kids and questions about CF

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truckin4tucker

New member
Tucker went in for his 3 months check-up today and on the way home, had asked lots of questions about his CF. At first he asked, "Mom, how much longer will I have CF?" It broke my heart to hear him ask that. At first I didn't know quite how to respond, but I figured it was best to be honest with him. So I told him he will have it for the rest of his life unless a cure can be found.

I went on to explain to him that is why his dad and I do so many fundraising things, so we can raise lots of money to help researchers find a cure for CF. He then asked "How much money do they need to get rid of my CF?" That was a tough question to answer. I just replied, "Lots and lots". Then he just kept saying "Why do I have CF? I don't want to have CF anymore!". With tears in my eyes I replied, "I know honey. I wish you didn't have CF either. I wish I could make it go away, but I can't. God just made you extra, extra special!" Do any of you parents out there have any other advice or input as to how to handle questions like this? Any input would be much appreciated. He is at that age (6 y.o.) where he is beginning to ask more and more questions about his CF, and I just figure it is best to be short and fairly direct with my answers. I don't want to "sugar coat" anything about his disease really. I don't think that is fair to him.

There are so many days that go by where I kind of forget about him having CF. But then there are days like today that smack me in the face and remind me he DOES have CF. My heart aches for him! Thanks for letting me vent.
 
T

truckin4tucker

New member
Tucker went in for his 3 months check-up today and on the way home, had asked lots of questions about his CF. At first he asked, "Mom, how much longer will I have CF?" It broke my heart to hear him ask that. At first I didn't know quite how to respond, but I figured it was best to be honest with him. So I told him he will have it for the rest of his life unless a cure can be found.

I went on to explain to him that is why his dad and I do so many fundraising things, so we can raise lots of money to help researchers find a cure for CF. He then asked "How much money do they need to get rid of my CF?" That was a tough question to answer. I just replied, "Lots and lots". Then he just kept saying "Why do I have CF? I don't want to have CF anymore!". With tears in my eyes I replied, "I know honey. I wish you didn't have CF either. I wish I could make it go away, but I can't. God just made you extra, extra special!" Do any of you parents out there have any other advice or input as to how to handle questions like this? Any input would be much appreciated. He is at that age (6 y.o.) where he is beginning to ask more and more questions about his CF, and I just figure it is best to be short and fairly direct with my answers. I don't want to "sugar coat" anything about his disease really. I don't think that is fair to him.

There are so many days that go by where I kind of forget about him having CF. But then there are days like today that smack me in the face and remind me he DOES have CF. My heart aches for him! Thanks for letting me vent.
 
T

truckin4tucker

New member
Tucker went in for his 3 months check-up today and on the way home, had asked lots of questions about his CF. At first he asked, "Mom, how much longer will I have CF?" It broke my heart to hear him ask that. At first I didn't know quite how to respond, but I figured it was best to be honest with him. So I told him he will have it for the rest of his life unless a cure can be found.

I went on to explain to him that is why his dad and I do so many fundraising things, so we can raise lots of money to help researchers find a cure for CF. He then asked "How much money do they need to get rid of my CF?" That was a tough question to answer. I just replied, "Lots and lots". Then he just kept saying "Why do I have CF? I don't want to have CF anymore!". With tears in my eyes I replied, "I know honey. I wish you didn't have CF either. I wish I could make it go away, but I can't. God just made you extra, extra special!" Do any of you parents out there have any other advice or input as to how to handle questions like this? Any input would be much appreciated. He is at that age (6 y.o.) where he is beginning to ask more and more questions about his CF, and I just figure it is best to be short and fairly direct with my answers. I don't want to "sugar coat" anything about his disease really. I don't think that is fair to him.

There are so many days that go by where I kind of forget about him having CF. But then there are days like today that smack me in the face and remind me he DOES have CF. My heart aches for him! Thanks for letting me vent.
 
T

truckin4tucker

New member
Tucker went in for his 3 months check-up today and on the way home, had asked lots of questions about his CF. At first he asked, "Mom, how much longer will I have CF?" It broke my heart to hear him ask that. At first I didn't know quite how to respond, but I figured it was best to be honest with him. So I told him he will have it for the rest of his life unless a cure can be found.

