Is it severe???

[Ratatosk]

DS' were stained almost as soon as they erupted. Today they're white thanks to 4 cleanings a year at the dentist's office. And he's no longer on liquid vitamin drips.

 

[Ratatosk]

DS' were stained almost as soon as they erupted. Today they're white thanks to 4 cleanings a year at the dentist's office. And he's no longer on liquid vitamin drips.

 

[Ratatosk]

DS' were stained almost as soon as they erupted. Today they're white thanks to 4 cleanings a year at the dentist's office. And he's no longer on liquid vitamin drips.

 

[Ratatosk]

DS' were stained almost as soon as they erupted. Today they're white thanks to 4 cleanings a year at the dentist's office. And he's no longer on liquid vitamin drips.

 

[Ratatosk]

DS' were stained almost as soon as they erupted. Today they're white thanks to 4 cleanings a year at the dentist's office. And he's no longer on liquid vitamin drips.

 

[mariahsmommy]

I think all kids are different. One day they could be doing great and then the next they aren't. Life seems to be that way though. We do 2 puffs of albuterol and then her 36 minutes of Chest Physical Therapy twice a day. We are also about to enter into the ISIS trial which if you don't know already is where they are testing both hypertonic and isotonic saline. Your child is randomized to receive one or the other. There was a tudy done in Australia and it revealed that surfer's have good lung function and less time in the hospital. There are people using hypertonic saline right now if they have symptoms, but I was told that ins. doesn't like to pay for it. This study is trying to see if it would help in delaying lung deteoration.
Is your daughter culturing anything?
What are peps?
Isn't it also possible to have asthma and cf? (My brother-in-law has asthma and he has a persistent cough.)

 

[mariahsmommy]

I think all kids are different. One day they could be doing great and then the next they aren't. Life seems to be that way though. We do 2 puffs of albuterol and then her 36 minutes of Chest Physical Therapy twice a day. We are also about to enter into the ISIS trial which if you don't know already is where they are testing both hypertonic and isotonic saline. Your child is randomized to receive one or the other. There was a tudy done in Australia and it revealed that surfer's have good lung function and less time in the hospital. There are people using hypertonic saline right now if they have symptoms, but I was told that ins. doesn't like to pay for it. This study is trying to see if it would help in delaying lung deteoration.
Is your daughter culturing anything?
What are peps?
Isn't it also possible to have asthma and cf? (My brother-in-law has asthma and he has a persistent cough.)

 

[mariahsmommy]

I think all kids are different. One day they could be doing great and then the next they aren't. Life seems to be that way though. We do 2 puffs of albuterol and then her 36 minutes of Chest Physical Therapy twice a day. We are also about to enter into the ISIS trial which if you don't know already is where they are testing both hypertonic and isotonic saline. Your child is randomized to receive one or the other. There was a tudy done in Australia and it revealed that surfer's have good lung function and less time in the hospital. There are people using hypertonic saline right now if they have symptoms, but I was told that ins. doesn't like to pay for it. This study is trying to see if it would help in delaying lung deteoration.
Is your daughter culturing anything?
What are peps?
Isn't it also possible to have asthma and cf? (My brother-in-law has asthma and he has a persistent cough.)

 

[mariahsmommy]

I think all kids are different. One day they could be doing great and then the next they aren't. Life seems to be that way though. We do 2 puffs of albuterol and then her 36 minutes of Chest Physical Therapy twice a day. We are also about to enter into the ISIS trial which if you don't know already is where they are testing both hypertonic and isotonic saline. Your child is randomized to receive one or the other. There was a tudy done in Australia and it revealed that surfer's have good lung function and less time in the hospital. There are people using hypertonic saline right now if they have symptoms, but I was told that ins. doesn't like to pay for it. This study is trying to see if it would help in delaying lung deteoration.
Is your daughter culturing anything?
What are peps?
Isn't it also possible to have asthma and cf? (My brother-in-law has asthma and he has a persistent cough.)

 

[mariahsmommy]

I think all kids are different. One day they could be doing great and then the next they aren't. Life seems to be that way though. We do 2 puffs of albuterol and then her 36 minutes of Chest Physical Therapy twice a day. We are also about to enter into the ISIS trial which if you don't know already is where they are testing both hypertonic and isotonic saline. Your child is randomized to receive one or the other. There was a tudy done in Australia and it revealed that surfer's have good lung function and less time in the hospital. There are people using hypertonic saline right now if they have symptoms, but I was told that ins. doesn't like to pay for it. This study is trying to see if it would help in delaying lung deteoration.
<br />Is your daughter culturing anything?
<br />What are peps?
<br />Isn't it also possible to have asthma and cf? (My brother-in-law has asthma and he has a persistent cough.)

 

[babyluke]

I just wanted to maybe encourage you a little and say that Luke's first year was really horrible. He was diagnosed at 3 months and hospitalized three times that first year for respiratory problems. The congestion never seemed to let up. He had to have a g tube and the nissan procedure done for severe reflux when he was 8 months old. But we have not been in the hospital since. It has been over 19 months since he was in patient. He has never cultured for any bugs and his weight is finally on a good track. Now, I am not saying that his CF is or is not severe because I think there are too many factors that can influence that and it can change over time, but I just wanted to tell you that if I had judged by Luke's first year, I would have assumed we were going to be in the hospital every few months and that he was going to be pretty sick. The older and bigger he has gotten, the easier he has been able to clear the mucus and stay pretty healthy. I would ask your team, though, about nebs. Luke does neb. treatments and his vest every day, twice a day.

