Just got SSI... questions

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entropy

Guest
Thank you for all the information Julie... it really clarified a lot (if not all) of the questions I had <img src="i/expressions/face-icon-small-smile.gif" border="0"> Yeah, I knew I didn't have the work requirements for SSDI so I didn't apply for it. Now that I know I can, when I feel healthy enough I'm going to take the SAT and apply to colleges, thanks again! You're a very great asset to this community and you have my sincere respect and gratitude.

@MikeInMT

Yeah it does seem that they like to keep people dependent on SSI at poverty income levels... I'm a pretty hardcore socialist but my views have relaxed somewhat now that I've been accepted for SSI. I was pretty bitter for a while because my sister couldn't get SSI or healthcare and that was one of the main reasons why she passed away so young. I do feel that people with CF should be able to get SSI/health insurance freely... there are some disorders that automatically qualify certain people for SSI that aren't necessarily debilitating... I knew a guy who had "chronic athletes foot" who was given SSI for it.

Anyway, thanks for all the help guys!
 
E

entropy

Guest
Thank you for all the information Julie... it really clarified a lot (if not all) of the questions I had <img src="i/expressions/face-icon-small-smile.gif" border="0"> Yeah, I knew I didn't have the work requirements for SSDI so I didn't apply for it. Now that I know I can, when I feel healthy enough I'm going to take the SAT and apply to colleges, thanks again! You're a very great asset to this community and you have my sincere respect and gratitude.
<br />
<br />@MikeInMT
<br />
<br />Yeah it does seem that they like to keep people dependent on SSI at poverty income levels... I'm a pretty hardcore socialist but my views have relaxed somewhat now that I've been accepted for SSI. I was pretty bitter for a while because my sister couldn't get SSI or healthcare and that was one of the main reasons why she passed away so young. I do feel that people with CF should be able to get SSI/health insurance freely... there are some disorders that automatically qualify certain people for SSI that aren't necessarily debilitating... I knew a guy who had "chronic athletes foot" who was given SSI for it.
<br />
<br />Anyway, thanks for all the help guys!
 
J

julie

New member
Glad I could help! If you stumble upon any other questions, feel free to contact me at services@dafcf.org

MikeInMT, are you on SSDI, or SSI, or both? Just want to make sure you've been given the correct info on working, based on which program you are on
 
J

julie

New member
Glad I could help! If you stumble upon any other questions, feel free to contact me at services@dafcf.org

MikeInMT, are you on SSDI, or SSI, or both? Just want to make sure you've been given the correct info on working, based on which program you are on
 
J

julie

New member
Glad I could help! If you stumble upon any other questions, feel free to contact me at services@dafcf.org
<br />
<br />MikeInMT, are you on SSDI, or SSI, or both? Just want to make sure you've been given the correct info on working, based on which program you are on
 
M

MikeInMT

New member
I started on SSI. I went with the work program, but they failed to inform me the limit on what I can make included the monthly check. It also was not take home pay. so long story short I went way over the cap for about 2 years. They cut me off SSI and switched me to SSDI. Since that incident 3 years ago I have had nothing but trouble with MT medicaid covering meds. Some months my tobi and pulmazine were 100% covered some months not. I have stopped working about 4 months ago because I need the insurance more then I need the extra money.
 
M

MikeInMT

New member
I started on SSI. I went with the work program, but they failed to inform me the limit on what I can make included the monthly check. It also was not take home pay. so long story short I went way over the cap for about 2 years. They cut me off SSI and switched me to SSDI. Since that incident 3 years ago I have had nothing but trouble with MT medicaid covering meds. Some months my tobi and pulmazine were 100% covered some months not. I have stopped working about 4 months ago because I need the insurance more then I need the extra money.
 
M

MikeInMT

New member
I started on SSI. I went with the work program, but they failed to inform me the limit on what I can make included the monthly check. It also was not take home pay. so long story short I went way over the cap for about 2 years. They cut me off SSI and switched me to SSDI. Since that incident 3 years ago I have had nothing but trouble with MT medicaid covering meds. Some months my tobi and pulmazine were 100% covered some months not. I have stopped working about 4 months ago because I need the insurance more then I need the extra money.
 
J

julie

New member
So you are on SSDI now, right? Which you have been on for 3 years now? So are you getting medicare with your SSDI?

Was the medicaid problem because you had SSDI income, and income from work, so some months you were going over the limit for the medicaid coverage?

Just trying to make sure you aren't getting a raw deal here with the info you've been given. Sounds rather convoluted and possibly inaccurate... maybe email me services@dafcf.org so I can ask some more specific questions (only if your inclined, of course)
 
J

julie

New member
So you are on SSDI now, right? Which you have been on for 3 years now? So are you getting medicare with your SSDI?

Was the medicaid problem because you had SSDI income, and income from work, so some months you were going over the limit for the medicaid coverage?

Just trying to make sure you aren't getting a raw deal here with the info you've been given. Sounds rather convoluted and possibly inaccurate... maybe email me services@dafcf.org so I can ask some more specific questions (only if your inclined, of course)
 
J

julie

New member
So you are on SSDI now, right? Which you have been on for 3 years now? So are you getting medicare with your SSDI?
<br />
<br />Was the medicaid problem because you had SSDI income, and income from work, so some months you were going over the limit for the medicaid coverage?
<br />
<br />Just trying to make sure you aren't getting a raw deal here with the info you've been given. Sounds rather convoluted and possibly inaccurate... maybe email me services@dafcf.org so I can ask some more specific questions (only if your inclined, of course)
 
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