IS ANYONE ON DISABILITY?

minimedic304

New member
I have been faced with very recent health changes with the idea of going on disability. I need to dedicate more time to taking care of myself by working out and doing more treatments, but can't because I work 12 hour days. Has anyone here been on disability, and how difficult was it, what do they look for in order to approve it.

kevin
 

minimedic304

New member
I have been faced with very recent health changes with the idea of going on disability. I need to dedicate more time to taking care of myself by working out and doing more treatments, but can't because I work 12 hour days. Has anyone here been on disability, and how difficult was it, what do they look for in order to approve it.

kevin
 

minimedic304

New member
I have been faced with very recent health changes with the idea of going on disability. I need to dedicate more time to taking care of myself by working out and doing more treatments, but can't because I work 12 hour days. Has anyone here been on disability, and how difficult was it, what do they look for in order to approve it.

kevin
 

minimedic304

New member
I have been faced with very recent health changes with the idea of going on disability. I need to dedicate more time to taking care of myself by working out and doing more treatments, but can't because I work 12 hour days. Has anyone here been on disability, and how difficult was it, what do they look for in order to approve it.

kevin
 

minimedic304

New member
I have been faced with very recent health changes with the idea of going on disability. I need to dedicate more time to taking care of myself by working out and doing more treatments, but can't because I work 12 hour days. Has anyone here been on disability, and how difficult was it, what do they look for in order to approve it.

kevin
 

bagged2drag

Active member
Are you looking at short term or long term disability. Short term (if you have insurance for it at work) is generally very easy to get. Often they have a short waiting period about a week or so. Most policies will provide coverage for around 6 months.

If you are talking about social security, things do get a bit more difficult. I don't recall exactly, but when I was on, there was a 6 month period that had to pass before you could apply (had to be off work for 6 months), then, with your doctors blessing and some magical paperwork, you have to hope they approve you. I heard its often hard for cf'ers to get disability right away, but in my case I was approved immediately. It took a few months to get approved, and then they backpaid from when I applied. It can be a tough year though, as one has to live on very limited income, and for some period-no income at all.

They generally look at what your capabilities are, if you are able to work etc. Much comes down to your physician and how he or she feels. They will have a direct effect on the perception of your personal case. I had a super physician (who actually initiated all the paperwork for me--I was only 21, a bit dumb on the subject) who truly felt I couldn't work at the time. I was about 20% lung function at the time. I am now at about 35%, give or take, and my current doc says that is about the threashold for disability.
 

bagged2drag

Active member
Are you looking at short term or long term disability. Short term (if you have insurance for it at work) is generally very easy to get. Often they have a short waiting period about a week or so. Most policies will provide coverage for around 6 months.

If you are talking about social security, things do get a bit more difficult. I don't recall exactly, but when I was on, there was a 6 month period that had to pass before you could apply (had to be off work for 6 months), then, with your doctors blessing and some magical paperwork, you have to hope they approve you. I heard its often hard for cf'ers to get disability right away, but in my case I was approved immediately. It took a few months to get approved, and then they backpaid from when I applied. It can be a tough year though, as one has to live on very limited income, and for some period-no income at all.

They generally look at what your capabilities are, if you are able to work etc. Much comes down to your physician and how he or she feels. They will have a direct effect on the perception of your personal case. I had a super physician (who actually initiated all the paperwork for me--I was only 21, a bit dumb on the subject) who truly felt I couldn't work at the time. I was about 20% lung function at the time. I am now at about 35%, give or take, and my current doc says that is about the threashold for disability.
 

bagged2drag

Active member
Are you looking at short term or long term disability. Short term (if you have insurance for it at work) is generally very easy to get. Often they have a short waiting period about a week or so. Most policies will provide coverage for around 6 months.

If you are talking about social security, things do get a bit more difficult. I don't recall exactly, but when I was on, there was a 6 month period that had to pass before you could apply (had to be off work for 6 months), then, with your doctors blessing and some magical paperwork, you have to hope they approve you. I heard its often hard for cf'ers to get disability right away, but in my case I was approved immediately. It took a few months to get approved, and then they backpaid from when I applied. It can be a tough year though, as one has to live on very limited income, and for some period-no income at all.

