i was told when my daughter was diagnosed that someone with cf with only live till they r 31.
Well after being on the site its givin me hope that thats not the case.
We were at the hospital yesterday for her month check up .....i said to the doc what iv been readin and he totaly crashed my hopes, saying that its not likley, that these people on the sites arent livin normaly lifes, thay r at home on the net for a reason........cause thay r not well and they r the few who r still livin!
This is the second time he has anoyed me and think that was pritty hard and he should be givin us hope.
Just now my daughter is fine and she always has bein doin well, she never got diagnosed till she was 3 and that was me pushin for an answer bacause she had colds all the time other than that you wouldnt know she had cf.
I dont know what to think now......he has done my nut in!
Well after being on the site its givin me hope that thats not the case.
We were at the hospital yesterday for her month check up .....i said to the doc what iv been readin and he totaly crashed my hopes, saying that its not likley, that these people on the sites arent livin normaly lifes, thay r at home on the net for a reason........cause thay r not well and they r the few who r still livin!
This is the second time he has anoyed me and think that was pritty hard and he should be givin us hope.
Just now my daughter is fine and she always has bein doin well, she never got diagnosed till she was 3 and that was me pushin for an answer bacause she had colds all the time other than that you wouldnt know she had cf.
I dont know what to think now......he has done my nut in!