Just for fun but CF related - Real things doctors have said to me in the hospital

CFkitty

New member
I have a new one! I hope that you enjoy it! This is conversations I've had with actual Adults.

http://www.xtranormal.com/watch/12959645/conversations-about-cystic-fibrosis
 

CFkitty

New member
I have a new one! I hope that you enjoy it! This is conversations I've had with actual Adults.

http://www.xtranormal.com/watch/12959645/conversations-about-cystic-fibrosis
 

anien2

New member
Please, tell me you didnt have that conversation!! thats cruel!!! I am glad she didnt chatted with me, she would be dead and I would be in prison!!!
 

anien2

New member
Please, tell me you didnt have that conversation!! thats cruel!!! I am glad she didnt chatted with me, she would be dead and I would be in prison!!!
 

Anomie

New member
This is a little bit different and don't get me wrong; I really like this doctor because he is compassionate yet realistic and always takes the time to answer all of our questions but he's just kinda clumsy! At our last appointment he walked into our room and was like hello.. oops sorry I'm in the wrong room then turned around and walked out. Then at our appointment today my girlfriend's sister showed up with some cupcakes and had them sitting on the desk next to the computer. When we asked the doctor to discuss the results of our daughter's ct scan with us he whipped around to the computer and knocked the entire box of cupcakes on the floor. He goes I think they'll still be alright to eat all with frosting on his hands and arms! lol! i'm just glad this guy's not a surgeon!! j/k
 

Anomie

New member
This is a little bit different and don't get me wrong; I really like this doctor because he is compassionate yet realistic and always takes the time to answer all of our questions but he's just kinda clumsy! At our last appointment he walked into our room and was like hello.. oops sorry I'm in the wrong room then turned around and walked out. Then at our appointment today my girlfriend's sister showed up with some cupcakes and had them sitting on the desk next to the computer. When we asked the doctor to discuss the results of our daughter's ct scan with us he whipped around to the computer and knocked the entire box of cupcakes on the floor. He goes I think they'll still be alright to eat all with frosting on his hands and arms! lol! i'm just glad this guy's not a surgeon!! j/k
 

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anien2</b></i> Please, tell me you didnt have that conversation!! thats cruel!!! I am glad she didnt chatted with me, she would be dead and I would be in prison!!!</end quote>

It was actually based on conversations with two or three different people, but for the sake of making a cute video, I put them all together. But, yes, everything that the characters said was actually said to me!
 

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anien2</b></i> Please, tell me you didnt have that conversation!! thats cruel!!! I am glad she didnt chatted with me, she would be dead and I would be in prison!!!</end quote>

It was actually based on conversations with two or three different people, but for the sake of making a cute video, I put them all together. But, yes, everything that the characters said was actually said to me!
 

rubyroselee

New member
I took my newborn son to the pediatrician's office for the first time back in 2008. They had some paperwork for his family history, etc. The M.D. browsed the paperwork and saw CF positive for me and said, "Oh, you're a CF carrier then?"
I said, "No, I have CF. So I know that my son is a carrier."
She said, "Well, he's not necessarily a carrier because he may have gotten your non-CF gene."
I said, "No, actually, he *did* get a gene from me because I have 2 of them - because I have CF."
She said, "You can't have CF - you're too big."

OMG!!! I know that I'm a little overweight and tall, but geez!

So that conversation was completely unproductive and to this day I don't think she understands that I have CF. I had brought up having my son tested for CF back in 2010 because I he had continuous bronchitis/pneumonia that winter and I was a bit concerned. She would not test him for CF because she didn't think it was necessary. I think she still had it in her head that it wasn't really possible. Some doctors!
 

rubyroselee

New member
I took my newborn son to the pediatrician's office for the first time back in 2008. They had some paperwork for his family history, etc. The M.D. browsed the paperwork and saw CF positive for me and said, "Oh, you're a CF carrier then?"
I said, "No, I have CF. So I know that my son is a carrier."
She said, "Well, he's not necessarily a carrier because he may have gotten your non-CF gene."
I said, "No, actually, he *did* get a gene from me because I have 2 of them - because I have CF."
She said, "You can't have CF - you're too big."

OMG!!! I know that I'm a little overweight and tall, but geez!

So that conversation was completely unproductive and to this day I don't think she understands that I have CF. I had brought up having my son tested for CF back in 2010 because I he had continuous bronchitis/pneumonia that winter and I was a bit concerned. She would not test him for CF because she didn't think it was necessary. I think she still had it in her head that it wasn't really possible. Some doctors!
 

