Just joing....with lots & lots of ???'s

[ktsmom]

I'm glad to hear you have another choice for your CF care, in the hopes you find a higher comfort level. We are very happy with ours. We see a pediatric pulmonologist that used to practice with the accredited center in our city. We were referred to him, but he told us on our first visit who our other CF care options in the city were. He calls me himself with all of our daughter's test and culture results. When her first culture came back positive for PA, he left messages at home and work before he finally got me on my cell. We were in his office the next day and got nebs and scripts, etc.

I see levels of care all over the place in what I read on this forum. I have inferred through other posts that our doc is what I would call "aggressive" in his treatment approach. We do not currently see a gastro or any other specialists because our pulmo seems to be able to handle everything, but again he has a background of practicing with a cf center.

As others have said, the prevacid makes a huge difference in our daughter's digestive issues. She is double DF508 as well. I don't know about it 'suddenly' going from okay to bad, as far as symptoms. I thought it would be fairly gradual. Our daughter takes creon, prevacid, and vitamax; zithro 3x week, pulmozyne 1x day, TOBI 2x day 28 on/off, cipro, the Vest 2x day (all prescribed after the PA culture; we are about to come off the cipro), ursodiol (liver function). I realize he didn't prescribe any lung treatments until after the PA culture, but I also think he was trying to bring us along gradually, if that makes any sense. So I don't know what type of preventive measures for lungs he would have had us do without the positive culture.

I don't know why others have had so many more complications than we have had so far; I live everyday assuming it is really just a matter of time. Don't get me wrong, though; I stay positive mostly and enjoy my kids.

Congratulations to you for your super research. You sound like you are really on top of everything and doing a great job managing all of this. Sorry, this was a typical long post by me. Welcome to the site.

Dana
Mom to Katy (3, cf) and Kyra (6, no cf)

 

[ktsmom]

I'm glad to hear you have another choice for your CF care, in the hopes you find a higher comfort level. We are very happy with ours. We see a pediatric pulmonologist that used to practice with the accredited center in our city. We were referred to him, but he told us on our first visit who our other CF care options in the city were. He calls me himself with all of our daughter's test and culture results. When her first culture came back positive for PA, he left messages at home and work before he finally got me on my cell. We were in his office the next day and got nebs and scripts, etc.

I see levels of care all over the place in what I read on this forum. I have inferred through other posts that our doc is what I would call "aggressive" in his treatment approach. We do not currently see a gastro or any other specialists because our pulmo seems to be able to handle everything, but again he has a background of practicing with a cf center.

As others have said, the prevacid makes a huge difference in our daughter's digestive issues. She is double DF508 as well. I don't know about it 'suddenly' going from okay to bad, as far as symptoms. I thought it would be fairly gradual. Our daughter takes creon, prevacid, and vitamax; zithro 3x week, pulmozyne 1x day, TOBI 2x day 28 on/off, cipro, the Vest 2x day (all prescribed after the PA culture; we are about to come off the cipro), ursodiol (liver function). I realize he didn't prescribe any lung treatments until after the PA culture, but I also think he was trying to bring us along gradually, if that makes any sense. So I don't know what type of preventive measures for lungs he would have had us do without the positive culture.

I don't know why others have had so many more complications than we have had so far; I live everyday assuming it is really just a matter of time. Don't get me wrong, though; I stay positive mostly and enjoy my kids.

Congratulations to you for your super research. You sound like you are really on top of everything and doing a great job managing all of this. Sorry, this was a typical long post by me. Welcome to the site.

Dana
Mom to Katy (3, cf) and Kyra (6, no cf)

 

[mneville]

Hi Laura. We got the call when our son was 8 days old. He is also a Double Delta CFer. He was born in September and for the first two winters from October until April, he got the Syangis shots. Our CF doctor highly recommended it- I would push for it. Your son is not any more suseptible of acquiring RSV but if he does, he is more suseptible for it to be worse b/c of the inherent lung issues. RSV can cause permanent lung damage esp to those already compromised.

