IS IT CF?

H

Happy1

Guest
Well we seen the allergist/immunologist today. Finally had a good visit. She recommended he be tested for CF and ordered a sweat test scheduled for Thursday.
I was so glad to be getting it that I did not fight for the full genetic testing yet. We were unable to get the allergy testing done because crazy me had given him an anhistamine yesterday due to the cold symptoms. I was so caught up in the digestive part I was not thinking about the anhistamine side of it.
Oh well we still got some answers because she cultured his nasal passages and found a severe sinus infection. She put him on a 21 day round of antibiotics.
I was also able to get in with the Gastro doctor sooner. We go on July 22nd. Thanks for all your advice I'm feeling better about getting to the bottom of this.
I'll keep you updated. Tiffani
 
H

Happy1

Guest
Well we seen the allergist/immunologist today. Finally had a good visit. She recommended he be tested for CF and ordered a sweat test scheduled for Thursday.
I was so glad to be getting it that I did not fight for the full genetic testing yet. We were unable to get the allergy testing done because crazy me had given him an anhistamine yesterday due to the cold symptoms. I was so caught up in the digestive part I was not thinking about the anhistamine side of it.
Oh well we still got some answers because she cultured his nasal passages and found a severe sinus infection. She put him on a 21 day round of antibiotics.
I was also able to get in with the Gastro doctor sooner. We go on July 22nd. Thanks for all your advice I'm feeling better about getting to the bottom of this.
I'll keep you updated. Tiffani
 
H

Happy1

Guest
Well we seen the allergist/immunologist today. Finally had a good visit. She recommended he be tested for CF and ordered a sweat test scheduled for Thursday.
I was so glad to be getting it that I did not fight for the full genetic testing yet. We were unable to get the allergy testing done because crazy me had given him an anhistamine yesterday due to the cold symptoms. I was so caught up in the digestive part I was not thinking about the anhistamine side of it.
Oh well we still got some answers because she cultured his nasal passages and found a severe sinus infection. She put him on a 21 day round of antibiotics.
I was also able to get in with the Gastro doctor sooner. We go on July 22nd. Thanks for all your advice I'm feeling better about getting to the bottom of this.
I'll keep you updated. Tiffani
 
H

Happy1

Guest
Well we seen the allergist/immunologist today. Finally had a good visit. She recommended he be tested for CF and ordered a sweat test scheduled for Thursday.
I was so glad to be getting it that I did not fight for the full genetic testing yet. We were unable to get the allergy testing done because crazy me had given him an anhistamine yesterday due to the cold symptoms. I was so caught up in the digestive part I was not thinking about the anhistamine side of it.
Oh well we still got some answers because she cultured his nasal passages and found a severe sinus infection. She put him on a 21 day round of antibiotics.
I was also able to get in with the Gastro doctor sooner. We go on July 22nd. Thanks for all your advice I'm feeling better about getting to the bottom of this.
I'll keep you updated. Tiffani
 
H

Happy1

Guest
Well we seen the allergist/immunologist today. Finally had a good visit. She recommended he be tested for CF and ordered a sweat test scheduled for Thursday.
<br />I was so glad to be getting it that I did not fight for the full genetic testing yet. We were unable to get the allergy testing done because crazy me had given him an anhistamine yesterday due to the cold symptoms. I was so caught up in the digestive part I was not thinking about the anhistamine side of it.
<br />Oh well we still got some answers because she cultured his nasal passages and found a severe sinus infection. She put him on a 21 day round of antibiotics.
<br />I was also able to get in with the Gastro doctor sooner. We go on July 22nd. Thanks for all your advice I'm feeling better about getting to the bottom of this.
<br />I'll keep you updated. Tiffani
 
S

Stacia

Guest
I am just like a lot of these people on here. My daughter was born with a obstruction and was given sweat tests. Her tests always came back in the gray area so nothing was ever done about it. They did the genetic testing but only found one gene change. They pretty much just said no she doesn't have it. After nine years we were dealing with the bad stomach problems. Every time she would eat she would be in the bathroom ten minutes later with horable cramps and loose stools. This went on for a couple of years and we went to see a specialist and we started the whole process over again. Three sweat tests all gray area except the last one that came back posative. The next move was ambre genetic testing that is when they found the other gene change. But they told us in her case she is considered A Typical which means a lesser severe case. So some doctors believe CF is CF but others believe there are two different kinds. I am living proof that there are two different kinds. Stacia has never had any lung problems all digestive and I would like to think it will always be this way. But push for the Ambre Genetic testing they test every mutation that they know of. And like someone else on here said there are over 1500 different mutations. But once Stacia was put on enzymes she has been much better. Not perfect but much better. Within four months she put on almost fifteen pounds.
 
S

Stacia

Guest
I am just like a lot of these people on here. My daughter was born with a obstruction and was given sweat tests. Her tests always came back in the gray area so nothing was ever done about it. They did the genetic testing but only found one gene change. They pretty much just said no she doesn't have it. After nine years we were dealing with the bad stomach problems. Every time she would eat she would be in the bathroom ten minutes later with horable cramps and loose stools. This went on for a couple of years and we went to see a specialist and we started the whole process over again. Three sweat tests all gray area except the last one that came back posative. The next move was ambre genetic testing that is when they found the other gene change. But they told us in her case she is considered A Typical which means a lesser severe case. So some doctors believe CF is CF but others believe there are two different kinds. I am living proof that there are two different kinds. Stacia has never had any lung problems all digestive and I would like to think it will always be this way. But push for the Ambre Genetic testing they test every mutation that they know of. And like someone else on here said there are over 1500 different mutations. But once Stacia was put on enzymes she has been much better. Not perfect but much better. Within four months she put on almost fifteen pounds.
 
