Julie: The Courage to Breathe

[juliesdreamteam]

All,

For those that don't know, I wrote my Julie's story of Cystic Fibrosis and her ultimate transplant. I did so because I believe those with CF deserve a cure. I have directed the publisher to direct 100% of my author royalties to the CF Foundation. Julie: The Courage to Breathe is available at the following places:

www.lulu.com/spotlight/cure (Lulu dedicates the largest donation to the CF Foundation. Paperbacks send $6.36 of the 13.50 cost; Hardcovers send $14.53 of the $34.50 cost and the ePub/eReaders send $5.40 of the $6.99 cost).

www.amazon.com sends $2.03 from each paperback, $4.01 from the hardback and $4.85 from Kindle downloads to the CF Foundation

www.barnesandnoble.com (Nook is coming soon) sends a donation identical to Amazon. They are retail outlets and SUCK up a lot of my royalties.

If I had my preference, I'd just have Lulu handle the sales but the reality is that Amazon has her story available in 31 countries and if a million copies sell across the globe, then $2M will be sent to find the cure.

After two weeks on the market, just over $2,000 is set to be delivered to the CF Foundation and we couldn't be happier.

I hope you all take a look at the book. The CF Foundation was talking about putting Julie's story in their market place portion of their site. I was thrilled with the idea and received an email from them saying they were taking the MarketPlace down. I was amazed at the books they were pushing. 10% of this purchase....20% of this purchase etc. I'm giving 100% of royalties to the CF Foundation. I think it's that important that we do. Julie's story is inspirational and will touch the hearts and minds of the common reader and directly impact the lives of those effected with Cystic Fibrosis. My wife's dream of a cure for your families means more to me than any dollar.

We hope you love it.

God Bless...CURECF!!!

Roy E. Ice
www.juliesdreamteam.com

 

[JENNYC]

Roy!! That is amazing!! I can't wait to buy my copy!!! Thank you for everything that you and your wife are doing!!! God bless!!

 

[juliesdreamteam]

Jenny,

I watched this miracle unfold from a foot away. Julie's story is AMAZING! I would never consider myself an author but I wrote this book from the heart. I hate CF. I hate it with everything that is within me and I learned how to beat it. We can buy time until the cure is found (and that's going to be very soon if all those with CF pick up a copy of her book). I'm fortunate to have had CF thrust into my life (an odd statement right?). We're going to find the cure. We can do it by people living their lives. Buffalo Wild Wings has taken notice. They want to help us find a cure. They read her story and see the benefit of being involved. My every prayer is that those with CF and those whose life the disease touches will help us find a cure by reading my Julie's story. These corporations are taking notice. I'm hoping that our CF community does as well. Even if the book sucks (which it doesn't) proceeds will go to find the cure. I can't find any losers in this equation. We've got to end this thing for once and for all. Keep pushing forward Jenny!

 

[LittleLab4CF]

I can't wait!!! Congratulations on a publication. Years ago I purchased "In the Shadow of Polio", a personal and educational story woven around my generation and the times. Not a book to read during a long flight. The often brutal well written book kept me so engaged I had weeped and sobbed away four hours building a fortress of soggy tissues about my plane seat. AWKWARD.

My CF holds no valid comparison to the devistating ravages of extreme pulmonary CF though only amongst CFers would I call it mild. Still, I have CF and everytime I go for CF Clinic, I am surrounded by young, pale and sometimes visibly scarred "children". I used to imagine chronicling the life of a person born with full blown CF presentation. Although without exception every CFer I have encountered is blown on life and see CF, no matter how severe, and medical management is what it is. This is hope at its best.

LL

 

[juliesdreamteam]

Thanks LL. I wouldn't consider myself to be an author but I'm a husband that has lived with this disease in my life. This book is absolutely truthful and written from the heart. Thanks for picking up a copy. Reading a book....something as simple as reading a book can help find the cure. I hope you love it. God Bless...CURECF!!!