Is this answer?

junebugsmommy

New member
Your families will always remain in our prayers, as you have helped me/us get a little closer to sanity in this choas. My deepest thanks and hopes are with each of you. thanks again.

Robin Vincent
Mommy of Kaden
 

junebugsmommy

New member
Your families will always remain in our prayers, as you have helped me/us get a little closer to sanity in this choas. My deepest thanks and hopes are with each of you. thanks again.

Robin Vincent
Mommy of Kaden
 

junebugsmommy

New member
Your families will always remain in our prayers, as you have helped me/us get a little closer to sanity in this choas. My deepest thanks and hopes are with each of you. thanks again.

Robin Vincent
Mommy of Kaden
 

junebugsmommy

New member
Your families will always remain in our prayers, as you have helped me/us get a little closer to sanity in this choas. My deepest thanks and hopes are with each of you. thanks again.

Robin Vincent
Mommy of Kaden
 

junebugsmommy

New member
Your families will always remain in our prayers, as you have helped me/us get a little closer to sanity in this choas. My deepest thanks and hopes are with each of you. thanks again.
<br />
<br />Robin Vincent
<br />Mommy of Kaden
 

junebugsmommy

New member
Hello again... We had an appointment with the pulmonologist last friday and he discussed our next steps... My son is currently on Levquin twice daily for a 30 day course. When that is complete we are going to see how he is doing... in the meantime... we are scheduled for an upper GI with barium swallow to check for reflux and are in works for a ciliary biopsy. It is my understanding that a ciliary biopsy would check for primary ciliary dyskensia... very similar to CF in fact the treatment is the same... so we are still looking. Just wanted to update you all and let you know that we may be visiting again with questions regarding treatments and such. thanks again

Robin "Junebug's Mommy"
 

junebugsmommy

New member
Hello again... We had an appointment with the pulmonologist last friday and he discussed our next steps... My son is currently on Levquin twice daily for a 30 day course. When that is complete we are going to see how he is doing... in the meantime... we are scheduled for an upper GI with barium swallow to check for reflux and are in works for a ciliary biopsy. It is my understanding that a ciliary biopsy would check for primary ciliary dyskensia... very similar to CF in fact the treatment is the same... so we are still looking. Just wanted to update you all and let you know that we may be visiting again with questions regarding treatments and such. thanks again

Robin "Junebug's Mommy"
 

junebugsmommy

New member
Hello again... We had an appointment with the pulmonologist last friday and he discussed our next steps... My son is currently on Levquin twice daily for a 30 day course. When that is complete we are going to see how he is doing... in the meantime... we are scheduled for an upper GI with barium swallow to check for reflux and are in works for a ciliary biopsy. It is my understanding that a ciliary biopsy would check for primary ciliary dyskensia... very similar to CF in fact the treatment is the same... so we are still looking. Just wanted to update you all and let you know that we may be visiting again with questions regarding treatments and such. thanks again

Robin "Junebug's Mommy"
 

junebugsmommy

New member
Hello again... We had an appointment with the pulmonologist last friday and he discussed our next steps... My son is currently on Levquin twice daily for a 30 day course. When that is complete we are going to see how he is doing... in the meantime... we are scheduled for an upper GI with barium swallow to check for reflux and are in works for a ciliary biopsy. It is my understanding that a ciliary biopsy would check for primary ciliary dyskensia... very similar to CF in fact the treatment is the same... so we are still looking. Just wanted to update you all and let you know that we may be visiting again with questions regarding treatments and such. thanks again

Robin "Junebug's Mommy"
 

junebugsmommy

New member
Hello again... We had an appointment with the pulmonologist last friday and he discussed our next steps... My son is currently on Levquin twice daily for a 30 day course. When that is complete we are going to see how he is doing... in the meantime... we are scheduled for an upper GI with barium swallow to check for reflux and are in works for a ciliary biopsy. It is my understanding that a ciliary biopsy would check for primary ciliary dyskensia... very similar to CF in fact the treatment is the same... so we are still looking. Just wanted to update you all and let you know that we may be visiting again with questions regarding treatments and such. thanks again
<br />
<br />Robin "Junebug's Mommy"
 
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