Is this answer?

junebugsmommy · Sep 28, 2008

Where do I begin... My son Kaden is 15 months old and has been fighting to stay healthy for most of his life. At four months old he got bronchiolitis for the first time. He was a full term "healthy" baby at birth and suddenly that came to crash into a brick wall. He was continually sick for months to come... ear infections, respiratory infections, "colds" and more. In March we were referred to an ENT and he didn't think twice and in a sense demanded tubes immediately. All the while Kaden seems to not respond to any of the common antibiotics, he repeatedly is sick, with fleeting healthy periods. I got a severe "stomach bug" and the pediatrician decided he had a milk allergy and soy became a staple on our house... then in June he suddenly spiked a high fever that wouldn't go away... two weeks later and referrals we found a huge lung abscess that covered a third of his lung. We were hospitalized and a drain was placed in his back... a week later we went home with a PICC line and so many meds I didn't know what to do. The infectious disease speacialist determined that we needed to run an immune study when he became "healthy".

That day came and we discovered slightly low IgA immunity, the study was repeated and the low numbers persisted... she is convinced is from his age but then I asked if we had ruled our CF... shocked that she hadn't ordered the test already she requested it that day... and wow a fever popped up before we could do it...

so we are currently fighting diarreha ( a constant in our lives) a fever, coughing galore, and a little boy that never lets a thing bother him.

I know I am scattered.. we curently see four doctors and feel like dogs chasing our tails... I want an answer whatever that answer may be but an answer. Something that we can fight...

I am sure I missed something so please ask questions, give us your thoughts... could this be what my son has?

junebugsmommy · Sep 28, 2008

Where do I begin... My son Kaden is 15 months old and has been fighting to stay healthy for most of his life. At four months old he got bronchiolitis for the first time. He was a full term "healthy" baby at birth and suddenly that came to crash into a brick wall. He was continually sick for months to come... ear infections, respiratory infections, "colds" and more. In March we were referred to an ENT and he didn't think twice and in a sense demanded tubes immediately. All the while Kaden seems to not respond to any of the common antibiotics, he repeatedly is sick, with fleeting healthy periods. I got a severe "stomach bug" and the pediatrician decided he had a milk allergy and soy became a staple on our house... then in June he suddenly spiked a high fever that wouldn't go away... two weeks later and referrals we found a huge lung abscess that covered a third of his lung. We were hospitalized and a drain was placed in his back... a week later we went home with a PICC line and so many meds I didn't know what to do. The infectious disease speacialist determined that we needed to run an immune study when he became "healthy".

That day came and we discovered slightly low IgA immunity, the study was repeated and the low numbers persisted... she is convinced is from his age but then I asked if we had ruled our CF... shocked that she hadn't ordered the test already she requested it that day... and wow a fever popped up before we could do it...

so we are currently fighting diarreha ( a constant in our lives) a fever, coughing galore, and a little boy that never lets a thing bother him.

I know I am scattered.. we curently see four doctors and feel like dogs chasing our tails... I want an answer whatever that answer may be but an answer. Something that we can fight...

I am sure I missed something so please ask questions, give us your thoughts... could this be what my son has?

junebugsmommy · Sep 28, 2008

Where do I begin... My son Kaden is 15 months old and has been fighting to stay healthy for most of his life. At four months old he got bronchiolitis for the first time. He was a full term "healthy" baby at birth and suddenly that came to crash into a brick wall. He was continually sick for months to come... ear infections, respiratory infections, "colds" and more. In March we were referred to an ENT and he didn't think twice and in a sense demanded tubes immediately. All the while Kaden seems to not respond to any of the common antibiotics, he repeatedly is sick, with fleeting healthy periods. I got a severe "stomach bug" and the pediatrician decided he had a milk allergy and soy became a staple on our house... then in June he suddenly spiked a high fever that wouldn't go away... two weeks later and referrals we found a huge lung abscess that covered a third of his lung. We were hospitalized and a drain was placed in his back... a week later we went home with a PICC line and so many meds I didn't know what to do. The infectious disease speacialist determined that we needed to run an immune study when he became "healthy".

