Hi there and thank you for your reply.
Haylie finally had the sweat test done last friday, on the NHS, at a cancellation appointment at the last minute.
However we still havent had the results, as of today, and now they say it may be monday, but depends on whether they have the time!!!!!!
Apparently they dont do them until they have several and then do them all at once.
I am appalled at this. I have been waiting for 3 weeks since she first was referred for the test. It is bad enough waiting isnt it, without it being for this length of time. I never did find a private clinic for the test.
On top of that my father has been in for more cancer surgery, so all in all a bit of a stressful time here. Dads come out of surgery ok, but he is 81 and has bladder, prostate and bone cancer, so hes really going through it.
I am checking the site you gave me, but I have already called the CF society and they couldnt really help. I have also called a professor at the Royal Free Hospital, who is heading a research project re IVF ICSI babies, and as Haylie was conceived by IVF ICSI and is on the research project I have asked for his advice. Unfortunately, to see her, she has to be referred to him by her GP, and that still hasnt been done either, so all in all I feel the local NHS service has and is letting us down here.
Even if her result is negative, I feel I have to persue this. The nurse told me today that there just isnt enough scope to do all tests in time, a severe lack of resources.....but I think 10 days is plenty long enough, if indeed it does get done by then.
Many thanks for your replies again
From Yvie and Haylie