S

Stacia

Guest
I am just like a lot of these people on here. My daughter was born with a obstruction and was given sweat tests. Her tests always came back in the gray area so nothing was ever done about it. They did the genetic testing but only found one gene change. They pretty much just said no she doesn't have it. After nine years we were dealing with the bad stomach problems. Every time she would eat she would be in the bathroom ten minutes later with horable cramps and loose stools. This went on for a couple of years and we went to see a specialist and we started the whole process over again. Three sweat tests all gray area except the last one that came back posative. The next move was ambre genetic testing that is when they found the other gene change. But they told us in her case she is considered A Typical which means a lesser severe case. So some doctors believe CF is CF but others believe there are two different kinds. I am living proof that there are two different kinds. Stacia has never had any lung problems all digestive and I would like to think it will always be this way. But push for the Ambre Genetic testing they test every mutation that they know of. And like someone else on here said there are over 1500 different mutations. But once Stacia was put on enzymes she has been much better. Not perfect but much better. Within four months she put on almost fifteen pounds.
 
S

Stacia

Guest
I am just like a lot of these people on here. My daughter was born with a obstruction and was given sweat tests. Her tests always came back in the gray area so nothing was ever done about it. They did the genetic testing but only found one gene change. They pretty much just said no she doesn't have it. After nine years we were dealing with the bad stomach problems. Every time she would eat she would be in the bathroom ten minutes later with horable cramps and loose stools. This went on for a couple of years and we went to see a specialist and we started the whole process over again. Three sweat tests all gray area except the last one that came back posative. The next move was ambre genetic testing that is when they found the other gene change. But they told us in her case she is considered A Typical which means a lesser severe case. So some doctors believe CF is CF but others believe there are two different kinds. I am living proof that there are two different kinds. Stacia has never had any lung problems all digestive and I would like to think it will always be this way. But push for the Ambre Genetic testing they test every mutation that they know of. And like someone else on here said there are over 1500 different mutations. But once Stacia was put on enzymes she has been much better. Not perfect but much better. Within four months she put on almost fifteen pounds.
 
S

Stacia

Guest
I am just like a lot of these people on here. My daughter was born with a obstruction and was given sweat tests. Her tests always came back in the gray area so nothing was ever done about it. They did the genetic testing but only found one gene change. They pretty much just said no she doesn't have it. After nine years we were dealing with the bad stomach problems. Every time she would eat she would be in the bathroom ten minutes later with horable cramps and loose stools. This went on for a couple of years and we went to see a specialist and we started the whole process over again. Three sweat tests all gray area except the last one that came back posative. The next move was ambre genetic testing that is when they found the other gene change. But they told us in her case she is considered A Typical which means a lesser severe case. So some doctors believe CF is CF but others believe there are two different kinds. I am living proof that there are two different kinds. Stacia has never had any lung problems all digestive and I would like to think it will always be this way. But push for the Ambre Genetic testing they test every mutation that they know of. And like someone else on here said there are over 1500 different mutations. But once Stacia was put on enzymes she has been much better. Not perfect but much better. Within four months she put on almost fifteen pounds.
 
H

Happy1

Guest
The results are in sweat test numbers were 22. The lab tech said we got a little when he took the thing off today. What does a little mean??? Does everyone think this is probably accurate.
We see the gastro doctor July 22nd. Should i still push for genetic testing??? I am still very nervous even though I should be happy.
He has a severe sinus infection right now and is on Cleocin for 21 days.
Thanks for your time, Tiffani
 
H

Happy1

Guest
The results are in sweat test numbers were 22. The lab tech said we got a little when he took the thing off today. What does a little mean??? Does everyone think this is probably accurate.
We see the gastro doctor July 22nd. Should i still push for genetic testing??? I am still very nervous even though I should be happy.
He has a severe sinus infection right now and is on Cleocin for 21 days.
Thanks for your time, Tiffani
 
H

Happy1

Guest
The results are in sweat test numbers were 22. The lab tech said we got a little when he took the thing off today. What does a little mean??? Does everyone think this is probably accurate.
We see the gastro doctor July 22nd. Should i still push for genetic testing??? I am still very nervous even though I should be happy.
He has a severe sinus infection right now and is on Cleocin for 21 days.
Thanks for your time, Tiffani
 
H

Happy1

Guest
The results are in sweat test numbers were 22. The lab tech said we got a little when he took the thing off today. What does a little mean??? Does everyone think this is probably accurate.
We see the gastro doctor July 22nd. Should i still push for genetic testing??? I am still very nervous even though I should be happy.
He has a severe sinus infection right now and is on Cleocin for 21 days.
Thanks for your time, Tiffani
 
H

Happy1

Guest
The results are in sweat test numbers were 22. The lab tech said we got a little when he took the thing off today. What does a little mean??? Does everyone think this is probably accurate.
<br />We see the gastro doctor July 22nd. Should i still push for genetic testing??? I am still very nervous even though I should be happy.
<br />He has a severe sinus infection right now and is on Cleocin for 21 days.
<br />Thanks for your time, Tiffani
 
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