That day came and we discovered slightly low IgA immunity, the study was repeated and the low numbers persisted... she is convinced is from his age but then I asked if we had ruled our CF... shocked that she hadn't ordered the test already she requested it that day... and wow a fever popped up before we could do it...

so we are currently fighting diarreha ( a constant in our lives) a fever, coughing galore, and a little boy that never lets a thing bother him.

I know I am scattered.. we curently see four doctors and feel like dogs chasing our tails... I want an answer whatever that answer may be but an answer. Something that we can fight...

I am sure I missed something so please ask questions, give us your thoughts... could this be what my son has?

junebugsmommy · Sep 28, 2008

Where do I begin... My son Kaden is 15 months old and has been fighting to stay healthy for most of his life. At four months old he got bronchiolitis for the first time. He was a full term "healthy" baby at birth and suddenly that came to crash into a brick wall. He was continually sick for months to come... ear infections, respiratory infections, "colds" and more. In March we were referred to an ENT and he didn't think twice and in a sense demanded tubes immediately. All the while Kaden seems to not respond to any of the common antibiotics, he repeatedly is sick, with fleeting healthy periods. I got a severe "stomach bug" and the pediatrician decided he had a milk allergy and soy became a staple on our house... then in June he suddenly spiked a high fever that wouldn't go away... two weeks later and referrals we found a huge lung abscess that covered a third of his lung. We were hospitalized and a drain was placed in his back... a week later we went home with a PICC line and so many meds I didn't know what to do. The infectious disease speacialist determined that we needed to run an immune study when he became "healthy".

That day came and we discovered slightly low IgA immunity, the study was repeated and the low numbers persisted... she is convinced is from his age but then I asked if we had ruled our CF... shocked that she hadn't ordered the test already she requested it that day... and wow a fever popped up before we could do it...

so we are currently fighting diarreha ( a constant in our lives) a fever, coughing galore, and a little boy that never lets a thing bother him.

I know I am scattered.. we curently see four doctors and feel like dogs chasing our tails... I want an answer whatever that answer may be but an answer. Something that we can fight...

I am sure I missed something so please ask questions, give us your thoughts... could this be what my son has?

junebugsmommy · Sep 28, 2008

Where do I begin... My son Kaden is 15 months old and has been fighting to stay healthy for most of his life. At four months old he got bronchiolitis for the first time. He was a full term "healthy" baby at birth and suddenly that came to crash into a brick wall. He was continually sick for months to come... ear infections, respiratory infections, "colds" and more. In March we were referred to an ENT and he didn't think twice and in a sense demanded tubes immediately. All the while Kaden seems to not respond to any of the common antibiotics, he repeatedly is sick, with fleeting healthy periods. I got a severe "stomach bug" and the pediatrician decided he had a milk allergy and soy became a staple on our house... then in June he suddenly spiked a high fever that wouldn't go away... two weeks later and referrals we found a huge lung abscess that covered a third of his lung. We were hospitalized and a drain was placed in his back... a week later we went home with a PICC line and so many meds I didn't know what to do. The infectious disease speacialist determined that we needed to run an immune study when he became "healthy".
 
 That day came and we discovered slightly low IgA immunity, the study was repeated and the low numbers persisted... she is convinced is from his age but then I asked if we had ruled our CF... shocked that she hadn't ordered the test already she requested it that day... and wow a fever popped up before we could do it...
 
 so we are currently fighting diarreha ( a constant in our lives) a fever, coughing galore, and a little boy that never lets a thing bother him.
 
 I know I am scattered.. we curently see four doctors and feel like dogs chasing our tails... I want an answer whatever that answer may be but an answer. Something that we can fight...
 
