Insensitive

Liza · Sep 28, 2007

Charl72, I guess it all depends on how close you and your brother are. I read your post and thought to myself, it happens. Time gets away from you whether your kids have CF or not, sick or healthy. Again though I think your hurt goes back to how close you and your brother are. I get the feeling you are normally really close. Sure he should have called if he said he was going to. You seemed to be mad that he answered your question as to how his son was doing. He had a good reason for not calling, his son was ill, but it didn't seem that he offered that as an excuse for not calling, he was simply answering your question. As this boys aunt, did you not want to hear that he could be sick? I have always felt, if you don't truelly want to know how someone is doing, don't ask.

Personally having two girls w/CF, I have always limited the amount of info. I give out to family members when they ask how they are doing. They can't grasp the day to day and little ups and downs of CF. I don't bother with much more than, "the pft's are down and they're getting oral antibiotics, we'll see how it goes at the follow-up." I don't expect any follow-up phone calls. They'll ask again the next time we see them or talk to them. Hospitalizations are different though. More serious I guess, everyone wants to know how they are doing, how long their gonna be in, can they come visit? That's when we need them.

I hope your daughter is feeling better. No one really knows more than all of us here how worried you get when something changes. Let us know here, we'll be sure to ask if she's feeling better.

Liza · Sep 28, 2007

Charl72, I guess it all depends on how close you and your brother are. I read your post and thought to myself, it happens. Time gets away from you whether your kids have CF or not, sick or healthy. Again though I think your hurt goes back to how close you and your brother are. I get the feeling you are normally really close. Sure he should have called if he said he was going to. You seemed to be mad that he answered your question as to how his son was doing. He had a good reason for not calling, his son was ill, but it didn't seem that he offered that as an excuse for not calling, he was simply answering your question. As this boys aunt, did you not want to hear that he could be sick? I have always felt, if you don't truelly want to know how someone is doing, don't ask.

Personally having two girls w/CF, I have always limited the amount of info. I give out to family members when they ask how they are doing. They can't grasp the day to day and little ups and downs of CF. I don't bother with much more than, "the pft's are down and they're getting oral antibiotics, we'll see how it goes at the follow-up." I don't expect any follow-up phone calls. They'll ask again the next time we see them or talk to them. Hospitalizations are different though. More serious I guess, everyone wants to know how they are doing, how long their gonna be in, can they come visit? That's when we need them.

I hope your daughter is feeling better. No one really knows more than all of us here how worried you get when something changes. Let us know here, we'll be sure to ask if she's feeling better.

Liza · Sep 28, 2007

Charl72, I guess it all depends on how close you and your brother are. I read your post and thought to myself, it happens. Time gets away from you whether your kids have CF or not, sick or healthy. Again though I think your hurt goes back to how close you and your brother are. I get the feeling you are normally really close. Sure he should have called if he said he was going to. You seemed to be mad that he answered your question as to how his son was doing. He had a good reason for not calling, his son was ill, but it didn't seem that he offered that as an excuse for not calling, he was simply answering your question. As this boys aunt, did you not want to hear that he could be sick? I have always felt, if you don't truelly want to know how someone is doing, don't ask.

Personally having two girls w/CF, I have always limited the amount of info. I give out to family members when they ask how they are doing. They can't grasp the day to day and little ups and downs of CF. I don't bother with much more than, "the pft's are down and they're getting oral antibiotics, we'll see how it goes at the follow-up." I don't expect any follow-up phone calls. They'll ask again the next time we see them or talk to them. Hospitalizations are different though. More serious I guess, everyone wants to know how they are doing, how long their gonna be in, can they come visit? That's when we need them.

I hope your daughter is feeling better. No one really knows more than all of us here how worried you get when something changes. Let us know here, we'll be sure to ask if she's feeling better.

Liza · Sep 28, 2007

Charl72, I guess it all depends on how close you and your brother are. I read your post and thought to myself, it happens. Time gets away from you whether your kids have CF or not, sick or healthy. Again though I think your hurt goes back to how close you and your brother are. I get the feeling you are normally really close. Sure he should have called if he said he was going to. You seemed to be mad that he answered your question as to how his son was doing. He had a good reason for not calling, his son was ill, but it didn't seem that he offered that as an excuse for not calling, he was simply answering your question. As this boys aunt, did you not want to hear that he could be sick? I have always felt, if you don't truelly want to know how someone is doing, don't ask.

Personally having two girls w/CF, I have always limited the amount of info. I give out to family members when they ask how they are doing. They can't grasp the day to day and little ups and downs of CF. I don't bother with much more than, "the pft's are down and they're getting oral antibiotics, we'll see how it goes at the follow-up." I don't expect any follow-up phone calls. They'll ask again the next time we see them or talk to them. Hospitalizations are different though. More serious I guess, everyone wants to know how they are doing, how long their gonna be in, can they come visit? That's when we need them.

I hope your daughter is feeling better. No one really knows more than all of us here how worried you get when something changes. Let us know here, we'll be sure to ask if she's feeling better.

Liza · Sep 28, 2007

Charl72, I guess it all depends on how close you and your brother are. I read your post and thought to myself, it happens. Time gets away from you whether your kids have CF or not, sick or healthy. Again though I think your hurt goes back to how close you and your brother are. I get the feeling you are normally really close. Sure he should have called if he said he was going to. You seemed to be mad that he answered your question as to how his son was doing. He had a good reason for not calling, his son was ill, but it didn't seem that he offered that as an excuse for not calling, he was simply answering your question. As this boys aunt, did you not want to hear that he could be sick? I have always felt, if you don't truelly want to know how someone is doing, don't ask.

Personally having two girls w/CF, I have always limited the amount of info. I give out to family members when they ask how they are doing. They can't grasp the day to day and little ups and downs of CF. I don't bother with much more than, "the pft's are down and they're getting oral antibiotics, we'll see how it goes at the follow-up." I don't expect any follow-up phone calls. They'll ask again the next time we see them or talk to them. Hospitalizations are different though. More serious I guess, everyone wants to know how they are doing, how long their gonna be in, can they come visit? That's when we need them.

I hope your daughter is feeling better. No one really knows more than all of us here how worried you get when something changes. Let us know here, we'll be sure to ask if she's feeling better.

RUSSELLCREW · Oct 1, 2007