My son was diagnosed with CF through his newborn screening and after he had part of his bowel removed from a meconium ileus.
He has been affected by the pancreatic deficiency and has been on enzymes and vitamins and zantac for his AR and we have been doing his nebulizer 2-3x a day for preventative measures.
This past weekend, we were in Orlando visiting my family and my niece and nephew both at some point said they werent feeling well, but when I told them they couldn't be around the baby if they werent feeling well, they almost immediately (or within 10 minutes) said they were feeling fine. I confronted their mother and she agreed they were fine, which I am not so sure about. They are 7 and 5, so they really dont understand the dangers of getting "baby toby" sick. We tried to explain to them it could put him in the hospital, but still, they said they were okay.
Since I was staying with them, I couldnt really keep them completely away from the baby but i tried to keep them as far as possible just in case.
Well, yesterday morning, he woke up with a cough. Hes never really had MUCH of a cough, nor CF affecting his lungs. The last time I noticed him starting to have a cough, Clinic said I could increase his neb to 3x to every 4 hours if necessary. Every 4 hours is virtually impossible with this child as he must be sleeping to get his nebulizer or will scream bloody murder and push it away and turn his head and thrash it back and forth. Well, anyway, I doubt anyone here could really answer this for me, but I am wondering what I should do... should I continue giving him the neb 3-4x a day and see if it helps over the next few days and pick up an infant cough medicine? We have appointments with both CF and his pedi for 6 month checkup on monday, so i am thinking i should just wait it out unless it gets severely worse or his temp goes up. (it was low grade earlier today)
Any suggestions? Should I just treat it as though its a cold and not progression of CF to affecting his lungs? I think clinic would just tell me the same thing- to increase his nebulizer, so i dont think i should even bother with them for this cold or whatever it is. <img src="i/expressions/face-icon-small-sad.gif" border="0">
He has been affected by the pancreatic deficiency and has been on enzymes and vitamins and zantac for his AR and we have been doing his nebulizer 2-3x a day for preventative measures.
This past weekend, we were in Orlando visiting my family and my niece and nephew both at some point said they werent feeling well, but when I told them they couldn't be around the baby if they werent feeling well, they almost immediately (or within 10 minutes) said they were feeling fine. I confronted their mother and she agreed they were fine, which I am not so sure about. They are 7 and 5, so they really dont understand the dangers of getting "baby toby" sick. We tried to explain to them it could put him in the hospital, but still, they said they were okay.
Since I was staying with them, I couldnt really keep them completely away from the baby but i tried to keep them as far as possible just in case.
Well, yesterday morning, he woke up with a cough. Hes never really had MUCH of a cough, nor CF affecting his lungs. The last time I noticed him starting to have a cough, Clinic said I could increase his neb to 3x to every 4 hours if necessary. Every 4 hours is virtually impossible with this child as he must be sleeping to get his nebulizer or will scream bloody murder and push it away and turn his head and thrash it back and forth. Well, anyway, I doubt anyone here could really answer this for me, but I am wondering what I should do... should I continue giving him the neb 3-4x a day and see if it helps over the next few days and pick up an infant cough medicine? We have appointments with both CF and his pedi for 6 month checkup on monday, so i am thinking i should just wait it out unless it gets severely worse or his temp goes up. (it was low grade earlier today)
Any suggestions? Should I just treat it as though its a cold and not progression of CF to affecting his lungs? I think clinic would just tell me the same thing- to increase his nebulizer, so i dont think i should even bother with them for this cold or whatever it is. <img src="i/expressions/face-icon-small-sad.gif" border="0">