 I am sure I missed something so please ask questions, give us your thoughts... could this be what my son has?

junebugsmommy · Sep 28, 2008

Wow I am reading over my post and I am overwhelmed... this is only the tip of the iceberg of what my little man has been through. I realize that I have been far more affected my this madness than I can imagine... I apoligize for the typos, misspellings, and choatic nature of my post. I haven't had a full night of sleep since he was born, juggling the doctors appointments, tests, and work has been really tough on me and furthermore my family doesn't really get it. I am happy to have found this site.

Junebugs Mommy (robin)

junebugsmommy · Sep 28, 2008

Wow I am reading over my post and I am overwhelmed... this is only the tip of the iceberg of what my little man has been through. I realize that I have been far more affected my this madness than I can imagine... I apoligize for the typos, misspellings, and choatic nature of my post. I haven't had a full night of sleep since he was born, juggling the doctors appointments, tests, and work has been really tough on me and furthermore my family doesn't really get it. I am happy to have found this site.

Junebugs Mommy (robin)

junebugsmommy · Sep 28, 2008

Wow I am reading over my post and I am overwhelmed... this is only the tip of the iceberg of what my little man has been through. I realize that I have been far more affected my this madness than I can imagine... I apoligize for the typos, misspellings, and choatic nature of my post. I haven't had a full night of sleep since he was born, juggling the doctors appointments, tests, and work has been really tough on me and furthermore my family doesn't really get it. I am happy to have found this site.

Junebugs Mommy (robin)

junebugsmommy · Sep 28, 2008

Wow I am reading over my post and I am overwhelmed... this is only the tip of the iceberg of what my little man has been through. I realize that I have been far more affected my this madness than I can imagine... I apoligize for the typos, misspellings, and choatic nature of my post. I haven't had a full night of sleep since he was born, juggling the doctors appointments, tests, and work has been really tough on me and furthermore my family doesn't really get it. I am happy to have found this site.

Junebugs Mommy (robin)

junebugsmommy · Sep 28, 2008

Wow I am reading over my post and I am overwhelmed... this is only the tip of the iceberg of what my little man has been through. I realize that I have been far more affected my this madness than I can imagine... I apoligize for the typos, misspellings, and choatic nature of my post. I haven't had a full night of sleep since he was born, juggling the doctors appointments, tests, and work has been really tough on me and furthermore my family doesn't really get it. I am happy to have found this site.
 
 Junebugs Mommy (robin)

JORDYSMOM · Sep 28, 2008

Hi Robin. Welcome. It's like you are telling my son's story. We did tubes, removed aednoids, tubes again. We went to soy, and many other formulas. He would get sick, be on an antibiotic, get a little better, but be running a fever again before he finished the antibiotic. blah, blah, blah. We finally got our answer when Jordan was 15!

There are a lot of other things that could be making your little guy sick, but I think you have to test for CF. I completely understand how you feel. I sincerely hope you find the answers you need to help your son. Nobody wants to be diagnosed with CF, but when you finally have a name for it, and you have a treatment plan for it, it really does help.

I'm not sure that anyone can understand how a mom feels when she can't make it all better for her baby. My family doesn't really get it either. It's like they just try to ignore it and hope it goes away.

I'm glad you found us. Please keep us posted.

Stacey

JORDYSMOM · Sep 28, 2008

Hi Robin. Welcome. It's like you are telling my son's story. We did tubes, removed aednoids, tubes again. We went to soy, and many other formulas. He would get sick, be on an antibiotic, get a little better, but be running a fever again before he finished the antibiotic. blah, blah, blah. We finally got our answer when Jordan was 15!

There are a lot of other things that could be making your little guy sick, but I think you have to test for CF. I completely understand how you feel. I sincerely hope you find the answers you need to help your son. Nobody wants to be diagnosed with CF, but when you finally have a name for it, and you have a treatment plan for it, it really does help.

I'm not sure that anyone can understand how a mom feels when she can't make it all better for her baby. My family doesn't really get it either. It's like they just try to ignore it and hope it goes away.

I'm glad you found us. Please keep us posted.

