Thank you all for this thoughtful and insightful discussion. I have read through the whole thing this morning! I come from a family of 6, and I LOVED having so many siblings. I've always loved babies and as a kid I wanted a huge family. It wasn't until I was a teen that I learned about the risks for CF and parenthood. Since then, I've always felt that I would have 2 kids. My husband and I have planned on 2 kids, one biological and one adopted. In everything I've read, that 2nd CF pregnancy often seems so risky even if the first was fine, which is what led us to that decision.
However, I am on Kalydeco right now, which is a major potential game changer. It opens up the possibility of maybe having another kid down the road... MAYBE even another pregnancy, if I was doing really well and if I did well with my first. I have always felt heartbroken at the idea of a small family. Ideally, I think I'd like at least 4, but I suspect that probably won't be my lot in life.
Anyway, it's an issue I've thought about a LOT before, because I am so afraid that I will want another baby so bad after we are "done" that I won't be able to enjoy the children I've been blessed with. Reading all these perspectives on it has definitely given me food for thought.... thanks, ladies!