I went on to explain to him that is why his dad and I do so many fundraising things, so we can raise lots of money to help researchers find a cure for CF. He then asked "How much money do they need to get rid of my CF?" That was a tough question to answer. I just replied, "Lots and lots". Then he just kept saying "Why do I have CF? I don't want to have CF anymore!". With tears in my eyes I replied, "I know honey. I wish you didn't have CF either. I wish I could make it go away, but I can't. God just made you extra, extra special!" Do any of you parents out there have any other advice or input as to how to handle questions like this? Any input would be much appreciated. He is at that age (6 y.o.) where he is beginning to ask more and more questions about his CF, and I just figure it is best to be short and fairly direct with my answers. I don't want to "sugar coat" anything about his disease really. I don't think that is fair to him.

There are so many days that go by where I kind of forget about him having CF. But then there are days like today that smack me in the face and remind me he DOES have CF. My heart aches for him! Thanks for letting me vent.
 
T

truckin4tucker

New member
Tucker went in for his 3 months check-up today and on the way home, had asked lots of questions about his CF. At first he asked, "Mom, how much longer will I have CF?" It broke my heart to hear him ask that. At first I didn't know quite how to respond, but I figured it was best to be honest with him. So I told him he will have it for the rest of his life unless a cure can be found.

I went on to explain to him that is why his dad and I do so many fundraising things, so we can raise lots of money to help researchers find a cure for CF. He then asked "How much money do they need to get rid of my CF?" That was a tough question to answer. I just replied, "Lots and lots". Then he just kept saying "Why do I have CF? I don't want to have CF anymore!". With tears in my eyes I replied, "I know honey. I wish you didn't have CF either. I wish I could make it go away, but I can't. God just made you extra, extra special!" Do any of you parents out there have any other advice or input as to how to handle questions like this? Any input would be much appreciated. He is at that age (6 y.o.) where he is beginning to ask more and more questions about his CF, and I just figure it is best to be short and fairly direct with my answers. I don't want to "sugar coat" anything about his disease really. I don't think that is fair to him.

There are so many days that go by where I kind of forget about him having CF. But then there are days like today that smack me in the face and remind me he DOES have CF. My heart aches for him! Thanks for letting me vent.
 
A

adamsants

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0">I just wanted to say i know how hard it is to talk to your child...mine starts and then stops i think he wants to know but then he stops himself (he is 14). I am like you don't sugarcoat it i always answered his questions as best as i could but i also never went into deep discussions unless he asked. I have asked him if he wants to talk to someone else but he does not.

So i just wanted to say i know how you feel and good luck.
 
A

adamsants

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0">I just wanted to say i know how hard it is to talk to your child...mine starts and then stops i think he wants to know but then he stops himself (he is 14). I am like you don't sugarcoat it i always answered his questions as best as i could but i also never went into deep discussions unless he asked. I have asked him if he wants to talk to someone else but he does not.

So i just wanted to say i know how you feel and good luck.
 
A

adamsants

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0">I just wanted to say i know how hard it is to talk to your child...mine starts and then stops i think he wants to know but then he stops himself (he is 14). I am like you don't sugarcoat it i always answered his questions as best as i could but i also never went into deep discussions unless he asked. I have asked him if he wants to talk to someone else but he does not.

So i just wanted to say i know how you feel and good luck.
 
A

adamsants

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0">I just wanted to say i know how hard it is to talk to your child...mine starts and then stops i think he wants to know but then he stops himself (he is 14). I am like you don't sugarcoat it i always answered his questions as best as i could but i also never went into deep discussions unless he asked. I have asked him if he wants to talk to someone else but he does not.

So i just wanted to say i know how you feel and good luck.
 
A

adamsants

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0">I just wanted to say i know how hard it is to talk to your child...mine starts and then stops i think he wants to know but then he stops himself (he is 14). I am like you don't sugarcoat it i always answered his questions as best as i could but i also never went into deep discussions unless he asked. I have asked him if he wants to talk to someone else but he does not.
<br />
<br />So i just wanted to say i know how you feel and good luck.
<br />
<br />
 
C

CanadianMommy

New member
My daughters both have CF and are 5 and 7 years old. I answer the same way you did however I also point out other children that have health issues. For example, the boy in her class who has a severe nut allergy and has to carry an epi pen. The girl in her class who has diabetes and has to check her blood sugar throughout the day. I don't want my girls to feel sorry for themselves all the time (it's okay once in a while <img src="i/expressions/face-icon-small-smile.gif" border="0"> I point out that there are others who have things to deal with too and unfortunatley they have to deal with CF.

