Just found out our little girl has CF

kitomd21

New member
HI Jeff - Welcome to a site that can answer all of your questions...with more than one solution available at times! We were where you are just five months ago...I'm certain I've posted and received answers to much of what you may be thinking/worrying about right now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please feel free to PM or email...KitomD21@aol.com.
 

kitomd21

New member
HI Jeff - Welcome to a site that can answer all of your questions...with more than one solution available at times! We were where you are just five months ago...I'm certain I've posted and received answers to much of what you may be thinking/worrying about right now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please feel free to PM or email...KitomD21@aol.com.
 

kitomd21

New member
HI Jeff - Welcome to a site that can answer all of your questions...with more than one solution available at times! We were where you are just five months ago...I'm certain I've posted and received answers to much of what you may be thinking/worrying about right now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please feel free to PM or email...KitomD21@aol.com.
 

kitomd21

New member
HI Jeff - Welcome to a site that can answer all of your questions...with more than one solution available at times! We were where you are just five months ago...I'm certain I've posted and received answers to much of what you may be thinking/worrying about right now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please feel free to PM or email...KitomD21@aol.com.
 

kitomd21

New member
HI Jeff - Welcome to a site that can answer all of your questions...with more than one solution available at times! We were where you are just five months ago...I'm certain I've posted and received answers to much of what you may be thinking/worrying about right now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please feel free to PM or email...KitomD21@aol.com.
 

Stagerj

New member
Thanks for all of the kind words. Things are starting to calm down a little and its now time to learn as much as possible.

If anyone has suggestions for things we should ask at the CF center we would greatly appreciate it.

Thanks
Jeff
 

Stagerj

New member
Thanks for all of the kind words. Things are starting to calm down a little and its now time to learn as much as possible.

If anyone has suggestions for things we should ask at the CF center we would greatly appreciate it.

Thanks
Jeff
 

Stagerj

New member
Thanks for all of the kind words. Things are starting to calm down a little and its now time to learn as much as possible.

If anyone has suggestions for things we should ask at the CF center we would greatly appreciate it.

Thanks
Jeff
 

Stagerj

New member
Thanks for all of the kind words. Things are starting to calm down a little and its now time to learn as much as possible.

If anyone has suggestions for things we should ask at the CF center we would greatly appreciate it.

Thanks
Jeff
 

Stagerj

New member
Thanks for all of the kind words. Things are starting to calm down a little and its now time to learn as much as possible.
<br />
<br />If anyone has suggestions for things we should ask at the CF center we would greatly appreciate it.
<br />
<br />Thanks
<br />Jeff
 

sdavis227

New member
Hi Jeff.

Ditto to what most people here have said. Even though we all would rather not have to be here, this is a great way to find support and answers to questions that you might have. Welcome.

Many people have said to write down some questions that you have for when you go to the CF Center. Also, you might want to make sure to bring a paper and pen so that you can write down more questions as you have them and any info that you find important.

Some questions you might want to ask are:
Will she need enzymes?
What is the best thing I can do right now to help her health in the future?
How do I do CPT?
What kind of approach do you (as a clinic/doctor) use with CF? Is it more of a "wait and see" or more of a pro-active approach.


I'm sure that you will have many more questions than this, but these are a few that we remember having.


As Liza said, remember that she is still your little girl. If she is your first baby, treat her with all the love that you would had she not had CF. Yes, she has CF, but first and foremost, she is your child.
 

sdavis227

New member
Hi Jeff.

Ditto to what most people here have said. Even though we all would rather not have to be here, this is a great way to find support and answers to questions that you might have. Welcome.

Many people have said to write down some questions that you have for when you go to the CF Center. Also, you might want to make sure to bring a paper and pen so that you can write down more questions as you have them and any info that you find important.

Some questions you might want to ask are:
Will she need enzymes?
What is the best thing I can do right now to help her health in the future?
How do I do CPT?
What kind of approach do you (as a clinic/doctor) use with CF? Is it more of a "wait and see" or more of a pro-active approach.


I'm sure that you will have many more questions than this, but these are a few that we remember having.