Stacey

JORDYSMOM · Sep 28, 2008

Hi Robin. Welcome. It's like you are telling my son's story. We did tubes, removed aednoids, tubes again. We went to soy, and many other formulas. He would get sick, be on an antibiotic, get a little better, but be running a fever again before he finished the antibiotic. blah, blah, blah. We finally got our answer when Jordan was 15!

There are a lot of other things that could be making your little guy sick, but I think you have to test for CF. I completely understand how you feel. I sincerely hope you find the answers you need to help your son. Nobody wants to be diagnosed with CF, but when you finally have a name for it, and you have a treatment plan for it, it really does help.

I'm not sure that anyone can understand how a mom feels when she can't make it all better for her baby. My family doesn't really get it either. It's like they just try to ignore it and hope it goes away.

I'm glad you found us. Please keep us posted.

Stacey

JORDYSMOM · Sep 28, 2008

Hi Robin. Welcome. It's like you are telling my son's story. We did tubes, removed aednoids, tubes again. We went to soy, and many other formulas. He would get sick, be on an antibiotic, get a little better, but be running a fever again before he finished the antibiotic. blah, blah, blah. We finally got our answer when Jordan was 15!

There are a lot of other things that could be making your little guy sick, but I think you have to test for CF. I completely understand how you feel. I sincerely hope you find the answers you need to help your son. Nobody wants to be diagnosed with CF, but when you finally have a name for it, and you have a treatment plan for it, it really does help.

I'm not sure that anyone can understand how a mom feels when she can't make it all better for her baby. My family doesn't really get it either. It's like they just try to ignore it and hope it goes away.

I'm glad you found us. Please keep us posted.

Stacey

JORDYSMOM · Sep 28, 2008

Hi Robin. Welcome. It's like you are telling my son's story. We did tubes, removed aednoids, tubes again. We went to soy, and many other formulas. He would get sick, be on an antibiotic, get a little better, but be running a fever again before he finished the antibiotic. blah, blah, blah. We finally got our answer when Jordan was 15!
 
 There are a lot of other things that could be making your little guy sick, but I think you have to test for CF. I completely understand how you feel. I sincerely hope you find the answers you need to help your son. Nobody wants to be diagnosed with CF, but when you finally have a name for it, and you have a treatment plan for it, it really does help.
 
 I'm not sure that anyone can understand how a mom feels when she can't make it all better for her baby. My family doesn't really get it either. It's like they just try to ignore it and hope it goes away.
 
 I'm glad you found us. Please keep us posted.
 
 Stacey

JazzysMom · Sep 28, 2008

Definitely get tested for CF. Push for a full genetic panel because that is the most accurate of everything. Often insurances want to do it step by step, but honestly unless it is CF & your child has one of the more common mutations that just prolongs the wondering &/or needed care.

Keep us posted!

HUGS

JazzysMom · Sep 28, 2008

Definitely get tested for CF. Push for a full genetic panel because that is the most accurate of everything. Often insurances want to do it step by step, but honestly unless it is CF & your child has one of the more common mutations that just prolongs the wondering &/or needed care.

Keep us posted!

HUGS

JazzysMom · Sep 28, 2008

Definitely get tested for CF. Push for a full genetic panel because that is the most accurate of everything. Often insurances want to do it step by step, but honestly unless it is CF & your child has one of the more common mutations that just prolongs the wondering &/or needed care.

Keep us posted!

HUGS

JazzysMom · Sep 28, 2008

Definitely get tested for CF. Push for a full genetic panel because that is the most accurate of everything. Often insurances want to do it step by step, but honestly unless it is CF & your child has one of the more common mutations that just prolongs the wondering &/or needed care.

Keep us posted!

HUGS

JazzysMom · Sep 28, 2008

Definitely get tested for CF. Push for a full genetic panel because that is the most accurate of everything. Often insurances want to do it step by step, but honestly unless it is CF & your child has one of the more common mutations that just prolongs the wondering &/or needed care.
 
 Keep us posted!
 
 HUGS

Is this answer?

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member