On a postive note, our son is now two and doing great. He wears the VEST an hour a day and uses three breathing treatments daily. He takes 4-5 Creons with each meal/snack and is adjusting quite well to his CF life. He is the joy of our lives. Enjoy your little one and push for the RSV shots!

Megan

 

[mneville]

Hi Laura. We got the call when our son was 8 days old. He is also a Double Delta CFer. He was born in September and for the first two winters from October until April, he got the Syangis shots. Our CF doctor highly recommended it- I would push for it. Your son is not any more suseptible of acquiring RSV but if he does, he is more suseptible for it to be worse b/c of the inherent lung issues. RSV can cause permanent lung damage esp to those already compromised.

On a postive note, our son is now two and doing great. He wears the VEST an hour a day and uses three breathing treatments daily. He takes 4-5 Creons with each meal/snack and is adjusting quite well to his CF life. He is the joy of our lives. Enjoy your little one and push for the RSV shots!

Megan

 

[mneville]

Hi Laura. We got the call when our son was 8 days old. He is also a Double Delta CFer. He was born in September and for the first two winters from October until April, he got the Syangis shots. Our CF doctor highly recommended it- I would push for it. Your son is not any more suseptible of acquiring RSV but if he does, he is more suseptible for it to be worse b/c of the inherent lung issues. RSV can cause permanent lung damage esp to those already compromised.

On a postive note, our son is now two and doing great. He wears the VEST an hour a day and uses three breathing treatments daily. He takes 4-5 Creons with each meal/snack and is adjusting quite well to his CF life. He is the joy of our lives. Enjoy your little one and push for the RSV shots!

Megan

 

[Mommafirst]

We didn't start anything at diagnosis. Since my daughter was "assymptomatic" as they put it they wanted to gradually get us into everything. that was 6 months ago, now she gets CPT 2x/day, after nebulized albuterol. She started ADEKS today. She's pancreatic sufficient, so no enzymes. She's been on several antibiotics/steroids for coughs, but we don't know if those were just kid viruses or CF issues. We use a CFF accredited center, and I have been very happy with their care.

Welcome to the site you never intended to have to join!! And congrats on your son!!

My second son (no CF) was born after a major placental abruption, like yours. It was a very very scary thing!!!! I'm glad it worked out ok.

 

[Mommafirst]

We didn't start anything at diagnosis. Since my daughter was "assymptomatic" as they put it they wanted to gradually get us into everything. that was 6 months ago, now she gets CPT 2x/day, after nebulized albuterol. She started ADEKS today. She's pancreatic sufficient, so no enzymes. She's been on several antibiotics/steroids for coughs, but we don't know if those were just kid viruses or CF issues. We use a CFF accredited center, and I have been very happy with their care.

Welcome to the site you never intended to have to join!! And congrats on your son!!

My second son (no CF) was born after a major placental abruption, like yours. It was a very very scary thing!!!! I'm glad it worked out ok.

 

[Mommafirst]

We didn't start anything at diagnosis. Since my daughter was "assymptomatic" as they put it they wanted to gradually get us into everything. that was 6 months ago, now she gets CPT 2x/day, after nebulized albuterol. She started ADEKS today. She's pancreatic sufficient, so no enzymes. She's been on several antibiotics/steroids for coughs, but we don't know if those were just kid viruses or CF issues. We use a CFF accredited center, and I have been very happy with their care.

Welcome to the site you never intended to have to join!! And congrats on your son!!

My second son (no CF) was born after a major placental abruption, like yours. It was a very very scary thing!!!! I'm glad it worked out ok.

 

[froggymama]

Laura,

Welcome. I'm new to the site too. Our 14 mo-old was diagnosed at 4 months because she was failure to thrive, and severly malnourished. We spent 3 weeks in the hospital. My husband and I were devastated and had to deal with the diagnosis while living at Children's Hospital. We had a rough start, but since then she has packed on some weight, and is totally healthy! The fact that you know now is so important!

