The facilities for pwcf are not very good at my hospital. But I was a little taken aback when I realised there would be <b>four</b> people with cf in my room. I wasa assured by my team that we all have the same bugs so its ok, but the other cfers are very chesty and IM afraid I'll catch something. We dont have an ensuite for the room either, just the main toilets that the 25 other patients use. I'm just wondering is this right? Would your cf center do this? What is your set up like? Im really just at my wits end, and looking for a second opinion. Thanks.
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Is this right?
- Thread starter anonymous
- Start date
Doesnt sound good to me. I understand the concept of you all culture the same bugs, but all it takes is one person to have something different that hasnt been cultured yet & you all good be in trouble. Years ago before the cross contamination problem all of the CFers would room together. It was fun for all of us & easy on the therapists etc. Now that is even thought of......I dont know where your CF clinic is, but it worries me so there is my 2nd opinion!
In my hospital they do not even put me with people that do not have CF let alone have CF. I have to have a private room and even anyone that comes in is suppose to wear masks, gowns and gloves. Granted my visitors do not and even the docs and nurses and cpt therapists do not always follow the rule, but it is there.
I would get a 2nd opinion too.
Good Luck!
Jennifer 34 years old with CF CFRD
I would get a 2nd opinion too.
Good Luck!
Jennifer 34 years old with CF CFRD
littledebbie
New member
I also always have my own room, I think your place is a little behind the times....
whoa! I would be HORRIFIED if I were you.
Let's back up a bit and talk about sputum cultures.... they aren't 100% accurate by any sense of the imagination.
When you do a sputum culture, you may only be coughing up phlem from a certain part of your lungs that day. For whatever reason - it doesn't matter why. A week later, you could be coughing up another set of phlem, colonized with different bacteria, than you did a week before..... this is quite common. Now this isn't to say that sputum cultures change DRASTICALLY from one week to another... but they can, and do, vary.
So that's the 1st point where your hospital is INCORRECT...
The second point is that just because you have the same bugs, doesn't mean you have the same suseptabilities. I have pseudo, you have pseudo. My pseudo is resistant to Tobramycin - yours isn't. Or my pseudo is mucoid (it builds a tent around itself to protect itself from antibiotics) and yours doesn't.
I have Staph - you have staph. Your staph is Methacilin resisi (MRSA) and my staph is methacilin suseptable (sorry about my spelling).
So Just because you colonized the same bacteria, that doesn't mean that it's ok for you to hang out with another CFer.
3rdly, bacteria can become resist to antibiotics during an antibiotic treatment.
Let's say you're admitted with pseudo that is suseptable to Tobra. This may be your 20th time on Tobra IV, and finally your pseudo turns resis to Tobra. What if you share a room with a person who is suseptable to Tobra and now they might catch your resis Tobra?
The reasons go on and on and on......
You should be extremely vocal about how wrong this is. Reference the CFF guidelines, and shake your finger at them for being so lax in their infection conrol procedures.
And GOOD FOR YOU for having a gut feeling that this is wrong. You will be a healthier person for it. Applause to you.
And shame on your clinic - it makes me sick that innocent CF patients who don't know any better are being put in positions that could make them sicker. That's just repulsive.
Let's back up a bit and talk about sputum cultures.... they aren't 100% accurate by any sense of the imagination.
When you do a sputum culture, you may only be coughing up phlem from a certain part of your lungs that day. For whatever reason - it doesn't matter why. A week later, you could be coughing up another set of phlem, colonized with different bacteria, than you did a week before..... this is quite common. Now this isn't to say that sputum cultures change DRASTICALLY from one week to another... but they can, and do, vary.
So that's the 1st point where your hospital is INCORRECT...
The second point is that just because you have the same bugs, doesn't mean you have the same suseptabilities. I have pseudo, you have pseudo. My pseudo is resistant to Tobramycin - yours isn't. Or my pseudo is mucoid (it builds a tent around itself to protect itself from antibiotics) and yours doesn't.
I have Staph - you have staph. Your staph is Methacilin resisi (MRSA) and my staph is methacilin suseptable (sorry about my spelling).