 

[babyluke]

I just wanted to maybe encourage you a little and say that Luke's first year was really horrible. He was diagnosed at 3 months and hospitalized three times that first year for respiratory problems. The congestion never seemed to let up. He had to have a g tube and the nissan procedure done for severe reflux when he was 8 months old. But we have not been in the hospital since. It has been over 19 months since he was in patient. He has never cultured for any bugs and his weight is finally on a good track. Now, I am not saying that his CF is or is not severe because I think there are too many factors that can influence that and it can change over time, but I just wanted to tell you that if I had judged by Luke's first year, I would have assumed we were going to be in the hospital every few months and that he was going to be pretty sick. The older and bigger he has gotten, the easier he has been able to clear the mucus and stay pretty healthy. I would ask your team, though, about nebs. Luke does neb. treatments and his vest every day, twice a day.

 

[babyluke]

I just wanted to maybe encourage you a little and say that Luke's first year was really horrible. He was diagnosed at 3 months and hospitalized three times that first year for respiratory problems. The congestion never seemed to let up. He had to have a g tube and the nissan procedure done for severe reflux when he was 8 months old. But we have not been in the hospital since. It has been over 19 months since he was in patient. He has never cultured for any bugs and his weight is finally on a good track. Now, I am not saying that his CF is or is not severe because I think there are too many factors that can influence that and it can change over time, but I just wanted to tell you that if I had judged by Luke's first year, I would have assumed we were going to be in the hospital every few months and that he was going to be pretty sick. The older and bigger he has gotten, the easier he has been able to clear the mucus and stay pretty healthy. I would ask your team, though, about nebs. Luke does neb. treatments and his vest every day, twice a day.

 

[babyluke]

I just wanted to maybe encourage you a little and say that Luke's first year was really horrible. He was diagnosed at 3 months and hospitalized three times that first year for respiratory problems. The congestion never seemed to let up. He had to have a g tube and the nissan procedure done for severe reflux when he was 8 months old. But we have not been in the hospital since. It has been over 19 months since he was in patient. He has never cultured for any bugs and his weight is finally on a good track. Now, I am not saying that his CF is or is not severe because I think there are too many factors that can influence that and it can change over time, but I just wanted to tell you that if I had judged by Luke's first year, I would have assumed we were going to be in the hospital every few months and that he was going to be pretty sick. The older and bigger he has gotten, the easier he has been able to clear the mucus and stay pretty healthy. I would ask your team, though, about nebs. Luke does neb. treatments and his vest every day, twice a day.

 

[babyluke]

I just wanted to maybe encourage you a little and say that Luke's first year was really horrible. He was diagnosed at 3 months and hospitalized three times that first year for respiratory problems. The congestion never seemed to let up. He had to have a g tube and the nissan procedure done for severe reflux when he was 8 months old. But we have not been in the hospital since. It has been over 19 months since he was in patient. He has never cultured for any bugs and his weight is finally on a good track. Now, I am not saying that his CF is or is not severe because I think there are too many factors that can influence that and it can change over time, but I just wanted to tell you that if I had judged by Luke's first year, I would have assumed we were going to be in the hospital every few months and that he was going to be pretty sick. The older and bigger he has gotten, the easier he has been able to clear the mucus and stay pretty healthy. I would ask your team, though, about nebs. Luke does neb. treatments and his vest every day, twice a day.

 

[Kimber1]

Thanks again everyone, am feeling a little better now just had tough week. Just for the record pep is a type of physio that forces air backwards to help open up all her airways. I live in Australia so I think the terminology for everything is slightly differnt. And as far as Charlottes cough goes the doctors are exploring different ways to reduce it because at this stage they arnt really sure why she doesnt seem to have infection present and have done a bronch to confirm just hope it goes by itself soon

Thanks again

 

[Kimber1]

Thanks again everyone, am feeling a little better now just had tough week. Just for the record pep is a type of physio that forces air backwards to help open up all her airways. I live in Australia so I think the terminology for everything is slightly differnt. And as far as Charlottes cough goes the doctors are exploring different ways to reduce it because at this stage they arnt really sure why she doesnt seem to have infection present and have done a bronch to confirm just hope it goes by itself soon

Thanks again

 

[Kimber1]

Thanks again everyone, am feeling a little better now just had tough week. Just for the record pep is a type of physio that forces air backwards to help open up all her airways. I live in Australia so I think the terminology for everything is slightly differnt. And as far as Charlottes cough goes the doctors are exploring different ways to reduce it because at this stage they arnt really sure why she doesnt seem to have infection present and have done a bronch to confirm just hope it goes by itself soon

Thanks again

 

[Kimber1]

Thanks again everyone, am feeling a little better now just had tough week. Just for the record pep is a type of physio that forces air backwards to help open up all her airways. I live in Australia so I think the terminology for everything is slightly differnt. And as far as Charlottes cough goes the doctors are exploring different ways to reduce it because at this stage they arnt really sure why she doesnt seem to have infection present and have done a bronch to confirm just hope it goes by itself soon

Thanks again

 

[Kimber1]

Thanks again everyone, am feeling a little better now just had tough week. Just for the record pep is a type of physio that forces air backwards to help open up all her airways. I live in Australia so I think the terminology for everything is slightly differnt. And as far as Charlottes cough goes the doctors are exploring different ways to reduce it because at this stage they arnt really sure why she doesnt seem to have infection present and have done a bronch to confirm just hope it goes by itself soon
<br />
<br />Thanks again