I hope I can help with some advice I wish I had been given. Too bad I didn't know about this site!

Creon: We also started on a 1/2 cap of Creon 5. They started her slow because she was so malnourished, as to not send her little system into shock. As far as administering it, she was so little and couldn't swallow the applesauce. Instead, I took a large syringe (w/out the needle of course), placed the Creon in a small amount of Pedialyte, sucked the little pebbles into the syringe and squirted it into her mouth. It was the only way that worked. Now we use applesauce, and our nutritionist said it is important to use an acidic fruit so the enzyme does not break down before it reaches the intestine.

Addie's Meds: Vitamax (it's a great multivitamin), Pancrecarb and Creon Enzymes. Kids can outgrow their enzymes, and they have to be constantly adjusted, or atleast in our case. Pancrecarb does a better job of breaking down carbohydrates, and Creon is better at breaking down fat. So Addie takes 2 Pancrecarb and one Creon. Other vitamins include Zinc, Sodium Chloride (in the summer), Vitamin E, Iron (Ferrous Sulfate), Prevacid (an acid blocker than helps her enzymes do their job). She also takes a laxative (Glycolax) and Acidopholus for her tummy. In the morning, we nebulize Pulmozyme and Albuterol, and do percussion for about 10 minutes after. In the evening, we nebulize Albuterol and do percussion. The hospital gave us a little rubber "pounder" that makes it easier for babies. Every week, be sure to sterilize the equipment in boiling water, and blow excess water out of the tubing with the nebulizer.

RSV shot: Demand it! My friend's son had it twice. He does not have CF, but any kid with a chronic resp. disease should be immunized. The shot is once a month, and your CF doc should absolutely order it for you. Addie was five months old when she received her first dose. The RSV season is November - March.

Addie has (knock on wood) never had any respiratory issues, but our doc wants to be aggresive with breathing treatments. Her issues are digestive, (gas, acid reflux, tummy aches, malabsorption, constipation). It's not fun, but a lot of "normal" kids have the same issues, so oh well! <img src="i/expressions/face-icon-small-smile.gif" border="0">

We meet with our CF staff every 8 weeks. Sometimes they draw blood to check her vitamin levels, liver function, etc. They also do a throat swab to check for pseudomonis.

Our 3 weeks in the hospital taught us to be vigilant when it comes to your babe's health care! We have to call for our results, email the nurse, who then emails the doctor, who then tells a resident to call us, and then they talk to the doctor, and we finally get an answer. It's exhausting. But it sounds like you are doing a great job, and I understand how it is to feel ill prepared for this job as Dr. Mom.

Also, CF Cert. Clinics usually have social workers who can help with med. insurance, and asst. programs, should you qualify.

The most important advice I can give is this. CF is not the same disease it was 20 years ago, 10 years ago, 5 years ago. With the treatments, antibiotics, and drugs in the pipeline, I believe with all my heart, our babies will live to 100. In the midst of dealing with Insurance companies, doctors, treatments and meds, it is easy to lose your mind. The hope for a cure, and the enjoyment of my silly baby keeps me sane. Life for kids with CF will only get better. Good luck to you!

 

[froggymama]

Laura,

Welcome. I'm new to the site too. Our 14 mo-old was diagnosed at 4 months because she was failure to thrive, and severly malnourished. We spent 3 weeks in the hospital. My husband and I were devastated and had to deal with the diagnosis while living at Children's Hospital. We had a rough start, but since then she has packed on some weight, and is totally healthy! The fact that you know now is so important!

I hope I can help with some advice I wish I had been given. Too bad I didn't know about this site!