So Just because you colonized the same bacteria, that doesn't mean that it's ok for you to hang out with another CFer.
3rdly, bacteria can become resist to antibiotics during an antibiotic treatment.
Let's say you're admitted with pseudo that is suseptable to Tobra. This may be your 20th time on Tobra IV, and finally your pseudo turns resis to Tobra. What if you share a room with a person who is suseptable to Tobra and now they might catch your resis Tobra?
The reasons go on and on and on......
You should be extremely vocal about how wrong this is. Reference the CFF guidelines, and shake your finger at them for being so lax in their infection conrol procedures.
And GOOD FOR YOU for having a gut feeling that this is wrong. You will be a healthier person for it. Applause to you.
And shame on your clinic - it makes me sick that innocent CF patients who don't know any better are being put in positions that could make them sicker. That's just repulsive.
Scarlett81
New member
OK-
Very controversial topic-all that "isolation" cepacia, transfer stuff....I have cepacia-so I feel I can voice in this with a little more experience. Some say-they need the companionship, the relating to other cfers. And you do need that. I think that's what this place here is for though.
I will tell you what you don't need-cepacia. Bad stuff. Pain in the butt. And dangerous too. The #1 complication stopping me from getting pregnant...FYI.
I think that your cf center is beyond behind the times. I might be wrong-but if they're not following Foundation protocol-which this clearly is-can they really call themselves a Center? Hmmm.I'd question that.
I would never never never stay in a room with other cfers-cepacia or no cepacia. Now I always get my own room, but if I couldn't, I'd get my PICC put in and go home. Amy listed the reasons why. You got an issue here-and I wish you the best with getting it resolved. Take Care!
Very controversial topic-all that "isolation" cepacia, transfer stuff....I have cepacia-so I feel I can voice in this with a little more experience. Some say-they need the companionship, the relating to other cfers. And you do need that. I think that's what this place here is for though.
I will tell you what you don't need-cepacia. Bad stuff. Pain in the butt. And dangerous too. The #1 complication stopping me from getting pregnant...FYI.
I think that your cf center is beyond behind the times. I might be wrong-but if they're not following Foundation protocol-which this clearly is-can they really call themselves a Center? Hmmm.I'd question that.
I would never never never stay in a room with other cfers-cepacia or no cepacia. Now I always get my own room, but if I couldn't, I'd get my PICC put in and go home. Amy listed the reasons why. You got an issue here-and I wish you the best with getting it resolved. Take Care!
that is SO WRONG! that reminds me of the childrens hospital here. they used to do that and probably still do it. the jerkoff who redesinged the wards never bothered to create any extra private rooms so it wouldnt suprised me if cf patients are still sharing. i was lucky enough not to catch any resistant bugs when i was there but i can tell you now i caught a hell of alot of other things! id catch gastro almost every time i went in because we all had to share toilets. if i were ever made to share again i would NEVER EVER go into hospital.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Scarlett81</b></i>
Some say-they need the companionship, the relating to other cfers. And you do need that. I think that's what this place here is for though.</end quote></div>
just speaking for the 'pro cf interaction' group here. none of us would ever condone sharing a room. companionship does not mean its ok to share a room by any circumstances and i dont think anyone has ever said its ok. there is a huge difference between that and just being friends with another cfer.
Some say-they need the companionship, the relating to other cfers. And you do need that. I think that's what this place here is for though.</end quote></div>
just speaking for the 'pro cf interaction' group here. none of us would ever condone sharing a room. companionship does not mean its ok to share a room by any circumstances and i dont think anyone has ever said its ok. there is a huge difference between that and just being friends with another cfer.
I'm with Amy....it is HORRIFYING!!!!!
Our hospital makes patients sign a contract saying they will not go anywhere near (3') another CF patient. They are not allowed to go to the public areas (activity, courtyard, cafeteria) without a hospital staff member. It is mandatory for all of our CF patients to have their own room, in fact we had to pull some strings to get our boys w/cf to share a room. The docs gown and glove before entering each room AND leave the gowns in the room and purell on their way out. The docs even change their gowns and gloves in between examining the two boys!
