Interesting Video

NoExcuses

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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Sakem</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>



I found myself in 2003 getting too lazy to do my Pulmozyme. I was working my 1st job, time was limited. I didn't see an immediate impact of not taking the med, so I stopped it all together for about 3 months. [/L]</end quote></div>





I think this is a common response for many young people as yourself. When things are going good, denial of CF can be convienient. </end quote></div>

For me it wasn't denial, it was just thinking hey, this drug doens't seem to do anything for me. I did all the rest of my nebs - my albuterol, TOBI and my Vest.



<div class="FTQUOTE"><begin quote>Doctors should educate their patients about the actions and importance of drugs they are prescribing, but the patient is ultimately the one responsible for reading the drug info and educating themselve why some things are important, even if they so not have an immediate onset of action.</end quote></div>

I agree 100%

The problem that I see in adult clinicis is that, especially at my clinic, when meds are initiated as a ped, meds aren't re-explained as an adult. I've been on this med since my early teens, so I doubt my doc though, "wow, she's been on the med for a decade, it's time to re-explain to her why this med is important." But that's just the ticket - the mind of a 22 year old is different than a 14 year old. So it's on the adult clinics to make sure patients understand meds, even if they've been on them for a long time.

Needless to say I've been compliant for the past 3 years. It's a great drug.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jem</b></i>

Thanks for the link...it does help explain its purpose well. I take pulmozyme once a day but I always wondered if I should be taking it twice a day. Do you take it twice a day?</end quote></div>


Yup, I do it twice a day. the Prescribing Information says that patients over a certain FEV1 ( I think it's 75%) benefit from BID therapy.

I did BID when i was younger. Than my ped doc said that QD should have the same affect. But it never really did. So since my FEV1 is 95%, I showed the study to my adult doc and he decided to do BID. It definately feels better that way for me.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jem</b></i>

Thanks for the link...it does help explain its purpose well. I take pulmozyme once a day but I always wondered if I should be taking it twice a day. Do you take it twice a day?</end quote></div>


Yup, I do it twice a day. the Prescribing Information says that patients over a certain FEV1 ( I think it's 75%) benefit from BID therapy.

I did BID when i was younger. Than my ped doc said that QD should have the same affect. But it never really did. So since my FEV1 is 95%, I showed the study to my adult doc and he decided to do BID. It definately feels better that way for me.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jem</b></i>

Thanks for the link...it does help explain its purpose well. I take pulmozyme once a day but I always wondered if I should be taking it twice a day. Do you take it twice a day?</end quote></div>


Yup, I do it twice a day. the Prescribing Information says that patients over a certain FEV1 ( I think it's 75%) benefit from BID therapy.

I did BID when i was younger. Than my ped doc said that QD should have the same affect. But it never really did. So since my FEV1 is 95%, I showed the study to my adult doc and he decided to do BID. It definately feels better that way for me.
 

sarabeth87

New member
Thanks for the link Amy. I never realized that our own immune system actually made it worse. I guess I learn something new everday. But anyways, I always thought Pulmozyme didn't really help me (I did it anyways though) but if I go a few days without, I feel really congested.
 

sarabeth87

New member
Thanks for the link Amy. I never realized that our own immune system actually made it worse. I guess I learn something new everday. But anyways, I always thought Pulmozyme didn't really help me (I did it anyways though) but if I go a few days without, I feel really congested.
 

sarabeth87

New member
Thanks for the link Amy. I never realized that our own immune system actually made it worse. I guess I learn something new everday. But anyways, I always thought Pulmozyme didn't really help me (I did it anyways though) but if I go a few days without, I feel really congested.
 

NoExcuses

New member
Another thing I wanted to add is this is why medications like NAC and Glutathione, anti-histamines and leukotriene inhibators (I have posted studies on all of these meds in my blog) and foods rich in anti-oxidents are so helpful for CF patients.

They all do a great job of mediating this troublesome inflammation.
 

NoExcuses

New member
Another thing I wanted to add is this is why medications like NAC and Glutathione, anti-histamines and leukotriene inhibators (I have posted studies on all of these meds in my blog) and foods rich in anti-oxidents are so helpful for CF patients.

They all do a great job of mediating this troublesome inflammation.
 

NoExcuses

New member
Another thing I wanted to add is this is why medications like NAC and Glutathione, anti-histamines and leukotriene inhibators (I have posted studies on all of these meds in my blog) and foods rich in anti-oxidents are so helpful for CF patients.

They all do a great job of mediating this troublesome inflammation.
 

NoExcuses

New member
One other thing - those who have untreated allergies are contributing dramatically to the inflammation issue as well.

This is why CF patients do so much better when they finally get their allergies under control through allergy shots, medications and allergy avoidence <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
One other thing - those who have untreated allergies are contributing dramatically to the inflammation issue as well.

This is why CF patients do so much better when they finally get their allergies under control through allergy shots, medications and allergy avoidence <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
One other thing - those who have untreated allergies are contributing dramatically to the inflammation issue as well.

This is why CF patients do so much better when they finally get their allergies under control through allergy shots, medications and allergy avoidence <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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