Creon: We also started on a 1/2 cap of Creon 5. They started her slow because she was so malnourished, as to not send her little system into shock. As far as administering it, she was so little and couldn't swallow the applesauce. Instead, I took a large syringe (w/out the needle of course), placed the Creon in a small amount of Pedialyte, sucked the little pebbles into the syringe and squirted it into her mouth. It was the only way that worked. Now we use applesauce, and our nutritionist said it is important to use an acidic fruit so the enzyme does not break down before it reaches the intestine.

Addie's Meds: Vitamax (it's a great multivitamin), Pancrecarb and Creon Enzymes. Kids can outgrow their enzymes, and they have to be constantly adjusted, or atleast in our case. Pancrecarb does a better job of breaking down carbohydrates, and Creon is better at breaking down fat. So Addie takes 2 Pancrecarb and one Creon. Other vitamins include Zinc, Sodium Chloride (in the summer), Vitamin E, Iron (Ferrous Sulfate), Prevacid (an acid blocker than helps her enzymes do their job). She also takes a laxative (Glycolax) and Acidopholus for her tummy. In the morning, we nebulize Pulmozyme and Albuterol, and do percussion for about 10 minutes after. In the evening, we nebulize Albuterol and do percussion. The hospital gave us a little rubber "pounder" that makes it easier for babies. Every week, be sure to sterilize the equipment in boiling water, and blow excess water out of the tubing with the nebulizer.

RSV shot: Demand it! My friend's son had it twice. He does not have CF, but any kid with a chronic resp. disease should be immunized. The shot is once a month, and your CF doc should absolutely order it for you. Addie was five months old when she received her first dose. The RSV season is November - March.

Addie has (knock on wood) never had any respiratory issues, but our doc wants to be aggresive with breathing treatments. Her issues are digestive, (gas, acid reflux, tummy aches, malabsorption, constipation). It's not fun, but a lot of "normal" kids have the same issues, so oh well! <img src="i/expressions/face-icon-small-smile.gif" border="0">

We meet with our CF staff every 8 weeks. Sometimes they draw blood to check her vitamin levels, liver function, etc. They also do a throat swab to check for pseudomonis.

Our 3 weeks in the hospital taught us to be vigilant when it comes to your babe's health care! We have to call for our results, email the nurse, who then emails the doctor, who then tells a resident to call us, and then they talk to the doctor, and we finally get an answer. It's exhausting. But it sounds like you are doing a great job, and I understand how it is to feel ill prepared for this job as Dr. Mom.

Also, CF Cert. Clinics usually have social workers who can help with med. insurance, and asst. programs, should you qualify.

The most important advice I can give is this. CF is not the same disease it was 20 years ago, 10 years ago, 5 years ago. With the treatments, antibiotics, and drugs in the pipeline, I believe with all my heart, our babies will live to 100. In the midst of dealing with Insurance companies, doctors, treatments and meds, it is easy to lose your mind. The hope for a cure, and the enjoyment of my silly baby keeps me sane. Life for kids with CF will only get better. Good luck to you!

 

[froggymama]

Laura,

Welcome. I'm new to the site too. Our 14 mo-old was diagnosed at 4 months because she was failure to thrive, and severly malnourished. We spent 3 weeks in the hospital. My husband and I were devastated and had to deal with the diagnosis while living at Children's Hospital. We had a rough start, but since then she has packed on some weight, and is totally healthy! The fact that you know now is so important!

I hope I can help with some advice I wish I had been given. Too bad I didn't know about this site!

Creon: We also started on a 1/2 cap of Creon 5. They started her slow because she was so malnourished, as to not send her little system into shock. As far as administering it, she was so little and couldn't swallow the applesauce. Instead, I took a large syringe (w/out the needle of course), placed the Creon in a small amount of Pedialyte, sucked the little pebbles into the syringe and squirted it into her mouth. It was the only way that worked. Now we use applesauce, and our nutritionist said it is important to use an acidic fruit so the enzyme does not break down before it reaches the intestine.

