Today we went to the clinic to have my son's sweat test done...after bundling the kid up he did not have enough sweat for the first test. So we repeated the test and pulled out all of the tricks that the lab tech had to make him sweat more...his head was sweaty(perhaps it was the double winter hat) but not enough for the collection on his forearm. My husband and I left feeling defeated and frustrated about not getting anywhere.....we called the doctors office and they are going to send an order to do the blood work. They say that it is not the simple test, but the panel of test that makes up 98% of the caucasian CF population. We go tomorrow to the lab to have this drawn.....Is this blood test sufficient in finding out what we need to know, is the one considered to be a full panel? And also how long can we expect before we get any answers? Thanks for the input, I think that it is the waiting and the unknown that is really difficult.
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Insuf. Sweat test and then blood test?????
- Thread starter Momma2O
- Start date
Today we went to the clinic to have my son's sweat test done...after bundling the kid up he did not have enough sweat for the first test. So we repeated the test and pulled out all of the tricks that the lab tech had to make him sweat more...his head was sweaty(perhaps it was the double winter hat) but not enough for the collection on his forearm. My husband and I left feeling defeated and frustrated about not getting anywhere.....we called the doctors office and they are going to send an order to do the blood work. They say that it is not the simple test, but the panel of test that makes up 98% of the caucasian CF population. We go tomorrow to the lab to have this drawn.....Is this blood test sufficient in finding out what we need to know, is the one considered to be a full panel? And also how long can we expect before we get any answers? Thanks for the input, I think that it is the waiting and the unknown that is really difficult.
Today we went to the clinic to have my son's sweat test done...after bundling the kid up he did not have enough sweat for the first test. So we repeated the test and pulled out all of the tricks that the lab tech had to make him sweat more...his head was sweaty(perhaps it was the double winter hat) but not enough for the collection on his forearm. My husband and I left feeling defeated and frustrated about not getting anywhere.....we called the doctors office and they are going to send an order to do the blood work. They say that it is not the simple test, but the panel of test that makes up 98% of the caucasian CF population. We go tomorrow to the lab to have this drawn.....Is this blood test sufficient in finding out what we need to know, is the one considered to be a full panel? And also how long can we expect before we get any answers? Thanks for the input, I think that it is the waiting and the unknown that is really difficult.
Today we went to the clinic to have my son's sweat test done...after bundling the kid up he did not have enough sweat for the first test. So we repeated the test and pulled out all of the tricks that the lab tech had to make him sweat more...his head was sweaty(perhaps it was the double winter hat) but not enough for the collection on his forearm. My husband and I left feeling defeated and frustrated about not getting anywhere.....we called the doctors office and they are going to send an order to do the blood work. They say that it is not the simple test, but the panel of test that makes up 98% of the caucasian CF population. We go tomorrow to the lab to have this drawn.....Is this blood test sufficient in finding out what we need to know, is the one considered to be a full panel? And also how long can we expect before we get any answers? Thanks for the input, I think that it is the waiting and the unknown that is really difficult.
Today we went to the clinic to have my son's sweat test done...after bundling the kid up he did not have enough sweat for the first test. So we repeated the test and pulled out all of the tricks that the lab tech had to make him sweat more...his head was sweaty(perhaps it was the double winter hat) but not enough for the collection on his forearm. My husband and I left feeling defeated and frustrated about not getting anywhere.....we called the doctors office and they are going to send an order to do the blood work. They say that it is not the simple test, but the panel of test that makes up 98% of the caucasian CF population. We go tomorrow to the lab to have this drawn.....Is this blood test sufficient in finding out what we need to know, is the one considered to be a full panel? And also how long can we expect before we get any answers? Thanks for the input, I think that it is the waiting and the unknown that is really difficult.
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When DS had the blood test, which tested for the most common mutations, we knew by the end of the week and it showed he had CF; however, I would push more more extensive testing because the test you're referring to only tests for the 35+ most common mutations and there are over 1500 CF mutations.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
When DS had the blood test, which tested for the most common mutations, we knew by the end of the week and it showed he had CF; however, I would push more more extensive testing because the test you're referring to only tests for the 35+ most common mutations and there are over 1500 CF mutations.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
When DS had the blood test, which tested for the most common mutations, we knew by the end of the week and it showed he had CF; however, I would push more more extensive testing because the test you're referring to only tests for the 35+ most common mutations and there are over 1500 CF mutations.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
When DS had the blood test, which tested for the most common mutations, we knew by the end of the week and it showed he had CF; however, I would push more more extensive testing because the test you're referring to only tests for the 35+ most common mutations and there are over 1500 CF mutations.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
When DS had the blood test, which tested for the most common mutations, we knew by the end of the week and it showed he had CF; however, I would push more more extensive testing because the test you're referring to only tests for the 35+ most common mutations and there are over 1500 CF mutations.
<br />
<br />So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.
<br />
<br />So if your son is tested and that test shows that he has none of those mutations, you're still going to have a lot of unanswered questions. So IMO, push for the amplified.