Kalydeco

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Rebjane

Super Moderator
Curious if Kalydeco can help you get rid of bacteria you are culturing? Anyone keeping track of their sputum cultures and the type of bacteria they culture? I know people are tracking their PFT's but it would be also interesting to track amount and type of bacteria in sputum cultures.
 
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Rebjane

Super Moderator
Curious if Kalydeco can help you get rid of bacteria you are culturing? Anyone keeping track of their sputum cultures and the type of bacteria they culture? I know people are tracking their PFT's but it would be also interesting to track amount and type of bacteria in sputum cultures.
 
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Tom

New member
My son went from culturing PA and staph to normal flora after 2 1/2 months of Kalydeco. We will see if this trend continues, but this is his first normal flora culture.
 
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Tom

New member
My son went from culturing PA and staph to normal flora after 2 1/2 months of Kalydeco. We will see if this trend continues, but this is his first normal flora culture.
 
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kots66

Guest
That's fantastic Tom, congratulations! If you don't mind me asking, how old is your son and how long has he been culturing PA?
 
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kots66

Guest
That's fantastic Tom, congratulations! If you don't mind me asking, how old is your son and how long has he been culturing PA?
 
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Tom

New member
He finished a round of Cayston in December but still cultured PA in Jan. He started Kalydeco at the beginning of March.
 
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Tom

New member
He finished a round of Cayston in December but still cultured PA in Jan. He started Kalydeco at the beginning of March.
 
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echolaura

Guest
Does anyone know if Kalydeco has eradicated any MRSA? (Tom, that's wonderful news) My 18 year old daughter just started Kalydeco about a month ago and hasn't had any noticeable physical changes other than less coughing.
 
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echolaura

Guest
Does anyone know if Kalydeco has eradicated any MRSA? (Tom, that's wonderful news) My 18 year old daughter just started Kalydeco about a month ago and hasn't had any noticeable physical changes other than less coughing.
 
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Tom

New member
I think there is someone (Dr. Roe?) on here who has a son with MRSA that has been taking Kalydeco for about 3 months. Maybe she can help you.
 
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Tom

New member
I think there is someone (Dr. Roe?) on here who has a son with MRSA that has been taking Kalydeco for about 3 months. Maybe she can help you.
 
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