as a mum of 2 boys age 13 and 11 both with cf finding it impossible to g et them cannulated doctors keep postponing treatment till the next day as the veins keep shutting down even after cannulating it lasts 2 days at the most i know the option is to go for a portacath but already tried this and ended up having 3 fitted within 18 months any ideas
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ivs and portacaths
- Thread starter liljudge
- Start date
as a mum of 2 boys age 13 and 11 both with cf finding it impossible to g et them cannulated doctors keep postponing treatment till the next day as the veins keep shutting down even after cannulating it lasts 2 days at the most i know the option is to go for a portacath but already tried this and ended up having 3 fitted within 18 months any ideas
as a mum of 2 boys age 13 and 11 both with cf finding it impossible to g et them cannulated doctors keep postponing treatment till the next day as the veins keep shutting down even after cannulating it lasts 2 days at the most i know the option is to go for a portacath but already tried this and ended up having 3 fitted within 18 months any ideas
coltsfan715
New member
If he is not able to have a port maybe they could try a PICC line.
I have an extremely hard time with the basic peripheral IVs - If I have them the veins blow within 24 hours usually because the antibiotics are so harsh. That is why I get PICC lines - they are going to be going for a port at my next hospital stay.
As for the anxiety attacks - I used to get these ALL the time with needles period. Whether I was being stuck for blood draws or for IVs/PICCs whatever. Sometimes I took xanax for the procedure and it sedated me to the point that I didn't care. I have not used them in years though - now I find that if I pray while the procedure is going on I am able to relax. My body still tenses - but my mind remains clear and I do not get the "OMG I am going to die before this is done" Panic attacks. I thought as a kid that if I prayed to God that whatever it was would not hurt - now as an adult I know that is not the case (though I wish it were) I can pray to God that he protect me and keep me safe from any undue harm during the IV insertion/blood draw - the praying seems to be the most effective thing for me and the anxiety I have during those things maybe that could help him some.
When I was younger my mom used to play with my hair and talk to me about our vacations while I cried through the sticks and draws.
I don't really know what else to suggest. Maybe anxiety meds during the procedure. The can also sedate him if they do a PICC line that way he is not traumatized further by the procedure (as it is NOT fun and may make his anxiety worse at this point - maybe ask your doc about that). I wish there were an easy "no pain" solution for him I truly do - I remember how scary it was getting stuck as a kid ... and even now.
Good luck with this. I will be thinking of him and you.
Lindsey
I have an extremely hard time with the basic peripheral IVs - If I have them the veins blow within 24 hours usually because the antibiotics are so harsh. That is why I get PICC lines - they are going to be going for a port at my next hospital stay.
As for the anxiety attacks - I used to get these ALL the time with needles period. Whether I was being stuck for blood draws or for IVs/PICCs whatever. Sometimes I took xanax for the procedure and it sedated me to the point that I didn't care. I have not used them in years though - now I find that if I pray while the procedure is going on I am able to relax. My body still tenses - but my mind remains clear and I do not get the "OMG I am going to die before this is done" Panic attacks. I thought as a kid that if I prayed to God that whatever it was would not hurt - now as an adult I know that is not the case (though I wish it were) I can pray to God that he protect me and keep me safe from any undue harm during the IV insertion/blood draw - the praying seems to be the most effective thing for me and the anxiety I have during those things maybe that could help him some.
When I was younger my mom used to play with my hair and talk to me about our vacations while I cried through the sticks and draws.
I don't really know what else to suggest. Maybe anxiety meds during the procedure. The can also sedate him if they do a PICC line that way he is not traumatized further by the procedure (as it is NOT fun and may make his anxiety worse at this point - maybe ask your doc about that). I wish there were an easy "no pain" solution for him I truly do - I remember how scary it was getting stuck as a kid ... and even now.
Good luck with this. I will be thinking of him and you.
Lindsey
coltsfan715
New member
If he is not able to have a port maybe they could try a PICC line.
I have an extremely hard time with the basic peripheral IVs - If I have them the veins blow within 24 hours usually because the antibiotics are so harsh. That is why I get PICC lines - they are going to be going for a port at my next hospital stay.
As for the anxiety attacks - I used to get these ALL the time with needles period. Whether I was being stuck for blood draws or for IVs/PICCs whatever. Sometimes I took xanax for the procedure and it sedated me to the point that I didn't care. I have not used them in years though - now I find that if I pray while the procedure is going on I am able to relax. My body still tenses - but my mind remains clear and I do not get the "OMG I am going to die before this is done" Panic attacks. I thought as a kid that if I prayed to God that whatever it was would not hurt - now as an adult I know that is not the case (though I wish it were) I can pray to God that he protect me and keep me safe from any undue harm during the IV insertion/blood draw - the praying seems to be the most effective thing for me and the anxiety I have during those things maybe that could help him some.
