Hi everyone,
My daughter Samantha is currently on IV antibiotics (Tobra and Timentin) for the second time in six months. She is only 18 months old and has really never been able to last very long without being on an antibiotic. She is taking Zithromax on a Mon-Wed-Fri. schedule and is also currently on Bactrim. She has cultured Pseudomonas and Stenotrophomonas in the past, but her current, and last few cultures have shown normal flora. Even so, she was hospitalized because of rapid breathing, retractions and cough. Chest X-ray showed some atelectasis(sp?) nothing significant.
I have several questions. 1) Is it common to be placed on IV antibiotics based on past cultures even when the current culture is fine? 2) I am continuously told that being aggressive with antibiotics early on will help later. I know research studies have shown this to be true, but I would like to hear from "real" people. Has anyone had this type of experience? 3) We opted to bring Sami home on IV's, and I have to admit, I am having a tough time. I feel like I'm going to do something terribly wrong like inject an air bubble or leave something not sterilized. How have other parents dealt with this?
I know I am asking a lot of questions, but Sami was doing so well for a couple of months, and now I feel like we are sliding back into that CF hole. This disease does not give my little girl a break
Maria - mom to three daughters, the youngest, Samantha w/cf
My daughter Samantha is currently on IV antibiotics (Tobra and Timentin) for the second time in six months. She is only 18 months old and has really never been able to last very long without being on an antibiotic. She is taking Zithromax on a Mon-Wed-Fri. schedule and is also currently on Bactrim. She has cultured Pseudomonas and Stenotrophomonas in the past, but her current, and last few cultures have shown normal flora. Even so, she was hospitalized because of rapid breathing, retractions and cough. Chest X-ray showed some atelectasis(sp?) nothing significant.
I have several questions. 1) Is it common to be placed on IV antibiotics based on past cultures even when the current culture is fine? 2) I am continuously told that being aggressive with antibiotics early on will help later. I know research studies have shown this to be true, but I would like to hear from "real" people. Has anyone had this type of experience? 3) We opted to bring Sami home on IV's, and I have to admit, I am having a tough time. I feel like I'm going to do something terribly wrong like inject an air bubble or leave something not sterilized. How have other parents dealt with this?
I know I am asking a lot of questions, but Sami was doing so well for a couple of months, and now I feel like we are sliding back into that CF hole. This disease does not give my little girl a break
Maria - mom to three daughters, the youngest, Samantha w/cf