They generally look at what your capabilities are, if you are able to work etc. Much comes down to your physician and how he or she feels. They will have a direct effect on the perception of your personal case. I had a super physician (who actually initiated all the paperwork for me--I was only 21, a bit dumb on the subject) who truly felt I couldn't work at the time. I was about 20% lung function at the time. I am now at about 35%, give or take, and my current doc says that is about the threashold for disability.
 

bagged2drag

Active member
Are you looking at short term or long term disability. Short term (if you have insurance for it at work) is generally very easy to get. Often they have a short waiting period about a week or so. Most policies will provide coverage for around 6 months.

If you are talking about social security, things do get a bit more difficult. I don't recall exactly, but when I was on, there was a 6 month period that had to pass before you could apply (had to be off work for 6 months), then, with your doctors blessing and some magical paperwork, you have to hope they approve you. I heard its often hard for cf'ers to get disability right away, but in my case I was approved immediately. It took a few months to get approved, and then they backpaid from when I applied. It can be a tough year though, as one has to live on very limited income, and for some period-no income at all.

They generally look at what your capabilities are, if you are able to work etc. Much comes down to your physician and how he or she feels. They will have a direct effect on the perception of your personal case. I had a super physician (who actually initiated all the paperwork for me--I was only 21, a bit dumb on the subject) who truly felt I couldn't work at the time. I was about 20% lung function at the time. I am now at about 35%, give or take, and my current doc says that is about the threashold for disability.
 

bagged2drag

Active member
Are you looking at short term or long term disability. Short term (if you have insurance for it at work) is generally very easy to get. Often they have a short waiting period about a week or so. Most policies will provide coverage for around 6 months.

If you are talking about social security, things do get a bit more difficult. I don't recall exactly, but when I was on, there was a 6 month period that had to pass before you could apply (had to be off work for 6 months), then, with your doctors blessing and some magical paperwork, you have to hope they approve you. I heard its often hard for cf'ers to get disability right away, but in my case I was approved immediately. It took a few months to get approved, and then they backpaid from when I applied. It can be a tough year though, as one has to live on very limited income, and for some period-no income at all.

They generally look at what your capabilities are, if you are able to work etc. Much comes down to your physician and how he or she feels. They will have a direct effect on the perception of your personal case. I had a super physician (who actually initiated all the paperwork for me--I was only 21, a bit dumb on the subject) who truly felt I couldn't work at the time. I was about 20% lung function at the time. I am now at about 35%, give or take, and my current doc says that is about the threashold for disability.
 
A

Aspiemom

Guest
My doctor recommended long term disability for me before I was even diagnosed with the CF. It was 2001, but I was having such frequent infections. I was denied at first, which I was expecting because I was told 75% are turned down first try. I went through more paperwork and depositions, etc. and was scheduled for a court hearing with my lawyer when we got the call. The judge was reviewing files for the following Monday and when he read mine he said "I don't know why she was denied." He overturned the ruling and approved the disability before I even had to go to court, Praise the Lord!

An atty with CF once said that if you use Tobi every 6 mos. you should qualify. I don't know if this is still the case. It's worth the try, tho, if you are unable to continue working. You will need lots of documentation. Letters from all doctors, documentation on all medicine including dates taken, dates of infections, hospital stays, dr visits...It's a lot of work, but worth it!
 
A

Aspiemom

Guest
My doctor recommended long term disability for me before I was even diagnosed with the CF. It was 2001, but I was having such frequent infections. I was denied at first, which I was expecting because I was told 75% are turned down first try. I went through more paperwork and depositions, etc. and was scheduled for a court hearing with my lawyer when we got the call. The judge was reviewing files for the following Monday and when he read mine he said "I don't know why she was denied." He overturned the ruling and approved the disability before I even had to go to court, Praise the Lord!

An atty with CF once said that if you use Tobi every 6 mos. you should qualify. I don't know if this is still the case. It's worth the try, tho, if you are unable to continue working. You will need lots of documentation. Letters from all doctors, documentation on all medicine including dates taken, dates of infections, hospital stays, dr visits...It's a lot of work, but worth it!
 
A

Aspiemom

Guest
My doctor recommended long term disability for me before I was even diagnosed with the CF. It was 2001, but I was having such frequent infections. I was denied at first, which I was expecting because I was told 75% are turned down first try. I went through more paperwork and depositions, etc. and was scheduled for a court hearing with my lawyer when we got the call. The judge was reviewing files for the following Monday and when he read mine he said "I don't know why she was denied." He overturned the ruling and approved the disability before I even had to go to court, Praise the Lord!

