Ellie seldom coughs, but if she does, it's during her morning CPT. Consider that they are less active when they're sleeping which allows more mucus accumulation. They aren't vocalizing or exercising - two things which move mucus. It makes sense for a cough to be present moreso in the morning. I would definitely consider reflux as well...
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Infant Coughs
- Thread starter rosesixtyfive
- Start date
Ellie seldom coughs, but if she does, it's during her morning CPT. Consider that they are less active when they're sleeping which allows more mucus accumulation. They aren't vocalizing or exercising - two things which move mucus. It makes sense for a cough to be present moreso in the morning. I would definitely consider reflux as well...
Ellie seldom coughs, but if she does, it's during her morning CPT. Consider that they are less active when they're sleeping which allows more mucus accumulation. They aren't vocalizing or exercising - two things which move mucus. It makes sense for a cough to be present moreso in the morning. I would definitely consider reflux as well...
Ellie seldom coughs, but if she does, it's during her morning CPT. Consider that they are less active when they're sleeping which allows more mucus accumulation. They aren't vocalizing or exercising - two things which move mucus. It makes sense for a cough to be present moreso in the morning. I would definitely consider reflux as well...
Ellie seldom coughs, but if she does, it's during her morning CPT. Consider that they are less active when they're sleeping which allows more mucus accumulation. They aren't vocalizing or exercising - two things which move mucus. It makes sense for a cough to be present moreso in the morning. I would definitely consider reflux as well...
Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons.
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons.
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons.
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons.
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
--------
Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons.
<br />
<br />Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
<br />
<br />My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
<br />
<br />Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
<br />
<br />--------
<br />Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
<br />
<br />
<br />Tom's lungs also sounded clear, but after some expert advice from the others on this site I insisted on a x-ray and it did infact show that he had some mucus plugs - they thought pneumonia at first and hospitalised him, but as he was showing no real symptons they ordered another x-ray before they did the bronch and he was downgraded to bronchitis and sent home, and no bronch. But the throat culture they did showed he had a psuedonomia infection so he was switched to Cipro and started on TOBI and has been perfect ever since - he is now almost 7 months.
<br />
<br />My long winded point here is, you have to be persistent and trust your MOM instincts - we know our babies better than anyone. Just keep pushing until you are satisfied with the answers. If he had a throat swab - like you say, it is great news that he is not showing anything! Although, as I have been told a throat swab is not always accurate as bacteria in lungs cannot always be detected by a throat swab - a bronch is best, but my clinic decided it was not necessary at such a young age without severe lung symptons.
<br />
<br />Tom is now on Pulmozyme, Abuterol and Pulmicort and his cough is no longer. Good luck with everything! PM if you need to chat, I know just how confusing and worrying all of this can be - hang in there!
<br />
<br />--------
<br />Natalie, Mom to Tom, w/cf 7 months DDF508 and Jack, 3 no cf
<br />
When they swab his throat they are doing a 'throat culture'. That swab is sent ito a lab to see what grows on it...if it grow bacteria or not. They should tell you if it does, but to be sure you could double check with the doc/nurse to see what was on his last 'culture or throat swab'. I have heard of them not telling people and them finding out later...depends on how efficient you docs office is. Hopefully they would contact you if he was culturing anything.
When they swab his throat they are doing a 'throat culture'. That swab is sent ito a lab to see what grows on it...if it grow bacteria or not. They should tell you if it does, but to be sure you could double check with the doc/nurse to see what was on his last 'culture or throat swab'. I have heard of them not telling people and them finding out later...depends on how efficient you docs office is. Hopefully they would contact you if he was culturing anything.
When they swab his throat they are doing a 'throat culture'. That swab is sent ito a lab to see what grows on it...if it grow bacteria or not. They should tell you if it does, but to be sure you could double check with the doc/nurse to see what was on his last 'culture or throat swab'. I have heard of them not telling people and them finding out later...depends on how efficient you docs office is. Hopefully they would contact you if he was culturing anything.