When I was younger my mom used to play with my hair and talk to me about our vacations while I cried through the sticks and draws.
I don't really know what else to suggest. Maybe anxiety meds during the procedure. The can also sedate him if they do a PICC line that way he is not traumatized further by the procedure (as it is NOT fun and may make his anxiety worse at this point - maybe ask your doc about that). I wish there were an easy "no pain" solution for him I truly do - I remember how scary it was getting stuck as a kid ... and even now.
Good luck with this. I will be thinking of him and you.
Lindsey
I have an extremely hard time with the basic peripheral IVs - If I have them the veins blow within 24 hours usually because the antibiotics are so harsh. That is why I get PICC lines - they are going to be going for a port at my next hospital stay.
As for the anxiety attacks - I used to get these ALL the time with needles period. Whether I was being stuck for blood draws or for IVs/PICCs whatever. Sometimes I took xanax for the procedure and it sedated me to the point that I didn't care. I have not used them in years though - now I find that if I pray while the procedure is going on I am able to relax. My body still tenses - but my mind remains clear and I do not get the "OMG I am going to die before this is done" Panic attacks. I thought as a kid that if I prayed to God that whatever it was would not hurt - now as an adult I know that is not the case (though I wish it were) I can pray to God that he protect me and keep me safe from any undue harm during the IV insertion/blood draw - the praying seems to be the most effective thing for me and the anxiety I have during those things maybe that could help him some.
When I was younger my mom used to play with my hair and talk to me about our vacations while I cried through the sticks and draws.
I don't really know what else to suggest. Maybe anxiety meds during the procedure. The can also sedate him if they do a PICC line that way he is not traumatized further by the procedure (as it is NOT fun and may make his anxiety worse at this point - maybe ask your doc about that). I wish there were an easy "no pain" solution for him I truly do - I remember how scary it was getting stuck as a kid ... and even now.
Good luck with this. I will be thinking of him and you.
Lindsey
coltsfan715
New member
If he is not able to have a port maybe they could try a PICC line.
I have an extremely hard time with the basic peripheral IVs - If I have them the veins blow within 24 hours usually because the antibiotics are so harsh. That is why I get PICC lines - they are going to be going for a port at my next hospital stay.
As for the anxiety attacks - I used to get these ALL the time with needles period. Whether I was being stuck for blood draws or for IVs/PICCs whatever. Sometimes I took xanax for the procedure and it sedated me to the point that I didn't care. I have not used them in years though - now I find that if I pray while the procedure is going on I am able to relax. My body still tenses - but my mind remains clear and I do not get the "OMG I am going to die before this is done" Panic attacks. I thought as a kid that if I prayed to God that whatever it was would not hurt - now as an adult I know that is not the case (though I wish it were) I can pray to God that he protect me and keep me safe from any undue harm during the IV insertion/blood draw - the praying seems to be the most effective thing for me and the anxiety I have during those things maybe that could help him some.
When I was younger my mom used to play with my hair and talk to me about our vacations while I cried through the sticks and draws.
I don't really know what else to suggest. Maybe anxiety meds during the procedure. The can also sedate him if they do a PICC line that way he is not traumatized further by the procedure (as it is NOT fun and may make his anxiety worse at this point - maybe ask your doc about that). I wish there were an easy "no pain" solution for him I truly do - I remember how scary it was getting stuck as a kid ... and even now.
Good luck with this. I will be thinking of him and you.
Lindsey
I have an extremely hard time with the basic peripheral IVs - If I have them the veins blow within 24 hours usually because the antibiotics are so harsh. That is why I get PICC lines - they are going to be going for a port at my next hospital stay.
As for the anxiety attacks - I used to get these ALL the time with needles period. Whether I was being stuck for blood draws or for IVs/PICCs whatever. Sometimes I took xanax for the procedure and it sedated me to the point that I didn't care. I have not used them in years though - now I find that if I pray while the procedure is going on I am able to relax. My body still tenses - but my mind remains clear and I do not get the "OMG I am going to die before this is done" Panic attacks. I thought as a kid that if I prayed to God that whatever it was would not hurt - now as an adult I know that is not the case (though I wish it were) I can pray to God that he protect me and keep me safe from any undue harm during the IV insertion/blood draw - the praying seems to be the most effective thing for me and the anxiety I have during those things maybe that could help him some.
When I was younger my mom used to play with my hair and talk to me about our vacations while I cried through the sticks and draws.
I don't really know what else to suggest. Maybe anxiety meds during the procedure. The can also sedate him if they do a PICC line that way he is not traumatized further by the procedure (as it is NOT fun and may make his anxiety worse at this point - maybe ask your doc about that). I wish there were an easy "no pain" solution for him I truly do - I remember how scary it was getting stuck as a kid ... and even now.
Good luck with this. I will be thinking of him and you.
Lindsey