Just after an opinion

Kimber1

New member
My daughter Charlotte is one she has never been cough free, she had a bronch at four months and they found she had malica (flattening of the windpipes) and rsv but no real nasties. She had her annual checkup were they did xray which was clear and a cough swab which cultured Staph. She was put on a a month of antibiotics but the cough slowly increased. They have changed her antibiotics but she know has a cold and a nasty cough. She has a repeat cough swab in about 10 days, they said if it cultures Staph again she will need to go on long term antibiotics. I have read that in Sweden they treat staph like psuedomonas because it does quite extensive tissue damage. I was just after any thoughts on my situation as cf is all realively new to me. Should I request anything? or any other thoughts
 

Kimber1

New member
My daughter Charlotte is one she has never been cough free, she had a bronch at four months and they found she had malica (flattening of the windpipes) and rsv but no real nasties. She had her annual checkup were they did xray which was clear and a cough swab which cultured Staph. She was put on a a month of antibiotics but the cough slowly increased. They have changed her antibiotics but she know has a cold and a nasty cough. She has a repeat cough swab in about 10 days, they said if it cultures Staph again she will need to go on long term antibiotics. I have read that in Sweden they treat staph like psuedomonas because it does quite extensive tissue damage. I was just after any thoughts on my situation as cf is all realively new to me. Should I request anything? or any other thoughts
 

Kimber1

New member
My daughter Charlotte is one she has never been cough free, she had a bronch at four months and they found she had malica (flattening of the windpipes) and rsv but no real nasties. She had her annual checkup were they did xray which was clear and a cough swab which cultured Staph. She was put on a a month of antibiotics but the cough slowly increased. They have changed her antibiotics but she know has a cold and a nasty cough. She has a repeat cough swab in about 10 days, they said if it cultures Staph again she will need to go on long term antibiotics. I have read that in Sweden they treat staph like psuedomonas because it does quite extensive tissue damage. I was just after any thoughts on my situation as cf is all realively new to me. Should I request anything? or any other thoughts
 

Kimber1

New member
My daughter Charlotte is one she has never been cough free, she had a bronch at four months and they found she had malica (flattening of the windpipes) and rsv but no real nasties. She had her annual checkup were they did xray which was clear and a cough swab which cultured Staph. She was put on a a month of antibiotics but the cough slowly increased. They have changed her antibiotics but she know has a cold and a nasty cough. She has a repeat cough swab in about 10 days, they said if it cultures Staph again she will need to go on long term antibiotics. I have read that in Sweden they treat staph like psuedomonas because it does quite extensive tissue damage. I was just after any thoughts on my situation as cf is all realively new to me. Should I request anything? or any other thoughts
 

Kimber1

New member
My daughter Charlotte is one she has never been cough free, she had a bronch at four months and they found she had malica (flattening of the windpipes) and rsv but no real nasties. She had her annual checkup were they did xray which was clear and a cough swab which cultured Staph. She was put on a a month of antibiotics but the cough slowly increased. They have changed her antibiotics but she know has a cold and a nasty cough. She has a repeat cough swab in about 10 days, they said if it cultures Staph again she will need to go on long term antibiotics. I have read that in Sweden they treat staph like psuedomonas because it does quite extensive tissue damage. I was just after any thoughts on my situation as cf is all realively new to me. Should I request anything? or any other thoughts
 

hmw

New member
<div class="FTQUOTE"><begin quote>They have changed her antibiotics but she know has a cold and a nasty cough.</end quote></div>
As I am sure you already know, antibiotics won't prevent viral infections such as colds or influenza or any other number of bugs making the rounds this time of year.

Whether or not to treat staph with long-term abx is up for debate by some drs but our clinic, as well as many others, do not treat it unless it's causing active symptoms (and then it would be treated with a short-term abx, i.e. Bactrim, etc.) There is some evidence that leaving staph alone can result in culturing PA at a later age so I am more comfortable with our approach of only treating it when Emily is sick and she hasn't responded to the measures we initially take w/ her sick plan.

Chronic cough can also be caused by other issues (allergies, inflammation) and that should be investigated too, since if something else is going on antibiotics alone won't help.

