Oh my gosh.. I am so blown away but the kind wishes, prayers and thoughts.. Made me feel so good and loved.. Thank you so much..
Amy thanks for posting this, you are such a good friend to me and I appreciate it so much...
I am still in the hospital, due to go home early evening if all keeps going according to plan....
I ended up getting severely dehydrated apparently, between the CF and Addison's I dehydrate very easy, and I know that.. but I guess I wasn't careful enough......
What happen was my mucus and seceretions in my lungs got so thick from being dehydrated that it all turned into big chunky plugs and balls and while doing CPT I got one stuck in my airway and I could not get it out..
MY 02 dropped to the low 80s my heartrate went into the 170's-180's and I went into severe bronocspasm.. I could not stop choking, coughing and vomiting....
I ended up going to the ER where I spent hours getting large doses of steroids, high amounts of IV fluids and three hours of Mucyomist and xopenex.. What a delightful smell.
I got admitted, My electolytes were all messed up which they fixed but in order to stop the bronchospams and to help shrink the swelling in my throat and airway I am on 800 MGS OF IV PREDNISONE....
I went 36 hours without any sleep, for obvious reasons... right now I am still on that high dose and I am waiting for the pulmo to come in to help know how to taper it down, I am so swollen my face has three to four chins... HA
I am not to starving right now because of the high dose of steroids I am on the doctors said my immune system is completly shut down, I have zero protection from any bug which is very dangerous for a CFer so I am on Zyvox which as we all know cost thousands of dollars and if top gun antibiotic... and it is making me nausous as well as causing kidney pain.....
So more fluids for me... My blood sugars are through the roof....so insulin for me... all and all I am doing okay.. I am a little emotional, my spirts are good... and I am exahusted... and wired.. and waiting for the doctors to come in so I can go home.
I think that is it for now.. I am cleared to go to South Carolina tomorrow which I am so excited about.. I will just be tagging along a ton of meds but who cares.. I get to go.. Thank you Lord...
The one thing I do notice is I am very forgetful and I repeat myself a lot so I actually had to reread what I wrote because in talking to my CF nurse via email I would repeat myself every few paragraphs..
Hope I didn't do that now.. I for sure have steroid brain...
I wanted to say that I am so blessed that so many of you took time to respond to me, sometimes I feel like I am a pain in the neck and a burden on here.. so it was so great to see so many ppl wish me well...
Love you guys so much......and I am so grateful all of you guys.. or I should start to say all ya all, are going to be "moving" with me to South Carolina.. what a relief not to have to say good bye to you..
Love
Jennifer