When they swab his throat they are doing a 'throat culture'. That swab is sent ito a lab to see what grows on it...if it grow bacteria or not. They should tell you if it does, but to be sure you could double check with the doc/nurse to see what was on his last 'culture or throat swab'. I have heard of them not telling people and them finding out later...depends on how efficient you docs office is. Hopefully they would contact you if he was culturing anything.
When they swab his throat they are doing a 'throat culture'. That swab is sent ito a lab to see what grows on it...if it grow bacteria or not. They should tell you if it does, but to be sure you could double check with the doc/nurse to see what was on his last 'culture or throat swab'. I have heard of them not telling people and them finding out later...depends on how efficient you docs office is. Hopefully they would contact you if he was culturing anything.
rosesixtyfive
New member
Okay, the acid reflux thing is making sense. It made me think of some other things he does. He pulls himself on and off sometimes when he is breastfeeding, and yesterday, my mother gave him a bottle and he kept coughing and couldn't drink it. Other than the 5:00 am dry coughs, he does not cough. Does this sound like reflux? He is already on zantac, but I called my CF doctor and he is going to switch him to Nexxium. Maybe the Nexxium will work better because it is a powder he can take in apple sauce. The zantac is a liquid and it's hard to tell how much of it he swallows and how much he spits out.
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
rosesixtyfive
New member
Okay, the acid reflux thing is making sense. It made me think of some other things he does. He pulls himself on and off sometimes when he is breastfeeding, and yesterday, my mother gave him a bottle and he kept coughing and couldn't drink it. Other than the 5:00 am dry coughs, he does not cough. Does this sound like reflux? He is already on zantac, but I called my CF doctor and he is going to switch him to Nexxium. Maybe the Nexxium will work better because it is a powder he can take in apple sauce. The zantac is a liquid and it's hard to tell how much of it he swallows and how much he spits out.
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
rosesixtyfive
New member
Okay, the acid reflux thing is making sense. It made me think of some other things he does. He pulls himself on and off sometimes when he is breastfeeding, and yesterday, my mother gave him a bottle and he kept coughing and couldn't drink it. Other than the 5:00 am dry coughs, he does not cough. Does this sound like reflux? He is already on zantac, but I called my CF doctor and he is going to switch him to Nexxium. Maybe the Nexxium will work better because it is a powder he can take in apple sauce. The zantac is a liquid and it's hard to tell how much of it he swallows and how much he spits out.
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
rosesixtyfive
New member
Okay, the acid reflux thing is making sense. It made me think of some other things he does. He pulls himself on and off sometimes when he is breastfeeding, and yesterday, my mother gave him a bottle and he kept coughing and couldn't drink it. Other than the 5:00 am dry coughs, he does not cough. Does this sound like reflux? He is already on zantac, but I called my CF doctor and he is going to switch him to Nexxium. Maybe the Nexxium will work better because it is a powder he can take in apple sauce. The zantac is a liquid and it's hard to tell how much of it he swallows and how much he spits out.
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
Thanks,
rosesixtyfive, mother of Sam, (DDf508), 4 months
rosesixtyfive
New member
Okay, the acid reflux thing is making sense. It made me think of some other things he does. He pulls himself on and off sometimes when he is breastfeeding, and yesterday, my mother gave him a bottle and he kept coughing and couldn't drink it. Other than the 5:00 am dry coughs, he does not cough. Does this sound like reflux? He is already on zantac, but I called my CF doctor and he is going to switch him to Nexxium. Maybe the Nexxium will work better because it is a powder he can take in apple sauce. The zantac is a liquid and it's hard to tell how much of it he swallows and how much he spits out.
<br />Thanks,
<br />rosesixtyfive, mother of Sam, (DDf508), 4 months
<br />Thanks,
<br />rosesixtyfive, mother of Sam, (DDf508), 4 months