Printer

Active member
I am continually amazed at how little non-Cf Doctors know about CF. I shouldn't feel this way since it has been an issue with me since i was dx. I had a Doctor tell ne that I should be on a non fat diet.

Bill
 

Printer

Active member
I am continually amazed at how little non-Cf Doctors know about CF. I shouldn't feel this way since it has been an issue with me since i was dx. I had a Doctor tell ne that I should be on a non fat diet.

Bill
 

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>urmysunshine54</b></i> I was diagnosed 2 1/2 weeks ago with CF the at the age of 57, after a sweat test. Went to talk to a therapist when I was first diagnosed - he told me that it was impossible to be dx at my age...so I walked out. I spent hours today in a cf clinic. I found myself wide-eyed, and just nodding a lot and agreeing to everything i need to do - and got home when it really hit me and felt truly overwhelmed. Checked my voicemail - there was a message waiting for me from the same guy - saying he double checked with a reputable doc, and I don't have CF<img src=""> THANK GOODNESS<img src="">!</end quote>
????? Good for you?? wrong thread buddy.
 

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>urmysunshine54</b></i> I was diagnosed 2 1/2 weeks ago with CF the at the age of 57, after a sweat test. Went to talk to a therapist when I was first diagnosed - he told me that it was impossible to be dx at my age...so I walked out. I spent hours today in a cf clinic. I found myself wide-eyed, and just nodding a lot and agreeing to everything i need to do - and got home when it really hit me and felt truly overwhelmed. Checked my voicemail - there was a message waiting for me from the same guy - saying he double checked with a reputable doc, and I don't have CF<img src=""> THANK GOODNESS<img src="">!</end quote>
????? Good for you?? wrong thread buddy.
 

Melissa75

Administrator
I think you've gotta read urmysunshine54's post with a sarcastic tone, and that the message was from the therapist, not a CF doc. So after an overwhelming clinic appt, the poster came home to find the bozo therapist's message insisting the poster didn't have CF...sarcastic-relief and not true.

:)
 

Melissa75

Administrator
I think you've gotta read urmysunshine54's post with a sarcastic tone, and that the message was from the therapist, not a CF doc. So after an overwhelming clinic appt, the poster came home to find the bozo therapist's message insisting the poster didn't have CF...sarcastic-relief and not true.

:)
 
U

urmysunshine54

Guest
Melissa - Thank you for clarifying my post - you've got it exactly right.
 
U

urmysunshine54

Guest
Melissa - Thank you for clarifying my post - you've got it exactly right.
 

anien2

New member
I got a good one this morning. We had an appointment with a social worker in order to find out if we can apply for a subsidy, we had to take the kids to the appointment, both CFers, the girl is 3 yo and the boy is 1 yo... anyways, we showed her all the documentation, while she was reading it our girl was painting a spongebob in a paper and the boy was bitting a toy, both in front of her. All of the sudden the social worker looks at us and this was the conversation:
-So, your kids have cystic fibrosis?
-Yes
-Both of them?
-Yes
-Are they twins?
-......(are you blind or something?)(where is the hidden camera?)(did you pay attention to what you were reading?)(have you been told that twins usually are born at the same time and these two kids in front of you are 1 and 3 years old?) I was still thinking what to answer when my wife just said "no"
-Oh my god!! and what are the chances for a couple that already have a kid with CF to have another with this same disease?? like one in a million????


At least we got the subsidy.
 

anien2

New member
I got a good one this morning. We had an appointment with a social worker in order to find out if we can apply for a subsidy, we had to take the kids to the appointment, both CFers, the girl is 3 yo and the boy is 1 yo... anyways, we showed her all the documentation, while she was reading it our girl was painting a spongebob in a paper and the boy was bitting a toy, both in front of her. All of the sudden the social worker looks at us and this was the conversation:
-So, your kids have cystic fibrosis?
-Yes
-Both of them?
-Yes
-Are they twins?
-......(are you blind or something?)(where is the hidden camera?)(did you pay attention to what you were reading?)(have you been told that twins usually are born at the same time and these two kids in front of you are 1 and 3 years old?) I was still thinking what to answer when my wife just said "no"
-Oh my god!! and what are the chances for a couple that already have a kid with CF to have another with this same disease?? like one in a million????


At least we got the subsidy.
 
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