Just recived back Nicolas's CF test

[Asexyblond23]

Lauren,
Wow I had no idea that the state test only tested for so little. I was under the understanding that it was a full panel test. Thank you so much for sharing that with me. I also have blood factor problems so when nicolas is a little bit older we are going to have him tested for those factors and I will ask them to do a test like you had. What exactly was the test? Did you have to do something special to get the test?

As far as the hemmoriods, well the miralax was my lifesaver!! During delivery they did inflame but went back to what they were during pregnancy after I delievered. They and the fibromia are still there, I may have to have them removed but as of right now, thankfully they are not hurting!

 

[Asexyblond23]

Lauren,
Wow I had no idea that the state test only tested for so little. I was under the understanding that it was a full panel test. Thank you so much for sharing that with me. I also have blood factor problems so when nicolas is a little bit older we are going to have him tested for those factors and I will ask them to do a test like you had. What exactly was the test? Did you have to do something special to get the test?

As far as the hemmoriods, well the miralax was my lifesaver!! During delivery they did inflame but went back to what they were during pregnancy after I delievered. They and the fibromia are still there, I may have to have them removed but as of right now, thankfully they are not hurting!

 

[Asexyblond23]

Lauren,
Wow I had no idea that the state test only tested for so little. I was under the understanding that it was a full panel test. Thank you so much for sharing that with me. I also have blood factor problems so when nicolas is a little bit older we are going to have him tested for those factors and I will ask them to do a test like you had. What exactly was the test? Did you have to do something special to get the test?

As far as the hemmoriods, well the miralax was my lifesaver!! During delivery they did inflame but went back to what they were during pregnancy after I delievered. They and the fibromia are still there, I may have to have them removed but as of right now, thankfully they are not hurting!

 

[Asexyblond23]

Lauren,
Wow I had no idea that the state test only tested for so little. I was under the understanding that it was a full panel test. Thank you so much for sharing that with me. I also have blood factor problems so when nicolas is a little bit older we are going to have him tested for those factors and I will ask them to do a test like you had. What exactly was the test? Did you have to do something special to get the test?

As far as the hemmoriods, well the miralax was my lifesaver!! During delivery they did inflame but went back to what they were during pregnancy after I delievered. They and the fibromia are still there, I may have to have them removed but as of right now, thankfully they are not hurting!

 

[Asexyblond23]

Lauren,
<br />Wow I had no idea that the state test only tested for so little. I was under the understanding that it was a full panel test. Thank you so much for sharing that with me. I also have blood factor problems so when nicolas is a little bit older we are going to have him tested for those factors and I will ask them to do a test like you had. What exactly was the test? Did you have to do something special to get the test?
<br />
<br />As far as the hemmoriods, well the miralax was my lifesaver!! During delivery they did inflame but went back to what they were during pregnancy after I delievered. They and the fibromia are still there, I may have to have them removed but as of right now, thankfully they are not hurting!

 

[LouLou]

I would suggest Ambry Amplified Sequencing or Quest has a similar sequencing test. The key is to make sure they are testing over over 1K mutations. I'm glad I could help.

 

[LouLou]

I would suggest Ambry Amplified Sequencing or Quest has a similar sequencing test. The key is to make sure they are testing over over 1K mutations. I'm glad I could help.

 

[LouLou]

I would suggest Ambry Amplified Sequencing or Quest has a similar sequencing test. The key is to make sure they are testing over over 1K mutations. I'm glad I could help.

 

[LouLou]

I would suggest Ambry Amplified Sequencing or Quest has a similar sequencing test. The key is to make sure they are testing over over 1K mutations. I'm glad I could help.

 

[LouLou]

I would suggest Ambry Amplified Sequencing or Quest has a similar sequencing test. The key is to make sure they are testing over over 1K mutations. I'm glad I could help.

 

[Asexyblond23]

Lauren,

Would you mind PM'ing me and telling me more about those test. Is it a special place or someplace we can send blood off to?

Thanks,
Alisha

 

[Asexyblond23]

Lauren,

Would you mind PM'ing me and telling me more about those test. Is it a special place or someplace we can send blood off to?

Thanks,
Alisha

 

[Asexyblond23]

Lauren,

Would you mind PM'ing me and telling me more about those test. Is it a special place or someplace we can send blood off to?

Thanks,
Alisha

 

[Asexyblond23]

Lauren,

Would you mind PM'ing me and telling me more about those test. Is it a special place or someplace we can send blood off to?

Thanks,
Alisha

 

[Asexyblond23]

Lauren,
<br />
<br />Would you mind PM'ing me and telling me more about those test. Is it a special place or someplace we can send blood off to?
<br />
<br />Thanks,
<br />Alisha

 

[LouLou]

Hi Alisha, I'm replying here because others might find the information helpful as well. You can go to the Ambry thread and PM Steve through this site to send you an Ambry test kit.