Addie's Meds: Vitamax (it's a great multivitamin), Pancrecarb and Creon Enzymes. Kids can outgrow their enzymes, and they have to be constantly adjusted, or atleast in our case. Pancrecarb does a better job of breaking down carbohydrates, and Creon is better at breaking down fat. So Addie takes 2 Pancrecarb and one Creon. Other vitamins include Zinc, Sodium Chloride (in the summer), Vitamin E, Iron (Ferrous Sulfate), Prevacid (an acid blocker than helps her enzymes do their job). She also takes a laxative (Glycolax) and Acidopholus for her tummy. In the morning, we nebulize Pulmozyme and Albuterol, and do percussion for about 10 minutes after. In the evening, we nebulize Albuterol and do percussion. The hospital gave us a little rubber "pounder" that makes it easier for babies. Every week, be sure to sterilize the equipment in boiling water, and blow excess water out of the tubing with the nebulizer.

RSV shot: Demand it! My friend's son had it twice. He does not have CF, but any kid with a chronic resp. disease should be immunized. The shot is once a month, and your CF doc should absolutely order it for you. Addie was five months old when she received her first dose. The RSV season is November - March.

Addie has (knock on wood) never had any respiratory issues, but our doc wants to be aggresive with breathing treatments. Her issues are digestive, (gas, acid reflux, tummy aches, malabsorption, constipation). It's not fun, but a lot of "normal" kids have the same issues, so oh well! <img src="i/expressions/face-icon-small-smile.gif" border="0">

We meet with our CF staff every 8 weeks. Sometimes they draw blood to check her vitamin levels, liver function, etc. They also do a throat swab to check for pseudomonis.

Our 3 weeks in the hospital taught us to be vigilant when it comes to your babe's health care! We have to call for our results, email the nurse, who then emails the doctor, who then tells a resident to call us, and then they talk to the doctor, and we finally get an answer. It's exhausting. But it sounds like you are doing a great job, and I understand how it is to feel ill prepared for this job as Dr. Mom.

Also, CF Cert. Clinics usually have social workers who can help with med. insurance, and asst. programs, should you qualify.

The most important advice I can give is this. CF is not the same disease it was 20 years ago, 10 years ago, 5 years ago. With the treatments, antibiotics, and drugs in the pipeline, I believe with all my heart, our babies will live to 100. In the midst of dealing with Insurance companies, doctors, treatments and meds, it is easy to lose your mind. The hope for a cure, and the enjoyment of my silly baby keeps me sane. Life for kids with CF will only get better. Good luck to you!

 

[JRPandTJP]

The first year is the hardest and it is so much to take in. On many levels your baby IS healthy and normal, but because of CF we sometimes feel we aren't doing enough. You will settle in and learn to trust that you will always be doing your best simply because you are his mommy - a great one at that.

Our son wasn't diagnosed until 3 1/2 months after a very long and difficult series of complications relating to malabsorption/malnutriton. He also has delta508 and another one I can never remember.

I believe in being proactive with preventative therapies, but I guess I place a lot of faith in doing only what is necessary for my son. Each person is so different, and their needs are not going to be the same, even within the same mutation. For me the bare essentials are good nutrition and immune support through natural measures (breastmilk if possible, vitamins, supplements, probiotics and the right foods), keeping those beautiful pink lungs clear and mucus free with chest physio and some type of mucalitic (some use Pulmozyme which I am less fond of, others Mucomist, but for us it is inhaled GSH (Glutathione) started at 18 months), and possibly alternative/complimentary therapies in addition to CF standard of care.

Our son had reflux pretty bad until about 10 months old so our CF clinic recomended waiting on CPT until about 2 years old to avoid lung damage from acid reflux. Plus this is when he could be fitted for a vest which is a wonderful and easy way of doing CPT. This varies greatly as you can see, but it works for us. He does this 2x daily with his inhaled GSH (about 15 minutes each session) and take enzymes with every meal.

