Kinda bummed

J

jbrandonAW

New member
So 4 weeks ago I was discharged from the hospital. I had a 62% lung function. I was so excited. I never thought to look at the numbers other than %'s b/c I assumed the standards were the same for every machine....

2 weeks ago I ended up back in the hospital in the ICU on bi-pap b/c of a virus. Well today I did PFT's and they were only 40%....

the 62% I was so happy about is basically the same number in liters as the 40%.... how depressing. I guess I had never looked at the liter number and now to realize how far away from my "70%" lung function that I wanted it so crazy. It really makes me wonder can I gain back 30% of my lung function????

I'm just in a little bit of shock. I mean the dr mentioned the tx word today... I so have to get my ***** together!
 
J

jbrandonAW

New member
So 4 weeks ago I was discharged from the hospital. I had a 62% lung function. I was so excited. I never thought to look at the numbers other than %'s b/c I assumed the standards were the same for every machine....

2 weeks ago I ended up back in the hospital in the ICU on bi-pap b/c of a virus. Well today I did PFT's and they were only 40%....

the 62% I was so happy about is basically the same number in liters as the 40%.... how depressing. I guess I had never looked at the liter number and now to realize how far away from my "70%" lung function that I wanted it so crazy. It really makes me wonder can I gain back 30% of my lung function????

I'm just in a little bit of shock. I mean the dr mentioned the tx word today... I so have to get my ***** together!
 
J

jbrandonAW

New member
So 4 weeks ago I was discharged from the hospital. I had a 62% lung function. I was so excited. I never thought to look at the numbers other than %'s b/c I assumed the standards were the same for every machine....

2 weeks ago I ended up back in the hospital in the ICU on bi-pap b/c of a virus. Well today I did PFT's and they were only 40%....

the 62% I was so happy about is basically the same number in liters as the 40%.... how depressing. I guess I had never looked at the liter number and now to realize how far away from my "70%" lung function that I wanted it so crazy. It really makes me wonder can I gain back 30% of my lung function????

I'm just in a little bit of shock. I mean the dr mentioned the tx word today... I so have to get my ***** together!
 
J

jbrandonAW

New member
So 4 weeks ago I was discharged from the hospital. I had a 62% lung function. I was so excited. I never thought to look at the numbers other than %'s b/c I assumed the standards were the same for every machine....

2 weeks ago I ended up back in the hospital in the ICU on bi-pap b/c of a virus. Well today I did PFT's and they were only 40%....

the 62% I was so happy about is basically the same number in liters as the 40%.... how depressing. I guess I had never looked at the liter number and now to realize how far away from my "70%" lung function that I wanted it so crazy. It really makes me wonder can I gain back 30% of my lung function????

I'm just in a little bit of shock. I mean the dr mentioned the tx word today... I so have to get my ***** together!
 
J

jbrandonAW

New member
So 4 weeks ago I was discharged from the hospital. I had a 62% lung function. I was so excited. I never thought to look at the numbers other than %'s b/c I assumed the standards were the same for every machine....
<br />
<br />2 weeks ago I ended up back in the hospital in the ICU on bi-pap b/c of a virus. Well today I did PFT's and they were only 40%....
<br />
<br />the 62% I was so happy about is basically the same number in liters as the 40%.... how depressing. I guess I had never looked at the liter number and now to realize how far away from my "70%" lung function that I wanted it so crazy. It really makes me wonder can I gain back 30% of my lung function????
<br />
<br />I'm just in a little bit of shock. I mean the dr mentioned the tx word today... I so have to get my ***** together!
 
H

Havoc

New member
Yeah, I think too many people look at percent predicted. That can be very misleading, as it is based on height weight and age, all of which can and do change, sometimes quickly. Important numbers to keep track of are FEV1 and FEV75/25.
 
H

Havoc

New member
Yeah, I think too many people look at percent predicted. That can be very misleading, as it is based on height weight and age, all of which can and do change, sometimes quickly. Important numbers to keep track of are FEV1 and FEV75/25.
 
H

Havoc

New member
Yeah, I think too many people look at percent predicted. That can be very misleading, as it is based on height weight and age, all of which can and do change, sometimes quickly. Important numbers to keep track of are FEV1 and FEV75/25.
 
H

Havoc

New member
Yeah, I think too many people look at percent predicted. That can be very misleading, as it is based on height weight and age, all of which can and do change, sometimes quickly. Important numbers to keep track of are FEV1 and FEV75/25.
 
H

Havoc

New member
Yeah, I think too many people look at percent predicted. That can be very misleading, as it is based on height weight and age, all of which can and do change, sometimes quickly. Important numbers to keep track of are FEV1 and FEV75/25.
 
R

rubyroselee

New member
Jessica,

I currently go to two different CF clinics, and they both have drastically different percentages on me. One is about 15% higher than the other, even though the liters are the same. I also tend to look at percentages, although sometimes it's good to know the actual numbers too so that it doesn't freak you out as much when the percentage is so much lower. Hope you get better soon and back up to baseline <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

rubyroselee

New member
Jessica,

I currently go to two different CF clinics, and they both have drastically different percentages on me. One is about 15% higher than the other, even though the liters are the same. I also tend to look at percentages, although sometimes it's good to know the actual numbers too so that it doesn't freak you out as much when the percentage is so much lower. Hope you get better soon and back up to baseline <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

rubyroselee

New member
Jessica,

I currently go to two different CF clinics, and they both have drastically different percentages on me. One is about 15% higher than the other, even though the liters are the same. I also tend to look at percentages, although sometimes it's good to know the actual numbers too so that it doesn't freak you out as much when the percentage is so much lower. Hope you get better soon and back up to baseline <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

rubyroselee

New member
Jessica,

I currently go to two different CF clinics, and they both have drastically different percentages on me. One is about 15% higher than the other, even though the liters are the same. I also tend to look at percentages, although sometimes it's good to know the actual numbers too so that it doesn't freak you out as much when the percentage is so much lower. Hope you get better soon and back up to baseline <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

rubyroselee

New member
Jessica,
<br />
<br />I currently go to two different CF clinics, and they both have drastically different percentages on me. One is about 15% higher than the other, even though the liters are the same. I also tend to look at percentages, although sometimes it's good to know the actual numbers too so that it doesn't freak you out as much when the percentage is so much lower. Hope you get better soon and back up to baseline <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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