Hi all! I'm new here, and am looking for answers.
I'm a 29 yo mother to 6 children (none with CF) no complications and was able to get pregnant without problems. All are healthy and had normal deliveries.
I've always had allergy problems as a child (hives), and sinus problems since middle school. I was on the cross country team and was active in high school with no problems with asthma. In 2005 I started to have breathing problems. I was diagnoised with asthma when I was 25, in 2005. Since 2005, I have been diagnoised with pneumonia about 3-6 times a year. That's not including other respitory infections. I have always been on the skinny side (chalked it up to genes, b/c my sisters and I are all on the small side). Can usually eat whatever and still stay well under 105 pounds.
I have no digestive issues (aside from the occational heart burn during the second/third trimester of pregnancy)
In May I called a pulmonologist because I was tired of being sick and no one knew what was wrong or would want to do anything to figure out why I would get so sick all the time. He did a battery of tests, blood work and we were able to rule out cancers and TB, Hepatitis, etc. I had a bronchosopy done in June and my results were 99% conclusive that it was COP/BOOP but he would need larger samples of my lungs to confirm. I have sinced moved (DH is in the Navy and we moved from VA to WA in early July). My new doctor doesn't think it's COP/BOOP at all. And now wants to test for CF and a couple of allergy things. I've done a few other blood tests too, all come back normal. She refuses to do another lung biopsy saying it's unnecessary.
Anyway, I was wondering if anyone has gone through something similar. I've had about 5 or 6 CT scans in the past 2 years. I don't even know how many X-rays in the past 4. Dh wants me to get a third opinion from a larger practice (We live near Seattle). My new doctor still won't tell me what she thinks I have. It changes every time I see her. She thought it might be SARS, or someting else. Then she put on my referal for my CT scan last week, that I was being checked for intestinal flu pneumonia (what is that?). She has only told me that she didn't think I had COP/BOOP.
I'm currently taking (with very little relief), Singlular, Zyrtec D, Asthmenax, Flonase, nebulizer (albuteral), OTC Sudafed for sinus/allergies, prednisone, some antibiootic to prevent PCP,and my inhaler. other meds- BCP, OTC multi vitamins, calcuium pills (to conteract the prednisone bone loss).
Before 2005, I could breath pretty well, without problems and I didn't need all these meds. Since being diagnoised, my health has taken a downward spiral! It's almost as if all this crap is making me sicker. I just want to be healthy again.
I do try to work out every day with pilates. Any one with a similar story? Or other information? Would love to hear your opionions. Thanks!
I'm a 29 yo mother to 6 children (none with CF) no complications and was able to get pregnant without problems. All are healthy and had normal deliveries.
I've always had allergy problems as a child (hives), and sinus problems since middle school. I was on the cross country team and was active in high school with no problems with asthma. In 2005 I started to have breathing problems. I was diagnoised with asthma when I was 25, in 2005. Since 2005, I have been diagnoised with pneumonia about 3-6 times a year. That's not including other respitory infections. I have always been on the skinny side (chalked it up to genes, b/c my sisters and I are all on the small side). Can usually eat whatever and still stay well under 105 pounds.
I have no digestive issues (aside from the occational heart burn during the second/third trimester of pregnancy)
In May I called a pulmonologist because I was tired of being sick and no one knew what was wrong or would want to do anything to figure out why I would get so sick all the time. He did a battery of tests, blood work and we were able to rule out cancers and TB, Hepatitis, etc. I had a bronchosopy done in June and my results were 99% conclusive that it was COP/BOOP but he would need larger samples of my lungs to confirm. I have sinced moved (DH is in the Navy and we moved from VA to WA in early July). My new doctor doesn't think it's COP/BOOP at all. And now wants to test for CF and a couple of allergy things. I've done a few other blood tests too, all come back normal. She refuses to do another lung biopsy saying it's unnecessary.
Anyway, I was wondering if anyone has gone through something similar. I've had about 5 or 6 CT scans in the past 2 years. I don't even know how many X-rays in the past 4. Dh wants me to get a third opinion from a larger practice (We live near Seattle). My new doctor still won't tell me what she thinks I have. It changes every time I see her. She thought it might be SARS, or someting else. Then she put on my referal for my CT scan last week, that I was being checked for intestinal flu pneumonia (what is that?). She has only told me that she didn't think I had COP/BOOP.
I'm currently taking (with very little relief), Singlular, Zyrtec D, Asthmenax, Flonase, nebulizer (albuteral), OTC Sudafed for sinus/allergies, prednisone, some antibiootic to prevent PCP,and my inhaler. other meds- BCP, OTC multi vitamins, calcuium pills (to conteract the prednisone bone loss).
Before 2005, I could breath pretty well, without problems and I didn't need all these meds. Since being diagnoised, my health has taken a downward spiral! It's almost as if all this crap is making me sicker. I just want to be healthy again.
I do try to work out every day with pilates. Any one with a similar story? Or other information? Would love to hear your opionions. Thanks!