We go to CF clinics every 3 months (it was more frequent when he was little due to all his problems in the beginning before dx) and they swab for bacterias in the lungs, check weight and height and address any questions we may have. I have personally found the nutrition advice severely lacking and not at all helpful as my son can't eat dairy. We do alot with his diet and still provide increased calories each day. He gets blood draws once a year to check for liver fucntion, inflammation markers, vitmain levels, and blood levels.

Aside from the first year, Ben has not had any issues and is a crazy, funny 2 year old that keeps us hopping. Of course, we have had to grieve our idea of "healthy child" and let a new vision take form. It takes time and I still have days that it all weigh on my heavily, or I cry at weird things or I need to talk to someone. It is normal. But I will tell you, there is too much to celebrate each day to let CF worries steal away the joy of living. We won't let CF do that.

The moms here are awesome. Always ready to help.

Warmly,
Jody
Editor of <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com">http://www.cfnutrition4life.com</a>

Note: GSH is not a currently recommended therapy at most CF clinics. However, it has been researched for many years and many families use it as a supplement. This is a personal decision, must be researched well, and talking to your doctor is always recommended.

 

[JRPandTJP]

The first year is the hardest and it is so much to take in. On many levels your baby IS healthy and normal, but because of CF we sometimes feel we aren't doing enough. You will settle in and learn to trust that you will always be doing your best simply because you are his mommy - a great one at that.

Our son wasn't diagnosed until 3 1/2 months after a very long and difficult series of complications relating to malabsorption/malnutriton. He also has delta508 and another one I can never remember.

I believe in being proactive with preventative therapies, but I guess I place a lot of faith in doing only what is necessary for my son. Each person is so different, and their needs are not going to be the same, even within the same mutation. For me the bare essentials are good nutrition and immune support through natural measures (breastmilk if possible, vitamins, supplements, probiotics and the right foods), keeping those beautiful pink lungs clear and mucus free with chest physio and some type of mucalitic (some use Pulmozyme which I am less fond of, others Mucomist, but for us it is inhaled GSH (Glutathione) started at 18 months), and possibly alternative/complimentary therapies in addition to CF standard of care.

Our son had reflux pretty bad until about 10 months old so our CF clinic recomended waiting on CPT until about 2 years old to avoid lung damage from acid reflux. Plus this is when he could be fitted for a vest which is a wonderful and easy way of doing CPT. This varies greatly as you can see, but it works for us. He does this 2x daily with his inhaled GSH (about 15 minutes each session) and take enzymes with every meal.

We go to CF clinics every 3 months (it was more frequent when he was little due to all his problems in the beginning before dx) and they swab for bacterias in the lungs, check weight and height and address any questions we may have. I have personally found the nutrition advice severely lacking and not at all helpful as my son can't eat dairy. We do alot with his diet and still provide increased calories each day. He gets blood draws once a year to check for liver fucntion, inflammation markers, vitmain levels, and blood levels.

Aside from the first year, Ben has not had any issues and is a crazy, funny 2 year old that keeps us hopping. Of course, we have had to grieve our idea of "healthy child" and let a new vision take form. It takes time and I still have days that it all weigh on my heavily, or I cry at weird things or I need to talk to someone. It is normal. But I will tell you, there is too much to celebrate each day to let CF worries steal away the joy of living. We won't let CF do that.

The moms here are awesome. Always ready to help.

Warmly,
Jody
Editor of <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com">http://www.cfnutrition4life.com</a>

Note: GSH is not a currently recommended therapy at most CF clinics. However, it has been researched for many years and many families use it as a supplement. This is a personal decision, must be researched well, and talking to your doctor is always recommended.

 

[JRPandTJP]

The first year is the hardest and it is so much to take in. On many levels your baby IS healthy and normal, but because of CF we sometimes feel we aren't doing enough. You will settle in and learn to trust that you will always be doing your best simply because you are his mommy - a great one at that.

