just crash landed here

[corroder]

Hi folks,just posting to say salutations to all.Kind of at odds
about  joining up here cause i feel like i'm somehow giving in
to my condition by calling attention to it in a forum.Even though
its one for people with,still feel weird.Anyway,i'm 33,male,still
all original parts.I've lived most of my life in relative health
till the last 3 years or so.I had a few stomach surgeries for
abdominal adhesions that seem to have sparked a fire in the beast
and it's been making up for lost time.I've had to quit work and go
on s.s.i. in 2004 after a bad lung infection(month and a half in
the hosp.,tracheotomy,i.c.u,whole shebang<img src="i/expressions/face-icon-small-happy.gif" border="0">) So i've been
trying to adjust to being at home all the time and living on a ssi
budget without being all whiney about it.<img src="i/expressions/face-icon-small-blush.gif" border="0">.Not a real treat.I
never really had reason before all this to do continuos doctor
visits so now i'm dealing with trying to find someone who knows
what the heck they are talking about besides telling me i'm in sad
shape.My sister was born with it and she had it worse than i did
growing up so she went thru all the specialists in the area.My Dad
wound up running most of them off cause they made him mad at some
point or other.She passed on a few years ago so he is pretty much
done with going to the hospital and i feel horrible that i may have
to put him and everyone else through all of that again.Again,i
feel odd speaking of my woes cause,ya know,ya all got em.and there
are tons of people out there worse off than i. Just starting
somewhere. <br>
            I've
learned so much more reading things from people on this board than
anyplace else so i will keep tabs here and maybe query a few things
of you from time to time.Lots of inspirations as well and i salute
you all<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[Scarlett81]

welcome!
I know what you mean about "giving" in to cf by joining here. I thought the same thing. I kinda have just begun to realize I've been in denial for a long time.....but actually the site helped. I'm facing my illness for what it really is for the first time. And trying to stay positive, but taking care of myself the way I should be. Partly b/c of being on the site.
You'll get alot of different opinions, and occasionally some crazy topics, but you'll also meet some great people. Look forward to getting to know you more in the future!<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[julie]

I love it... crash landed here.

Welcome to the site. I'm sorry to hear about your tough times in the past few years. I hope you find friendship and everything else you might be seeking-on this site.

Hope to see you around!

 

[thelizardqueen]

Welcome to the site! I know how you feel about "giving in". That's how I first felt when I joined up here, but I've found more inspiration here to stay healthy then anything else. Its tough that you've been through so much, but hopefully now that you're here, you'll find a lot of support and advice!

 

[CowTown]

Welcome, welcome. I found myself never ever having searched for CF groups or others to talk to before now either. The most important thing I have realized that I'm finding here (like Liz said) has been inspiration and wanting to stay healthy more than before. I don't know why that is, but I feel it's so true. For some reason this whole "group support" thing has turned out to be very helpful for me, and I do hope you find what you are looking for too! It sucks to have the down times and come to realizations that aren't so jolly, but you know.....we're pretty much all in the same boat too.

Hope you start feeling better!

 

[NoExcuses]

.

 

[corroder]

thanks for all the welcomes guys!!Hope you are all doing well,i've
had a bit of a morning as i was bad and went to denny's last night
for a big ol' breakfast of eggs and hash browns and pancakes and
syrup.I don't usually go out to eat much anymore and thrown in the
whole diabetic label<img src="i/expressions/face-icon-small-frown.gif" border="0">well....the bathroom got much attention
as did my bed.Things seem to have worked themselves out of the
system so we are back to feeling meh again.How the heck is someone
supposed to gain weight if they can't eat that many carbs on top of
the rest of it?It is a conundrum to me.

 

[thelizardqueen]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>corroder</b></i>

How the heck is someone
supposed to gain weight if they can't eat that many carbs on top of
the rest of it?It is a conundrum to me.</end quote></div>

People with CFRD can eat all the carbs they want, so long as they take enough insulin for everything. I've cut sugar out of my diet, but my carb intake is way high in order to keep my weight on.

 

[corroder]

yeah,but they don't have me on insulin yet,just advandia and
glucotrol.

 

[littlemisssilly]

Hello there!!<br>
<br>
Welcome! I don't feel like I'm the new baby of the group anymore !
<img src="i/expressions/face-icon-small-tongue.gif" border="0"> (I only got the courage to log on last week after months and
months of following this site.... talk about procrastinating).
 <br>
<br>
Sorry to hear that you have had troubles with your health. I too
was diagnosed with CFRD (years ago) and thought it would be
impossible to gain weight and manage the whole carb intake thing
and weight. My treating team put me on insulin straight away
because insulin itself encourages weight gain and also because a CF
diet should never be restricted. It was news that I didn't want to
hear at the time, but looking back on it, it was the best
choice.<br>
<br>
It would be a good idea to get really familiar with high and low
glycaemic index foods (you guys might spell it differently in the
US) I found this really helped me in terms of glucose control
whilst still enjoying regular foods eg lucky for us, foods which
are high in fat have almost always a low glycaemic index
because the fat slows the rate at which glucose is absorbed into
the body. Also, high protein foods are great for putting on weight
without worrying about having a too high carbohydrate intake eg
avocados, nuts, lean meats chickens .. blah blah blah. Cheese is
great also (if you can tolerate it). There's even a recipe on this
site somewhere for marijuana brownie (the diabetic version)!<br>
<br>

 

[janjoe]

hello and welcome to you! this site is such a boon to anyone who
feels that a trouble shared is a trouble halved. it certainly works
for me<img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0"> sorry i have too much time on my
hands!!!!!!!!!!!!!!!!

 

[JazzysMom]

Welcome, welcome. I originally joined in 2000 when my whole world changed. My health status went to hell & I had to quit work. For the first time I thought it might be a good idea to discuss things with other CFers. Before that I always thought I had nothing to discuss since I was "different" from "those" CF patients. As my health returned to normal or closer to it then in 2000 I backed off from the forums. Last year when my health went back down, I once again turned to the forum. I havent left since. I have found true friendship. Not just a place to whine about my problems, but a place to share my joys also. I share my experiences, opinions, good days & bad. Everyone here is definitely my extended family! I am happy to have someone new in that mix.

 

[skh]

Welcome! I hope you gain as much from this site as I have.

Sue

 

[Diane]

Welcome to the site. Im sorry you have been having problems healthwise, but knowing you arent alone might help somewhat. We all go thru our tough times here and help each other when we can. cf related diabetes can be a challenge, but once you start getting the hang of things and how certain foods affect your blood sugars you will start doing better with it. Sounds like you may need insulin.

 

[Ryleigh]

Welcome! This a great site because everyone else has problems like
you do!!!!!

 

[JustDucky]

Welcome!!! I am also sorry you haven't been well, you have joined a good group...just watch out for Sean LOL! But seriously, don't be afraid to vent or ask questions, I have found everyone to be helpful when I do, I am confident they will be there for you too!! Again, hugs and welcome...Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0"> 34 CF w/cepacia, vent dependent