my husband and i don't really talk about our son and the ramifications of him having cf. we talk about the treatments and what needs to be done but not the emotional stuff. i don't think it's because we are not close. when i feel like a talk about it, he doesn't and vice versa i suppose. that's why i come on here more and more often. it's just nice to know your not alone. it almost feels like if you don't say it out loud it's not happening!!!!!!! janet uk. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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just pondering!!!!!
- Thread starter anonymous
- Start date
Janet,
I never really thought of that but my husband and I sound similar to you. We talk about my daughter's meds , treatments, research etc. But usually not the emotional aspect. However, my husband is not one to talk about his emotions anyway, so this is no different.
I do think about the emotional ramifications, my daughter's development, feling different. i think about my son without CF feeling left out, not getting enough attention due to hospitalizations, treatments.
We try to balance things but we just have alot on our plate. When my daughter is well we try to do as much as we can for the whole family. My husband is coaching little league for my son. We have people over and go to partys as a family. Sometimes it's exhausting, to keep up being normal.
What i've seen so far, knock on wood, is a daughter with CF who is happy, fiercely independent, and resiliant. My son has deep empathy for others, even his 2nd grade teacher commented on this. So there is some good to adversity.
Rebecca( mom to Sammy CF 7 and maggie 3 with CF)
I never really thought of that but my husband and I sound similar to you. We talk about my daughter's meds , treatments, research etc. But usually not the emotional aspect. However, my husband is not one to talk about his emotions anyway, so this is no different.
I do think about the emotional ramifications, my daughter's development, feling different. i think about my son without CF feeling left out, not getting enough attention due to hospitalizations, treatments.
We try to balance things but we just have alot on our plate. When my daughter is well we try to do as much as we can for the whole family. My husband is coaching little league for my son. We have people over and go to partys as a family. Sometimes it's exhausting, to keep up being normal.
What i've seen so far, knock on wood, is a daughter with CF who is happy, fiercely independent, and resiliant. My son has deep empathy for others, even his 2nd grade teacher commented on this. So there is some good to adversity.
Rebecca( mom to Sammy CF 7 and maggie 3 with CF)
When the time is right you two will click & want to discuss things at the same time. It might not happen until something "serious" arises with your childs health status. As long as you are both open to it at any given point that is a good sign. Its when one of you NEVER wants to discuss it that a problem will arise. Now its just a matter of getting a Man & a Woman on the same emotional path.....aint that a challenge after all Men are from Mars & Women are from Venus! IN the meantime keep coming here!
Hi Janet
My wife and I are the same,and we tend to be on the ball when it comes to meds and clinic visits, we even kept a journal of everything he has eaten the times of his meds etc.etc. We intend keeping it for his first year, whitch is on the 30th may. But knowing us we'll keeep it going.My wife dosent come on here, she occaisionally reads, but dosen't like it too much. We do have our moments when things get on top of us, we have maybe gone into the emotional side of things 5 or 6 times over the year, and your right ,its not because we don't care, we realy do, its because of the focus on other things, its such a learning curve.
Craig
UK - Scotland
My wife and I are the same,and we tend to be on the ball when it comes to meds and clinic visits, we even kept a journal of everything he has eaten the times of his meds etc.etc. We intend keeping it for his first year, whitch is on the 30th may. But knowing us we'll keeep it going.My wife dosent come on here, she occaisionally reads, but dosen't like it too much. We do have our moments when things get on top of us, we have maybe gone into the emotional side of things 5 or 6 times over the year, and your right ,its not because we don't care, we realy do, its because of the focus on other things, its such a learning curve.
Craig
UK - Scotland
CFHockeyMom
New member
My husband and I rarely if ever discuss the emotional side of CF for us. When Sean was first diagnosed, all of our discussions were about the emotional stuff.
Like you, we're very involved in the day to day and even talk about what the future may be like for Sean and what extra responsibilities we'll have with him as he becomes an adult. We built our house with the plan of him having a basement apartment (in case he's not well enough to move out) with his own entry way/kitchen/bath, etc... We consulted with an attorney as to how to write our Trust so that Sean wouldn't be penalized by an inheritance with regard to state funding. We've thought of and discussed just about every aspect of CF except for the emotional side.
I guess, that's a hurdle you cross when you get to it...
Like you, we're very involved in the day to day and even talk about what the future may be like for Sean and what extra responsibilities we'll have with him as he becomes an adult. We built our house with the plan of him having a basement apartment (in case he's not well enough to move out) with his own entry way/kitchen/bath, etc... We consulted with an attorney as to how to write our Trust so that Sean wouldn't be penalized by an inheritance with regard to state funding. We've thought of and discussed just about every aspect of CF except for the emotional side.
I guess, that's a hurdle you cross when you get to it...