They will test the blood for the most common mutations and continue on with add'l testing until they find nothing hopefullly...well other than one of your mutations which of course they will find in him.

If you'd rather work with Quest just insure that they test for over 1000 mutations. You could ask Steve to look into if your insurance covers it. If it's a lot and you want to see what Quest costs. Call them and give them your insurance info and they should be able to plug it in and give you an estimate.

DO NOT call your insurance company because then they might think this is a test that is being requested more by the patient than the doctor, red flag your acct, and deny it when it comes through.

Let us know how it goes. Oh and in terms of who orders the test. You can have your cf doctor fill out the paperwork as long as they see peds at the same facility. If you have an HMO and require referrels then you may have to get his ped on board. Just don't back down and if they deny your request ask the doctor to put it in writing. They'll smell possible lawsuit in the future and will give in.

 

[LouLou]

Hi Alisha, I'm replying here because others might find the information helpful as well. You can go to the Ambry thread and PM Steve through this site to send you an Ambry test kit.

They will test the blood for the most common mutations and continue on with add'l testing until they find nothing hopefullly...well other than one of your mutations which of course they will find in him.

If you'd rather work with Quest just insure that they test for over 1000 mutations. You could ask Steve to look into if your insurance covers it. If it's a lot and you want to see what Quest costs. Call them and give them your insurance info and they should be able to plug it in and give you an estimate.

DO NOT call your insurance company because then they might think this is a test that is being requested more by the patient than the doctor, red flag your acct, and deny it when it comes through.

Let us know how it goes. Oh and in terms of who orders the test. You can have your cf doctor fill out the paperwork as long as they see peds at the same facility. If you have an HMO and require referrels then you may have to get his ped on board. Just don't back down and if they deny your request ask the doctor to put it in writing. They'll smell possible lawsuit in the future and will give in.

 

[LouLou]

Hi Alisha, I'm replying here because others might find the information helpful as well. You can go to the Ambry thread and PM Steve through this site to send you an Ambry test kit.

They will test the blood for the most common mutations and continue on with add'l testing until they find nothing hopefullly...well other than one of your mutations which of course they will find in him.

If you'd rather work with Quest just insure that they test for over 1000 mutations. You could ask Steve to look into if your insurance covers it. If it's a lot and you want to see what Quest costs. Call them and give them your insurance info and they should be able to plug it in and give you an estimate.

DO NOT call your insurance company because then they might think this is a test that is being requested more by the patient than the doctor, red flag your acct, and deny it when it comes through.

Let us know how it goes. Oh and in terms of who orders the test. You can have your cf doctor fill out the paperwork as long as they see peds at the same facility. If you have an HMO and require referrels then you may have to get his ped on board. Just don't back down and if they deny your request ask the doctor to put it in writing. They'll smell possible lawsuit in the future and will give in.

 

[LouLou]

Hi Alisha, I'm replying here because others might find the information helpful as well. You can go to the Ambry thread and PM Steve through this site to send you an Ambry test kit.

They will test the blood for the most common mutations and continue on with add'l testing until they find nothing hopefullly...well other than one of your mutations which of course they will find in him.

If you'd rather work with Quest just insure that they test for over 1000 mutations. You could ask Steve to look into if your insurance covers it. If it's a lot and you want to see what Quest costs. Call them and give them your insurance info and they should be able to plug it in and give you an estimate.

DO NOT call your insurance company because then they might think this is a test that is being requested more by the patient than the doctor, red flag your acct, and deny it when it comes through.

Let us know how it goes. Oh and in terms of who orders the test. You can have your cf doctor fill out the paperwork as long as they see peds at the same facility. If you have an HMO and require referrels then you may have to get his ped on board. Just don't back down and if they deny your request ask the doctor to put it in writing. They'll smell possible lawsuit in the future and will give in.

 

[LouLou]

Hi Alisha, I'm replying here because others might find the information helpful as well. You can go to the Ambry thread and PM Steve through this site to send you an Ambry test kit.
<br />
<br />They will test the blood for the most common mutations and continue on with add'l testing until they find nothing hopefullly...well other than one of your mutations which of course they will find in him.
<br />
<br />If you'd rather work with Quest just insure that they test for over 1000 mutations. You could ask Steve to look into if your insurance covers it. If it's a lot and you want to see what Quest costs. Call them and give them your insurance info and they should be able to plug it in and give you an estimate.
<br />
<br />DO NOT call your insurance company because then they might think this is a test that is being requested more by the patient than the doctor, red flag your acct, and deny it when it comes through.
<br />
<br />Let us know how it goes. Oh and in terms of who orders the test. You can have your cf doctor fill out the paperwork as long as they see peds at the same facility. If you have an HMO and require referrels then you may have to get his ped on board. Just don't back down and if they deny your request ask the doctor to put it in writing. They'll smell possible lawsuit in the future and will give in.