As Liza said, remember that she is still your little girl. If she is your first baby, treat her with all the love that you would had she not had CF. Yes, she has CF, but first and foremost, she is your child.
 

sdavis227

New member
Hi Jeff.

Ditto to what most people here have said. Even though we all would rather not have to be here, this is a great way to find support and answers to questions that you might have. Welcome.

Many people have said to write down some questions that you have for when you go to the CF Center. Also, you might want to make sure to bring a paper and pen so that you can write down more questions as you have them and any info that you find important.

Some questions you might want to ask are:
Will she need enzymes?
What is the best thing I can do right now to help her health in the future?
How do I do CPT?
What kind of approach do you (as a clinic/doctor) use with CF? Is it more of a "wait and see" or more of a pro-active approach.


I'm sure that you will have many more questions than this, but these are a few that we remember having.


As Liza said, remember that she is still your little girl. If she is your first baby, treat her with all the love that you would had she not had CF. Yes, she has CF, but first and foremost, she is your child.
 

sdavis227

New member
Hi Jeff.

Ditto to what most people here have said. Even though we all would rather not have to be here, this is a great way to find support and answers to questions that you might have. Welcome.

Many people have said to write down some questions that you have for when you go to the CF Center. Also, you might want to make sure to bring a paper and pen so that you can write down more questions as you have them and any info that you find important.

Some questions you might want to ask are:
Will she need enzymes?
What is the best thing I can do right now to help her health in the future?
How do I do CPT?
What kind of approach do you (as a clinic/doctor) use with CF? Is it more of a "wait and see" or more of a pro-active approach.


I'm sure that you will have many more questions than this, but these are a few that we remember having.


As Liza said, remember that she is still your little girl. If she is your first baby, treat her with all the love that you would had she not had CF. Yes, she has CF, but first and foremost, she is your child.
 

sdavis227

New member
Hi Jeff.
<br />
<br />Ditto to what most people here have said. Even though we all would rather not have to be here, this is a great way to find support and answers to questions that you might have. Welcome.
<br />
<br />Many people have said to write down some questions that you have for when you go to the CF Center. Also, you might want to make sure to bring a paper and pen so that you can write down more questions as you have them and any info that you find important.
<br />
<br />Some questions you might want to ask are:
<br />Will she need enzymes?
<br />What is the best thing I can do right now to help her health in the future?
<br />How do I do CPT?
<br />What kind of approach do you (as a clinic/doctor) use with CF? Is it more of a "wait and see" or more of a pro-active approach.
<br />
<br />
<br />I'm sure that you will have many more questions than this, but these are a few that we remember having.
<br />
<br />
<br />As Liza said, remember that she is still your little girl. If she is your first baby, treat her with all the love that you would had she not had CF. Yes, she has CF, but first and foremost, she is your child.
 

Ratatosk

Administrator
Staff member
I always bring along a list of questions AND a notebook.

Sometimes if we get on a different topic, I might forget what I was going to ask or as our son got a little more active, we'd get a bit distracted during the appointments. One of us would answer questions while the other kept DS occupied.
 

Ratatosk

Administrator
Staff member
I always bring along a list of questions AND a notebook.

Sometimes if we get on a different topic, I might forget what I was going to ask or as our son got a little more active, we'd get a bit distracted during the appointments. One of us would answer questions while the other kept DS occupied.
 

Ratatosk

Administrator
Staff member
I always bring along a list of questions AND a notebook.

Sometimes if we get on a different topic, I might forget what I was going to ask or as our son got a little more active, we'd get a bit distracted during the appointments. One of us would answer questions while the other kept DS occupied.
 

Ratatosk

Administrator
Staff member
I always bring along a list of questions AND a notebook.

Sometimes if we get on a different topic, I might forget what I was going to ask or as our son got a little more active, we'd get a bit distracted during the appointments. One of us would answer questions while the other kept DS occupied.
 

Ratatosk

Administrator
Staff member
I always bring along a list of questions AND a notebook.
<br />
<br />Sometimes if we get on a different topic, I might forget what I was going to ask or as our son got a little more active, we'd get a bit distracted during the appointments. One of us would answer questions while the other kept DS occupied.
 
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