An atty with CF once said that if you use Tobi every 6 mos. you should qualify. I don't know if this is still the case. It's worth the try, tho, if you are unable to continue working. You will need lots of documentation. Letters from all doctors, documentation on all medicine including dates taken, dates of infections, hospital stays, dr visits...It's a lot of work, but worth it!
 
A

Aspiemom

Guest
My doctor recommended long term disability for me before I was even diagnosed with the CF. It was 2001, but I was having such frequent infections. I was denied at first, which I was expecting because I was told 75% are turned down first try. I went through more paperwork and depositions, etc. and was scheduled for a court hearing with my lawyer when we got the call. The judge was reviewing files for the following Monday and when he read mine he said "I don't know why she was denied." He overturned the ruling and approved the disability before I even had to go to court, Praise the Lord!

An atty with CF once said that if you use Tobi every 6 mos. you should qualify. I don't know if this is still the case. It's worth the try, tho, if you are unable to continue working. You will need lots of documentation. Letters from all doctors, documentation on all medicine including dates taken, dates of infections, hospital stays, dr visits...It's a lot of work, but worth it!
 
A

Aspiemom

Guest
My doctor recommended long term disability for me before I was even diagnosed with the CF. It was 2001, but I was having such frequent infections. I was denied at first, which I was expecting because I was told 75% are turned down first try. I went through more paperwork and depositions, etc. and was scheduled for a court hearing with my lawyer when we got the call. The judge was reviewing files for the following Monday and when he read mine he said "I don't know why she was denied." He overturned the ruling and approved the disability before I even had to go to court, Praise the Lord!

An atty with CF once said that if you use Tobi every 6 mos. you should qualify. I don't know if this is still the case. It's worth the try, tho, if you are unable to continue working. You will need lots of documentation. Letters from all doctors, documentation on all medicine including dates taken, dates of infections, hospital stays, dr visits...It's a lot of work, but worth it!
 

Allisa35

Member
If you are talking about short-term disability, I can't really help you there. If you are referring to Social Security Disability, I am currently on it.

I must say that the thought of even applying for it intimidated me because of all the negative things I had heard. And I think my case was a bit different in the fact that I was working part-time when I applied. I had been working full-time and just got to a point where I couldn't do it anymore. I quit working completely for about 2 1/2 months. I then started delivering papers 1 day a week (because my hubby wasn't making enough). I then found a job working 2-3 hours per day (and quit delivering papers). My family kept telling me to apply, but I didn't think I would qualify. I finally gave in and applied, this was after 3 years of being at my part-time job. There is a lot of paperwork to fill out. I also did have a letter from my dr. which I think helped.

I am very fortunate because my case was approved on the initial filing. I think it took about 2-3 months to get approval and then you have to wait 6 months from the actual date you are approved to get a check. I think some of it probably depends on the agent you get who handles your case (just my opinion).

I am still working at my part-time job. I think you can still be working, you just can't make more than a certain amount of money.

For me, I believe I qualified because my PFT score was within their quidelines. I can't think of all their specifications, but they go by your PFT scores, if you have had hospitalizations, and the frequency of your infections.

I don't know if Julie will see this, but she is a good person to ask. If not, you can go to www.ssa.gov to find more info.
 

Allisa35

Member
If you are talking about short-term disability, I can't really help you there. If you are referring to Social Security Disability, I am currently on it.

I must say that the thought of even applying for it intimidated me because of all the negative things I had heard. And I think my case was a bit different in the fact that I was working part-time when I applied. I had been working full-time and just got to a point where I couldn't do it anymore. I quit working completely for about 2 1/2 months. I then started delivering papers 1 day a week (because my hubby wasn't making enough). I then found a job working 2-3 hours per day (and quit delivering papers). My family kept telling me to apply, but I didn't think I would qualify. I finally gave in and applied, this was after 3 years of being at my part-time job. There is a lot of paperwork to fill out. I also did have a letter from my dr. which I think helped.

I am very fortunate because my case was approved on the initial filing. I think it took about 2-3 months to get approval and then you have to wait 6 months from the actual date you are approved to get a check. I think some of it probably depends on the agent you get who handles your case (just my opinion).

