My daughter is going for her kindergarten screening tomorrow. She is excited for it. She must have been thinking about kindergarten while we were in the car, whn she said"It would be easier if I didn't have Cystic Fibrosis" I wouldn't have to take enzymes, do puff-puffs(nebs), no VEST. I looked at her and said Yes it would be easier. You don't get to choose how things go, though. She asked how she would do her puff puff and VEST at school. I said you'll do it before and after, we'll figure it out. SHe's worried she'll be tired. I told her she can talk to her friends and teachers about CF, she can explain it. I let her know people like her because of her fun personality and who she is, not what she has. This is the conversation I had with Maggie, my 5 year old daughter with CF while waiting for my son zat the bus. Blows my mind.
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"It would be easier if I didn't have Cystic Fibrosis"
- Thread starter Rebjane
- Start date
My daughter is going for her kindergarten screening tomorrow. She is excited for it. She must have been thinking about kindergarten while we were in the car, whn she said"It would be easier if I didn't have Cystic Fibrosis" I wouldn't have to take enzymes, do puff-puffs(nebs), no VEST. I looked at her and said Yes it would be easier. You don't get to choose how things go, though. She asked how she would do her puff puff and VEST at school. I said you'll do it before and after, we'll figure it out. SHe's worried she'll be tired. I told her she can talk to her friends and teachers about CF, she can explain it. I let her know people like her because of her fun personality and who she is, not what she has. This is the conversation I had with Maggie, my 5 year old daughter with CF while waiting for my son zat the bus. Blows my mind.
My daughter is going for her kindergarten screening tomorrow. She is excited for it. She must have been thinking about kindergarten while we were in the car, whn she said"It would be easier if I didn't have Cystic Fibrosis" I wouldn't have to take enzymes, do puff-puffs(nebs), no VEST. I looked at her and said Yes it would be easier. You don't get to choose how things go, though. She asked how she would do her puff puff and VEST at school. I said you'll do it before and after, we'll figure it out. SHe's worried she'll be tired. I told her she can talk to her friends and teachers about CF, she can explain it. I let her know people like her because of her fun personality and who she is, not what she has. This is the conversation I had with Maggie, my 5 year old daughter with CF while waiting for my son zat the bus. Blows my mind.
My daughter is going for her kindergarten screening tomorrow. She is excited for it. She must have been thinking about kindergarten while we were in the car, whn she said"It would be easier if I didn't have Cystic Fibrosis" I wouldn't have to take enzymes, do puff-puffs(nebs), no VEST. I looked at her and said Yes it would be easier. You don't get to choose how things go, though. She asked how she would do her puff puff and VEST at school. I said you'll do it before and after, we'll figure it out. SHe's worried she'll be tired. I told her she can talk to her friends and teachers about CF, she can explain it. I let her know people like her because of her fun personality and who she is, not what she has. This is the conversation I had with Maggie, my 5 year old daughter with CF while waiting for my son zat the bus. Blows my mind.
My daughter is going for her kindergarten screening tomorrow. She is excited for it. She must have been thinking about kindergarten while we were in the car, whn she said"It would be easier if I didn't have Cystic Fibrosis" I wouldn't have to take enzymes, do puff-puffs(nebs), no VEST. I looked at her and said Yes it would be easier. You don't get to choose how things go, though. She asked how she would do her puff puff and VEST at school. I said you'll do it before and after, we'll figure it out. SHe's worried she'll be tired. I told her she can talk to her friends and teachers about CF, she can explain it. I let her know people like her because of her fun personality and who she is, not what she has. This is the conversation I had with Maggie, my 5 year old daughter with CF while waiting for my son zat the bus. Blows my mind.
JennyCoulon
New member
"It would be easier if I didn't have Cystic Fibrosis
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
JennyCoulon
New member
"It would be easier if I didn't have Cystic Fibrosis
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
JennyCoulon
New member
"It would be easier if I didn't have Cystic Fibrosis
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
JennyCoulon
New member
"It would be easier if I didn't have Cystic Fibrosis
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
JennyCoulon
New member
"It would be easier if I didn't have Cystic Fibrosis
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I feel for you, I was very worried about how things were going to be when I first sent my now 8 year old off to school. He went to preschool and they keep his enzymes right in the classroom in a locked cabinet. When he went to Kindergarden my husband and I talked to the nurse of the Elementary school, who by the way is excellent. The nurse knew about CF so she then suggested that we meet with her, us and my son's teacher. We met and all the teacher really needed to know was the Mason had be sent to Mrs. Hall's office before snack and lunch to get his enzymes. The two office ladies knew about it b/c they have had to fill in for Mrs. Hall when she was teaching at the Middle School during snack time. The most difficult part or what I should say I thought would be the most difficult was explaining his G-button. Thankfully the nurse had dealt with that also so when it happened to pop when he was at school she just changed it out. My son is now is 2nd grade and at each school year we just tell his teacher about his enzymes just so they can help remind him to go to the office but it is still the same nurse and will be for the next 2 years. My son's friends know about his enzymes and his G-button along with his soccer team. We just go along with our routine and if they ask questions of Mason he just tells them he has CF and usually that ends it. I have offered to come into the school along with the help of Mrs. Hall and explain to the kids about CF not only for Mason but for anyone else in the school that may have it. Mason usually gets up and does his Vest and aerosol which usually takes about 15 mins in the morning and then again at night. My other son Tucker is just in daycare and they understand the whole process. Hope this helps a little bit. <img src="i/expressions/face-icon-small-wink.gif" border="0">
M
Mommafirst
Guest
"It would be easier if I didn't have Cystic Fibrosis
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
M
Mommafirst
Guest
"It would be easier if I didn't have Cystic Fibrosis
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
M
Mommafirst
Guest
"It would be easier if I didn't have Cystic Fibrosis
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
M
Mommafirst
Guest
"It would be easier if I didn't have Cystic Fibrosis
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
M
Mommafirst
Guest
"It would be easier if I didn't have Cystic Fibrosis
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.
Maggie is sooo sweet and special. I'm sure I don't have to tell you that. It would be easier if she didn't have CF, sigh, that is true. But it sounds to me like she is wise beyond her years and will be going big places in the future.