Kalydeco concern!!!

[JENNYC]

I am so glad that you are getting to try a new enzyme!!! I pray that helps ds!!! And may I say my mouth just hit the floor when I read how much it costs!!! Ouch!! That's triple the cost of Creon for us!! Bless your heart!! All though I do hope this is an answer to your prayers!!

 

[Aboveallislove]

Well mail order is 70 for 3 months, so getting rest that way. Not as bad as pulmozyme which was like 800 and I didn't know re our mail order benefit that first month...that's why I tell all expecting and new cf parents to dig into insurance info. Really hoping this helps with tummy.

 

[JENNYC]

Wow again!!!!! Our pulmozyme is 100 as well!!! That is good info for new parents....I never dreamed some were having to pay that much!!

 

[hurry-up-vertex]

sent you a private message concerning this. Did you get it?

 

[JENNYC]

If you were talking to me... I did not receive one.

 

[piggylu]

I did!! Thank you!! Any information i can get is helpful!!!

 

[LindseyRose]

How is Kalydeco administered? Is it an inhaler, a nebulizer aerosol, or a pill??

 

[piggylu]

Hi!!
Kalydeco is a pill. It is taken twice per day. I read that most take 150 mg

 

[cabadie1]

Do you still have to do all of the same treatments when you take Kaldyco? What are the side effects you are noticing? Thanks so much!