-Faye turns one in September, Bob and I are considering getting started on baby #2. I will be 40 in December and as one friend put it..."you're pushing the envelope a bit aren't you?" We are considering In Vitro so that only embryos without CF are implanted. We know there are many moral, religious points of view on this and are considering all of that information when making are decision. I'm not looking for a debate here. I am hoping to see if anyone has taken this route and what they experienced. Also, what did the cost look like? I work for a company that pays up to $10K for in vitro as part of the insurance coverage. I'm trying to get a sense of how much over that we will be paying out of pocket.

Thank you!

Holly

Mother to Maggie-Faye

9 months old, double DeltaF508
 

miesl

New member
It depends on two major factors:

1) Your IVF Clinic cost per cycle or the warranty program (which given your age would be an issue, I'm sorry - we don't qualify either).

2) Which PGD lab is used. Cost varies dramatically between clinics. However, with your mutations, things must be cheaper. (Look up RGI in Chicago if you're close to there).

I hate to be the bearer of bad tidings, but ovarian reserve and response over 40 is generally not good. Success rates at even the best of clinics will not be great.

I would say, at best, you will be paying $8-10K over that for a single cycle. You can look up success rates at a given clinic by age at <a target=_blank class=ftalternatingbarlinklarge href="http://www.sart.org/find_frm.html">SART</a>.

Good luck!
 

miesl

New member
It depends on two major factors:

1) Your IVF Clinic cost per cycle or the warranty program (which given your age would be an issue, I'm sorry - we don't qualify either).

2) Which PGD lab is used. Cost varies dramatically between clinics. However, with your mutations, things must be cheaper. (Look up RGI in Chicago if you're close to there).

I hate to be the bearer of bad tidings, but ovarian reserve and response over 40 is generally not good. Success rates at even the best of clinics will not be great.

I would say, at best, you will be paying $8-10K over that for a single cycle. You can look up success rates at a given clinic by age at <a target=_blank class=ftalternatingbarlinklarge href="http://www.sart.org/find_frm.html">SART</a>.

Good luck!
 

miesl

New member
It depends on two major factors:

1) Your IVF Clinic cost per cycle or the warranty program (which given your age would be an issue, I'm sorry - we don't qualify either).

2) Which PGD lab is used. Cost varies dramatically between clinics. However, with your mutations, things must be cheaper. (Look up RGI in Chicago if you're close to there).

I hate to be the bearer of bad tidings, but ovarian reserve and response over 40 is generally not good. Success rates at even the best of clinics will not be great.

I would say, at best, you will be paying $8-10K over that for a single cycle. You can look up success rates at a given clinic by age at <a target=_blank class=ftalternatingbarlinklarge href="http://www.sart.org/find_frm.html">SART</a>.

Good luck!
 

miesl

New member
It depends on two major factors:

1) Your IVF Clinic cost per cycle or the warranty program (which given your age would be an issue, I'm sorry - we don't qualify either).

2) Which PGD lab is used. Cost varies dramatically between clinics. However, with your mutations, things must be cheaper. (Look up RGI in Chicago if you're close to there).

I hate to be the bearer of bad tidings, but ovarian reserve and response over 40 is generally not good. Success rates at even the best of clinics will not be great.

I would say, at best, you will be paying $8-10K over that for a single cycle. You can look up success rates at a given clinic by age at <a target=_blank class=ftalternatingbarlinklarge href="http://www.sart.org/find_frm.html">SART</a>.

Good luck!
 

miesl

New member
It depends on two major factors:

1) Your IVF Clinic cost per cycle or the warranty program (which given your age would be an issue, I'm sorry - we don't qualify either).

2) Which PGD lab is used. Cost varies dramatically between clinics. However, with your mutations, things must be cheaper. (Look up RGI in Chicago if you're close to there).

I hate to be the bearer of bad tidings, but ovarian reserve and response over 40 is generally not good. Success rates at even the best of clinics will not be great.

I would say, at best, you will be paying $8-10K over that for a single cycle. You can look up success rates at a given clinic by age at <a target=_blank class=ftalternatingbarlinklarge href="http://www.sart.org/find_frm.html">SART</a>.

Good luck!
 

miesl

New member
It depends on two major factors:

1) Your IVF Clinic cost per cycle or the warranty program (which given your age would be an issue, I'm sorry - we don't qualify either).

2) Which PGD lab is used. Cost varies dramatically between clinics. However, with your mutations, things must be cheaper. (Look up RGI in Chicago if you're close to there).

I hate to be the bearer of bad tidings, but ovarian reserve and response over 40 is generally not good. Success rates at even the best of clinics will not be great.

I would say, at best, you will be paying $8-10K over that for a single cycle. You can look up success rates at a given clinic by age at <a target=_blank class=ftalternatingbarlinklarge href="http://www.sart.org/find_frm.html">SART</a>.

Good luck!
 

Ratatosk

Administrator
Staff member
There have been people on this site and others who've gotten the PGD paid for by insurance because of the possibility of having another child with CF.
 

Ratatosk

Administrator
Staff member
There have been people on this site and others who've gotten the PGD paid for by insurance because of the possibility of having another child with CF.
 

Ratatosk

Administrator
Staff member
There have been people on this site and others who've gotten the PGD paid for by insurance because of the possibility of having another child with CF.
 

Ratatosk

Administrator
Staff member
There have been people on this site and others who've gotten the PGD paid for by insurance because of the possibility of having another child with CF.
 

Ratatosk

Administrator
Staff member
There have been people on this site and others who've gotten the PGD paid for by insurance because of the possibility of having another child with CF.
 

Ratatosk

Administrator
Staff member
There have been people on this site and others who've gotten the PGD paid for by insurance because of the possibility of having another child with CF.
 

julie

New member
Depends on your lab for PGD, but mine in WA state was about $3500.

Here's the thing about PGD, there are still NO guarantees.

I have been in contact with a family from this site for the last 1-2 years. They have a DD with CF and did IVF with PGD to have a child without CF. They ended up having twins.

Despite the PGD, their second DD (one of the twins) has CF. They aren't exactly sure what happened.

I can put you in touch with this family if you wish. Just email me at division902@verizon.net and I'll put you in touch with them.
 

julie

New member
Depends on your lab for PGD, but mine in WA state was about $3500.

Here's the thing about PGD, there are still NO guarantees.

I have been in contact with a family from this site for the last 1-2 years. They have a DD with CF and did IVF with PGD to have a child without CF. They ended up having twins.

Despite the PGD, their second DD (one of the twins) has CF. They aren't exactly sure what happened.

I can put you in touch with this family if you wish. Just email me at division902@verizon.net and I'll put you in touch with them.
 
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