They seem to accept that at their age.
 
C

CanadianMommy

New member
My daughters both have CF and are 5 and 7 years old. I answer the same way you did however I also point out other children that have health issues. For example, the boy in her class who has a severe nut allergy and has to carry an epi pen. The girl in her class who has diabetes and has to check her blood sugar throughout the day. I don't want my girls to feel sorry for themselves all the time (it's okay once in a while <img src="i/expressions/face-icon-small-smile.gif" border="0"> I point out that there are others who have things to deal with too and unfortunatley they have to deal with CF.

They seem to accept that at their age.
 
C

CanadianMommy

New member
My daughters both have CF and are 5 and 7 years old. I answer the same way you did however I also point out other children that have health issues. For example, the boy in her class who has a severe nut allergy and has to carry an epi pen. The girl in her class who has diabetes and has to check her blood sugar throughout the day. I don't want my girls to feel sorry for themselves all the time (it's okay once in a while <img src="i/expressions/face-icon-small-smile.gif" border="0"> I point out that there are others who have things to deal with too and unfortunatley they have to deal with CF.

They seem to accept that at their age.
 
C

CanadianMommy

New member
My daughters both have CF and are 5 and 7 years old. I answer the same way you did however I also point out other children that have health issues. For example, the boy in her class who has a severe nut allergy and has to carry an epi pen. The girl in her class who has diabetes and has to check her blood sugar throughout the day. I don't want my girls to feel sorry for themselves all the time (it's okay once in a while <img src="i/expressions/face-icon-small-smile.gif" border="0"> I point out that there are others who have things to deal with too and unfortunatley they have to deal with CF.

They seem to accept that at their age.
 
C

CanadianMommy

New member
My daughters both have CF and are 5 and 7 years old. I answer the same way you did however I also point out other children that have health issues. For example, the boy in her class who has a severe nut allergy and has to carry an epi pen. The girl in her class who has diabetes and has to check her blood sugar throughout the day. I don't want my girls to feel sorry for themselves all the time (it's okay once in a while <img src="i/expressions/face-icon-small-smile.gif" border="0"> I point out that there are others who have things to deal with too and unfortunatley they have to deal with CF.

They seem to accept that at their age.
 
J

JennyCoulon

New member
My oldest is 8 years old and he asks some questions and we answer then honestly. He has why and we tell him that god made him and his brother extra special. I try to tell him that there are many people who have other things so things could be much worse. He never ponders on it too long but I am sure the day will come when he will.

I would just try and be honest as much as I could. I am always worried I am going to scare him. Good luck
 
J

JennyCoulon

New member
My oldest is 8 years old and he asks some questions and we answer then honestly. He has why and we tell him that god made him and his brother extra special. I try to tell him that there are many people who have other things so things could be much worse. He never ponders on it too long but I am sure the day will come when he will.

I would just try and be honest as much as I could. I am always worried I am going to scare him. Good luck
 
J

JennyCoulon

New member
My oldest is 8 years old and he asks some questions and we answer then honestly. He has why and we tell him that god made him and his brother extra special. I try to tell him that there are many people who have other things so things could be much worse. He never ponders on it too long but I am sure the day will come when he will.

I would just try and be honest as much as I could. I am always worried I am going to scare him. Good luck
 
J

JennyCoulon

New member
My oldest is 8 years old and he asks some questions and we answer then honestly. He has why and we tell him that god made him and his brother extra special. I try to tell him that there are many people who have other things so things could be much worse. He never ponders on it too long but I am sure the day will come when he will.

I would just try and be honest as much as I could. I am always worried I am going to scare him. Good luck
 
J

JennyCoulon

New member
My oldest is 8 years old and he asks some questions and we answer then honestly. He has why and we tell him that god made him and his brother extra special. I try to tell him that there are many people who have other things so things could be much worse. He never ponders on it too long but I am sure the day will come when he will.
<br />
<br />I would just try and be honest as much as I could. I am always worried I am going to scare him. Good luck
 
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