Introduction

A

alan

New member
Hello everyone. My Name is Alan Himmel. I have a son with CF. He is now almost 7 years old. I have been an member of another group called "Sharktank". The url is www.sharktank.org

In this group we discuss the science of CF. In fact, we are a research group. I have been very involved in this since the birth of my son. Luckily, we have had a great leader of our group. Her name is Melanie Childers. Melanie was the first to postulate the idea of supplementing with exogenous glutathione, nebulized into the lungs. This was about seven years ago, when it was discovered that the CF lungs were in fact deficient in the antioxidant, glutathione, due to the lack of transport of the compound by the faulty CFTR protein.

Anyway, since the discovery that Glutathione plays a role in the health of CF patients, other research and ideas have followed. You can read the research if you go to the sharktank website.

I will be posting an announcment directly following this email, for those who are interested in volunteering for a clinicl trial in south Florida.

I am happy I found this group, and I think I can learn a lot here.

Alan
 
A

alan

New member
Hello everyone. My Name is Alan Himmel. I have a son with CF. He is now almost 7 years old. I have been an member of another group called "Sharktank". The url is www.sharktank.org

In this group we discuss the science of CF. In fact, we are a research group. I have been very involved in this since the birth of my son. Luckily, we have had a great leader of our group. Her name is Melanie Childers. Melanie was the first to postulate the idea of supplementing with exogenous glutathione, nebulized into the lungs. This was about seven years ago, when it was discovered that the CF lungs were in fact deficient in the antioxidant, glutathione, due to the lack of transport of the compound by the faulty CFTR protein.

Anyway, since the discovery that Glutathione plays a role in the health of CF patients, other research and ideas have followed. You can read the research if you go to the sharktank website.

I will be posting an announcment directly following this email, for those who are interested in volunteering for a clinicl trial in south Florida.

I am happy I found this group, and I think I can learn a lot here.

Alan
 
A

alan

New member
Hello everyone. My Name is Alan Himmel. I have a son with CF. He is now almost 7 years old. I have been an member of another group called "Sharktank". The url is www.sharktank.org

In this group we discuss the science of CF. In fact, we are a research group. I have been very involved in this since the birth of my son. Luckily, we have had a great leader of our group. Her name is Melanie Childers. Melanie was the first to postulate the idea of supplementing with exogenous glutathione, nebulized into the lungs. This was about seven years ago, when it was discovered that the CF lungs were in fact deficient in the antioxidant, glutathione, due to the lack of transport of the compound by the faulty CFTR protein.

Anyway, since the discovery that Glutathione plays a role in the health of CF patients, other research and ideas have followed. You can read the research if you go to the sharktank website.

I will be posting an announcment directly following this email, for those who are interested in volunteering for a clinicl trial in south Florida.

I am happy I found this group, and I think I can learn a lot here.

Alan
 
J

JRPandTJP

New member
Welcome Alan...my hubby and I read and follow SharkTank research very much. We are excited about the new discoveries and clinical trial and have friends and family that support all of the groups efforts!

We have much hope that our children will see the end of this disease in their life time.

Jody and Tom
www.cfnutrition4life.com
 
J

JRPandTJP

New member
Welcome Alan...my hubby and I read and follow SharkTank research very much. We are excited about the new discoveries and clinical trial and have friends and family that support all of the groups efforts!

We have much hope that our children will see the end of this disease in their life time.

Jody and Tom
www.cfnutrition4life.com
 
J

JRPandTJP

New member
Welcome Alan...my hubby and I read and follow SharkTank research very much. We are excited about the new discoveries and clinical trial and have friends and family that support all of the groups efforts!

We have much hope that our children will see the end of this disease in their life time.

Jody and Tom
www.cfnutrition4life.com
 
A

alan

New member
Thank you. I am glad that you have heard of us, but we have never tried to be in the spotlight. We dont think it is about us, Sharktank, but about the purpose of the group and all those who have CF. As you may or may not know, we are a small group, not too much different than cysticfibrosis.com. We are made up of patients, parents and relatives. We have dedicated our time, not so much to cry on each others shoulders, but to learn and understand CF.

However, we do have what we believe to be a groundbreaking discovery and idea, that we are now in the process of recruiting patients for a trial. We are preparing a release, that I will soon send to this forum and as many others as I can find.

I would also like to open a discussion about the use of GSH. I have read some of the posts, in the archives, and I know that many are using it. I am not your treating doctor, as you know. So, I will never make recommendations to you regarding your care. I would only state what I would do for my child, knowing what I know about the disease and the biochemistry that we have elucidated.

If you haven't read the research, again, you can find it at www.sharktank.org
 
A

alan

New member
Thank you. I am glad that you have heard of us, but we have never tried to be in the spotlight. We dont think it is about us, Sharktank, but about the purpose of the group and all those who have CF. As you may or may not know, we are a small group, not too much different than cysticfibrosis.com. We are made up of patients, parents and relatives. We have dedicated our time, not so much to cry on each others shoulders, but to learn and understand CF.

However, we do have what we believe to be a groundbreaking discovery and idea, that we are now in the process of recruiting patients for a trial. We are preparing a release, that I will soon send to this forum and as many others as I can find.

I would also like to open a discussion about the use of GSH. I have read some of the posts, in the archives, and I know that many are using it. I am not your treating doctor, as you know. So, I will never make recommendations to you regarding your care. I would only state what I would do for my child, knowing what I know about the disease and the biochemistry that we have elucidated.

If you haven't read the research, again, you can find it at www.sharktank.org
 
A

alan

New member
Thank you. I am glad that you have heard of us, but we have never tried to be in the spotlight. We dont think it is about us, Sharktank, but about the purpose of the group and all those who have CF. As you may or may not know, we are a small group, not too much different than cysticfibrosis.com. We are made up of patients, parents and relatives. We have dedicated our time, not so much to cry on each others shoulders, but to learn and understand CF.

However, we do have what we believe to be a groundbreaking discovery and idea, that we are now in the process of recruiting patients for a trial. We are preparing a release, that I will soon send to this forum and as many others as I can find.

I would also like to open a discussion about the use of GSH. I have read some of the posts, in the archives, and I know that many are using it. I am not your treating doctor, as you know. So, I will never make recommendations to you regarding your care. I would only state what I would do for my child, knowing what I know about the disease and the biochemistry that we have elucidated.

If you haven't read the research, again, you can find it at www.sharktank.org
 
A

anonymous

New member
I am going to try amd move this discussion to the "adults"section. I would like to talk about the hypothesis, GSH, etc.
 
A

anonymous

New member
I am going to try amd move this discussion to the "adults"section. I would like to talk about the hypothesis, GSH, etc.
 
A

anonymous

New member
I am going to try amd move this discussion to the "adults"section. I would like to talk about the hypothesis, GSH, etc.
 
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