Creon - it can take a bit of time to get dosage matched to food and body chemistry, but if your baby is gaining weight and not constantly wallowing in poo you probably don't need to be overly fretful about being patient.
Zantac/prevacid - affect stomach pH, which in turn affects the activity of the enzymes being taken. A blocked pancrease means enzymes and also bicarbonate are being blocked so the stomach pH can be off kilter. My son took zantac mostly because he had horrible reflux (could not lay down or his milk/food just ran out); now he takes prevacid. His enzymes definitely work better with than without the prevacid.
Synagis - our son's CF doctor was quite insistent that we should get the synagis for as many years as insurance would pay it; she had to write a letter for the pediatrician to get it approved because it's several thousand for the round of shots. Just reading the posters for RSV in the ped's office makes me baffled that there's be a CF doctor not in favor of it for a CF baby. You should probably push back on that one. Maybe the CFF.org website has something about it to bolster your argument.
Applesauce - we've always avoided any food battles because we don't want to make it a battle ground given how important it is for good calorie intake w/CF (notice I did not say good "nutrition" - chicken nuggets and hamburgers are his current favorite foods). My son actually liked the taste of all the wierd and foul-smelling stuff we gave him - but whenever he got bored and stopped wanting something we just looked for something else. Instead of applesauce, you can use ice cream, other baby fruits, baby yogurt, nothing, softcooked eggs - all of which my boy has liked at one time or another. Don't sweat that it's not compatible with the enzymes according to the Dr - just don't leave the enzymes soaking in the stuff; mix it up just before you shovel it in. good luck
Zantac/prevacid - affect stomach pH, which in turn affects the activity of the enzymes being taken. A blocked pancrease means enzymes and also bicarbonate are being blocked so the stomach pH can be off kilter. My son took zantac mostly because he had horrible reflux (could not lay down or his milk/food just ran out); now he takes prevacid. His enzymes definitely work better with than without the prevacid.
Synagis - our son's CF doctor was quite insistent that we should get the synagis for as many years as insurance would pay it; she had to write a letter for the pediatrician to get it approved because it's several thousand for the round of shots. Just reading the posters for RSV in the ped's office makes me baffled that there's be a CF doctor not in favor of it for a CF baby. You should probably push back on that one. Maybe the CFF.org website has something about it to bolster your argument.
Applesauce - we've always avoided any food battles because we don't want to make it a battle ground given how important it is for good calorie intake w/CF (notice I did not say good "nutrition" - chicken nuggets and hamburgers are his current favorite foods). My son actually liked the taste of all the wierd and foul-smelling stuff we gave him - but whenever he got bored and stopped wanting something we just looked for something else. Instead of applesauce, you can use ice cream, other baby fruits, baby yogurt, nothing, softcooked eggs - all of which my boy has liked at one time or another. Don't sweat that it's not compatible with the enzymes according to the Dr - just don't leave the enzymes soaking in the stuff; mix it up just before you shovel it in. good luck