These are just my thoughts on the matter... but they are completely non-professional thoughts. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Oh, one more question: is rsv known to cause long-term cough or other issues that need to be taken into consideration with her? I know it can be a very severe virus w/ babies and of course this would be even more so with a high-risk baby like one with cf.
 

hmw

New member
<div class="FTQUOTE"><begin quote>They have changed her antibiotics but she know has a cold and a nasty cough.</end quote></div>
As I am sure you already know, antibiotics won't prevent viral infections such as colds or influenza or any other number of bugs making the rounds this time of year.

Whether or not to treat staph with long-term abx is up for debate by some drs but our clinic, as well as many others, do not treat it unless it's causing active symptoms (and then it would be treated with a short-term abx, i.e. Bactrim, etc.) There is some evidence that leaving staph alone can result in culturing PA at a later age so I am more comfortable with our approach of only treating it when Emily is sick and she hasn't responded to the measures we initially take w/ her sick plan.

Chronic cough can also be caused by other issues (allergies, inflammation) and that should be investigated too, since if something else is going on antibiotics alone won't help.

These are just my thoughts on the matter... but they are completely non-professional thoughts. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Oh, one more question: is rsv known to cause long-term cough or other issues that need to be taken into consideration with her? I know it can be a very severe virus w/ babies and of course this would be even more so with a high-risk baby like one with cf.
 

hmw

New member
<div class="FTQUOTE"><begin quote>They have changed her antibiotics but she know has a cold and a nasty cough.</end quote></div>
As I am sure you already know, antibiotics won't prevent viral infections such as colds or influenza or any other number of bugs making the rounds this time of year.

Whether or not to treat staph with long-term abx is up for debate by some drs but our clinic, as well as many others, do not treat it unless it's causing active symptoms (and then it would be treated with a short-term abx, i.e. Bactrim, etc.) There is some evidence that leaving staph alone can result in culturing PA at a later age so I am more comfortable with our approach of only treating it when Emily is sick and she hasn't responded to the measures we initially take w/ her sick plan.

Chronic cough can also be caused by other issues (allergies, inflammation) and that should be investigated too, since if something else is going on antibiotics alone won't help.

These are just my thoughts on the matter... but they are completely non-professional thoughts. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Oh, one more question: is rsv known to cause long-term cough or other issues that need to be taken into consideration with her? I know it can be a very severe virus w/ babies and of course this would be even more so with a high-risk baby like one with cf.
 

hmw

New member
<div class="FTQUOTE"><begin quote>They have changed her antibiotics but she know has a cold and a nasty cough.</end quote>
As I am sure you already know, antibiotics won't prevent viral infections such as colds or influenza or any other number of bugs making the rounds this time of year.

Whether or not to treat staph with long-term abx is up for debate by some drs but our clinic, as well as many others, do not treat it unless it's causing active symptoms (and then it would be treated with a short-term abx, i.e. Bactrim, etc.) There is some evidence that leaving staph alone can result in culturing PA at a later age so I am more comfortable with our approach of only treating it when Emily is sick and she hasn't responded to the measures we initially take w/ her sick plan.

Chronic cough can also be caused by other issues (allergies, inflammation) and that should be investigated too, since if something else is going on antibiotics alone won't help.

These are just my thoughts on the matter... but they are completely non-professional thoughts. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Oh, one more question: is rsv known to cause long-term cough or other issues that need to be taken into consideration with her? I know it can be a very severe virus w/ babies and of course this would be even more so with a high-risk baby like one with cf.
 

hmw

New member
<div class="FTQUOTE"><begin quote>They have changed her antibiotics but she know has a cold and a nasty cough.</end quote>
<br />As I am sure you already know, antibiotics won't prevent viral infections such as colds or influenza or any other number of bugs making the rounds this time of year.
<br />
<br />Whether or not to treat staph with long-term abx is up for debate by some drs but our clinic, as well as many others, do not treat it unless it's causing active symptoms (and then it would be treated with a short-term abx, i.e. Bactrim, etc.) There is some evidence that leaving staph alone can result in culturing PA at a later age so I am more comfortable with our approach of only treating it when Emily is sick and she hasn't responded to the measures we initially take w/ her sick plan.
<br />
<br />Chronic cough can also be caused by other issues (allergies, inflammation) and that should be investigated too, since if something else is going on antibiotics alone won't help.
<br />
<br />These are just my thoughts on the matter... but they are completely non-professional thoughts. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
<br />
<br />Oh, one more question: is rsv known to cause long-term cough or other issues that need to be taken into consideration with her? I know it can be a very severe virus w/ babies and of course this would be even more so with a high-risk baby like one with cf.
 
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