I am still working at my part-time job. I think you can still be working, you just can't make more than a certain amount of money.

For me, I believe I qualified because my PFT score was within their quidelines. I can't think of all their specifications, but they go by your PFT scores, if you have had hospitalizations, and the frequency of your infections.

I don't know if Julie will see this, but she is a good person to ask. If not, you can go to www.ssa.gov to find more info.
 

Allisa35

Member
If you are talking about short-term disability, I can't really help you there. If you are referring to Social Security Disability, I am currently on it.

I must say that the thought of even applying for it intimidated me because of all the negative things I had heard. And I think my case was a bit different in the fact that I was working part-time when I applied. I had been working full-time and just got to a point where I couldn't do it anymore. I quit working completely for about 2 1/2 months. I then started delivering papers 1 day a week (because my hubby wasn't making enough). I then found a job working 2-3 hours per day (and quit delivering papers). My family kept telling me to apply, but I didn't think I would qualify. I finally gave in and applied, this was after 3 years of being at my part-time job. There is a lot of paperwork to fill out. I also did have a letter from my dr. which I think helped.

I am very fortunate because my case was approved on the initial filing. I think it took about 2-3 months to get approval and then you have to wait 6 months from the actual date you are approved to get a check. I think some of it probably depends on the agent you get who handles your case (just my opinion).

I am still working at my part-time job. I think you can still be working, you just can't make more than a certain amount of money.

For me, I believe I qualified because my PFT score was within their quidelines. I can't think of all their specifications, but they go by your PFT scores, if you have had hospitalizations, and the frequency of your infections.

I don't know if Julie will see this, but she is a good person to ask. If not, you can go to www.ssa.gov to find more info.
 

Allisa35

Member
If you are talking about short-term disability, I can't really help you there. If you are referring to Social Security Disability, I am currently on it.

I must say that the thought of even applying for it intimidated me because of all the negative things I had heard. And I think my case was a bit different in the fact that I was working part-time when I applied. I had been working full-time and just got to a point where I couldn't do it anymore. I quit working completely for about 2 1/2 months. I then started delivering papers 1 day a week (because my hubby wasn't making enough). I then found a job working 2-3 hours per day (and quit delivering papers). My family kept telling me to apply, but I didn't think I would qualify. I finally gave in and applied, this was after 3 years of being at my part-time job. There is a lot of paperwork to fill out. I also did have a letter from my dr. which I think helped.

I am very fortunate because my case was approved on the initial filing. I think it took about 2-3 months to get approval and then you have to wait 6 months from the actual date you are approved to get a check. I think some of it probably depends on the agent you get who handles your case (just my opinion).

I am still working at my part-time job. I think you can still be working, you just can't make more than a certain amount of money.

For me, I believe I qualified because my PFT score was within their quidelines. I can't think of all their specifications, but they go by your PFT scores, if you have had hospitalizations, and the frequency of your infections.

I don't know if Julie will see this, but she is a good person to ask. If not, you can go to www.ssa.gov to find more info.
 

Allisa35

Member
If you are talking about short-term disability, I can't really help you there. If you are referring to Social Security Disability, I am currently on it.

I must say that the thought of even applying for it intimidated me because of all the negative things I had heard. And I think my case was a bit different in the fact that I was working part-time when I applied. I had been working full-time and just got to a point where I couldn't do it anymore. I quit working completely for about 2 1/2 months. I then started delivering papers 1 day a week (because my hubby wasn't making enough). I then found a job working 2-3 hours per day (and quit delivering papers). My family kept telling me to apply, but I didn't think I would qualify. I finally gave in and applied, this was after 3 years of being at my part-time job. There is a lot of paperwork to fill out. I also did have a letter from my dr. which I think helped.

I am very fortunate because my case was approved on the initial filing. I think it took about 2-3 months to get approval and then you have to wait 6 months from the actual date you are approved to get a check. I think some of it probably depends on the agent you get who handles your case (just my opinion).

I am still working at my part-time job. I think you can still be working, you just can't make more than a certain amount of money.

For me, I believe I qualified because my PFT score was within their quidelines. I can't think of all their specifications, but they go by your PFT scores, if you have had hospitalizations, and the frequency of your infections.

I don't know if Julie will see this, but she is a good person to ask. If not, you can go to www.ssa.gov to find more info.
 
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