Our son wasn't diagnosed until 3 1/2 months after a very long and difficult series of complications relating to malabsorption/malnutriton. He also has delta508 and another one I can never remember.

I believe in being proactive with preventative therapies, but I guess I place a lot of faith in doing only what is necessary for my son. Each person is so different, and their needs are not going to be the same, even within the same mutation. For me the bare essentials are good nutrition and immune support through natural measures (breastmilk if possible, vitamins, supplements, probiotics and the right foods), keeping those beautiful pink lungs clear and mucus free with chest physio and some type of mucalitic (some use Pulmozyme which I am less fond of, others Mucomist, but for us it is inhaled GSH (Glutathione) started at 18 months), and possibly alternative/complimentary therapies in addition to CF standard of care.

Our son had reflux pretty bad until about 10 months old so our CF clinic recomended waiting on CPT until about 2 years old to avoid lung damage from acid reflux. Plus this is when he could be fitted for a vest which is a wonderful and easy way of doing CPT. This varies greatly as you can see, but it works for us. He does this 2x daily with his inhaled GSH (about 15 minutes each session) and take enzymes with every meal.

We go to CF clinics every 3 months (it was more frequent when he was little due to all his problems in the beginning before dx) and they swab for bacterias in the lungs, check weight and height and address any questions we may have. I have personally found the nutrition advice severely lacking and not at all helpful as my son can't eat dairy. We do alot with his diet and still provide increased calories each day. He gets blood draws once a year to check for liver fucntion, inflammation markers, vitmain levels, and blood levels.

Aside from the first year, Ben has not had any issues and is a crazy, funny 2 year old that keeps us hopping. Of course, we have had to grieve our idea of "healthy child" and let a new vision take form. It takes time and I still have days that it all weigh on my heavily, or I cry at weird things or I need to talk to someone. It is normal. But I will tell you, there is too much to celebrate each day to let CF worries steal away the joy of living. We won't let CF do that.

The moms here are awesome. Always ready to help.

Warmly,
Jody
Editor of <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com">http://www.cfnutrition4life.com</a>

Note: GSH is not a currently recommended therapy at most CF clinics. However, it has been researched for many years and many families use it as a supplement. This is a personal decision, must be researched well, and talking to your doctor is always recommended.

 

[ibelievethereishope]

Wow, wow, wow!!! You guys are awesome! Thanks for the direct and specific answers to my questions. I'm off to Christmas shop today but I'll be keeping in touch soon <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[ibelievethereishope]

Wow, wow, wow!!! You guys are awesome! Thanks for the direct and specific answers to my questions. I'm off to Christmas shop today but I'll be keeping in touch soon <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[ibelievethereishope]

Wow, wow, wow!!! You guys are awesome! Thanks for the direct and specific answers to my questions. I'm off to Christmas shop today but I'll be keeping in touch soon <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[briar2004]

hi i am a new mom also i can tell you that the broncialsaline and the nasal saline are the best things out there they will keep the so called mucus loose my son has not been sick for a long time and i had also went to a cf meeting in tulsa oklahoma and they had really said that the sailne to be in a neb cup is the main one that really helps to keep the mucus from sticking alson chest therapy....... you can get the broncialsaline at most drug stores...

 

[briar2004]

hi i am a new mom also i can tell you that the broncialsaline and the nasal saline are the best things out there they will keep the so called mucus loose my son has not been sick for a long time and i had also went to a cf meeting in tulsa oklahoma and they had really said that the sailne to be in a neb cup is the main one that really helps to keep the mucus from sticking alson chest therapy....... you can get the broncialsaline at most drug stores...

 

[briar2004]

hi i am a new mom also i can tell you that the broncialsaline and the nasal saline are the best things out there they will keep the so called mucus loose my son has not been sick for a long time and i had also went to a cf meeting in tulsa oklahoma and they had really said that the sailne to be in a neb cup is the main one that really helps to keep the mucus from sticking alson chest therapy....... you can get the broncialsaline at most drug stores...