hi all,
my name is patrick. my son joshua was diagnosed with cf a couple of weeks ago.
he is 5 months old. we are from malaysia and this is a rare diasease here as only about 16 people have been diagnosed with cf till last year. the hospital we are at is treating 3 kids (various ages) for cf. have yet to meet them. little josh was admitted there on 7/2/07. he was diacharged yesterday on 22/2/07. he is on vits and creone (enzyme) and has to use the nebulizer about 4 times a day. also has to undergo physio (cvt).
anyways, just want to know what to expect in the future. thanks to the forums and blogs am more optimistic about josh's future.
my name is patrick. my son joshua was diagnosed with cf a couple of weeks ago.
he is 5 months old. we are from malaysia and this is a rare diasease here as only about 16 people have been diagnosed with cf till last year. the hospital we are at is treating 3 kids (various ages) for cf. have yet to meet them. little josh was admitted there on 7/2/07. he was diacharged yesterday on 22/2/07. he is on vits and creone (enzyme) and has to use the nebulizer about 4 times a day. also has to undergo physio (cvt).
anyways, just want to know what to expect in the future. thanks to the forums and blogs am more optimistic about josh's future.