I would contact the CFF and report this. Maybe someone can update your hospital before people get sick.
Jane
Our hospital makes patients sign a contract saying they will not go anywhere near (3') another CF patient. They are not allowed to go to the public areas (activity, courtyard, cafeteria) without a hospital staff member. It is mandatory for all of our CF patients to have their own room, in fact we had to pull some strings to get our boys w/cf to share a room. The docs gown and glove before entering each room AND leave the gowns in the room and purell on their way out. The docs even change their gowns and gloves in between examining the two boys!
I would contact the CFF and report this. Maybe someone can update your hospital before people get sick.
Jane
R
Renegade
Guest
Go somewhere else and insist on a private room. I am 40 years old and I have CF with cepacia. Anytime I'm put in the hospital I'm always isolated from other CF patients mainly for there protection not mine.
Emily65Roses
New member
I'm one for meeting CFers, making friends, etc. But I can't say I'd be happy about that. Besides, as Amy said, "assuring you that you all have the same bugs" is impossible. They can miss stuff, they can have bugs that have yet to really act up, etc etc. It's crap, and they can't assure your safety that way, no matter how much they say they can.
Yikes,
sounds like the CDC and the HEalth department needs a call from you about your hospital and the organization of the CF patients.
As others have said, sputum cultures are not 100% accurate-for a number of reasons. Additionally, a patient can aquire something during their hospital stay while out and about (maybe someone without the same precautions that you use of a mask and staying away from other patients) and it won't show up WHILE they are in the hospital.
That is just wrong what they are doing. Are they a hospital attached to an accredited CF center? If so, contact the CFF as well. They have "standards of care" about this kind of stuff. If not, maybe your local accredited CF canter can recommend a different hospital?!?!?!???!!!
Good luck,
sounds like the CDC and the HEalth department needs a call from you about your hospital and the organization of the CF patients.
As others have said, sputum cultures are not 100% accurate-for a number of reasons. Additionally, a patient can aquire something during their hospital stay while out and about (maybe someone without the same precautions that you use of a mask and staying away from other patients) and it won't show up WHILE they are in the hospital.
That is just wrong what they are doing. Are they a hospital attached to an accredited CF center? If so, contact the CFF as well. They have "standards of care" about this kind of stuff. If not, maybe your local accredited CF canter can recommend a different hospital?!?!?!???!!!
Good luck,
I'm going to jump on the horrified bandwagon. Ry always had a private room when he went in, thoug he claimed it was because the other patients didn't want to be in with his noxious gases. But I can't imagine rooming with other Cfers, I'm horrified when Cfers don't have private rooms, you guys are so suseptible to EVERYTHING. Go to a different place.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
What country are you in?</end quote></div>
As I said, it sounds like a Mexican jail's infirmary.
But seriously, the place might have severe space problems, see they have similar cultures, and figure while it's not the best idea overall, it's better than them not being in the hospital receiving care. Back in the old days it was very common for two CF's to share a room, but I can never recall 4 CF's in one room. If he is in an American hospital, it is probably a hospital that doesn't have much experience with CF's, or does deal with many and just doesn't have the room.
What country are you in?</end quote></div>
As I said, it sounds like a Mexican jail's infirmary.
But seriously, the place might have severe space problems, see they have similar cultures, and figure while it's not the best idea overall, it's better than them not being in the hospital receiving care. Back in the old days it was very common for two CF's to share a room, but I can never recall 4 CF's in one room. If he is in an American hospital, it is probably a hospital that doesn't have much experience with CF's, or does deal with many and just doesn't have the room.
I have shared a room when the hospital, but only
one other person and not someone with Cf or even a cold.
The last time I was in, I was in with a guy who had a operation on his back.
no coughing .... I have never seen a room here in the US
with more than 2 people, most Hospitals here in Virginia all
have private rooms for every body.
Good Luck to You , who ever you are .....
one other person and not someone with Cf or even a cold.
The last time I was in, I was in with a guy who had a operation on his back.
no coughing .... I have never seen a room here in the US
with more than 2 people, most Hospitals here in Virginia all
have private rooms for every body.
Good Luck to You , who ever you are .....