Late diagnosis for Pre-Teen

J

jcwise62

Guest
Thank you so much for the response. You really hit the nail on the head . He is a late diagnosis, and would not have been done had he not gotten so dehydrated at camp in the first place. He is fortunate in that he is pancreatic sufficient. <br>As for his sports, he really has dropped out in that area. We are working on getting back into sports, but we get the "WHY??" a lot. Again some of that is pre-teen angst, but some of it has to do with swallowing a lot of information and having his life shift in a major way.<br>I will show him your story tonight and perhaps yours, along with Roberts and Jerry Cahills, will show him a different path.<br>Either way, thank you for sharing.<br>Jeff Wise
 
J

jcwise62

Guest
Thank you so much for the response. You really hit the nail on the head . He is a late diagnosis, and would not have been done had he not gotten so dehydrated at camp in the first place. He is fortunate in that he is pancreatic sufficient. <br>As for his sports, he really has dropped out in that area. We are working on getting back into sports, but we get the "WHY??" a lot. Again some of that is pre-teen angst, but some of it has to do with swallowing a lot of information and having his life shift in a major way.<br>I will show him your story tonight and perhaps yours, along with Roberts and Jerry Cahills, will show him a different path.<br>Either way, thank you for sharing.<br>Jeff Wise
 
J

jcwise62

Guest
Keith:<div><br></div><div>Thanks for the encouraging words.  All the comments mean a lot.  Yeah, he likes girls, but only the smart ones who can do math.  I love his grading criteria!</div><div><br></div><div>We are still working the sports angle, and I drag him to the gym with Daddy so he can work out with me.  It really is half-assed on his part, but after 3 months of this he is actually starting to really walk on the treadmill and lifting a little with free weights.  While the latter is not that important, I do like spending the time with him. :)</div><div><br></div><div>Jeff Wise</div>
 
J

jcwise62

Guest
Keith:<br>Thanks for the encouraging words. All the comments mean a lot. Yeah, he likes girls, but only the smart ones who can do math. I love his grading criteria!<br>We are still working the sports angle, and I drag him to the gym with Daddy so he can work out with me. It really is half-assed on his part, but after 3 months of this he is actually starting to really walk on the treadmill and lifting a little with free weights. While the latter is not that important, I do like spending the time with him. :)<br>Jeff Wise
 
J

jcwise62

Guest
Keith:<br>Thanks for the encouraging words. All the comments mean a lot. Yeah, he likes girls, but only the smart ones who can do math. I love his grading criteria!<br>We are still working the sports angle, and I drag him to the gym with Daddy so he can work out with me. It really is half-assed on his part, but after 3 months of this he is actually starting to really walk on the treadmill and lifting a little with free weights. While the latter is not that important, I do like spending the time with him. :)<br>Jeff Wise
 

sa5m1996

New member
Hi Jeff, Im going through the same thing.  My daughter was daignosed last year 14, but had had symptoms.  No one figured it out until I went to a asmtha allergy specialist.  My daughter is definitely scared and has outburst.  She doesnt want to do her medicine.  She fights with me day and night.  Im drained.  When it first became apparent that she had CF, I was very careful  of what she was told and I also was careful of the amount of information she learned and the timing of information as we were in the process of learning about this disease with her.  They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps.  I think to some degree they are going to be mad and will be mad rightfully so.  This is frustrating to them, time consuming and medicine is an unnecessary thing to do and will be this way until they are older and can understand better.  She milks the disease too, but she needs to get that extra attention right now.  I spend all my time after work with her.  She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding  about the disease and is accepting her circumstances to some degree.  Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there.  As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports.  If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor.  If he was an average athlete, sat on the bench, this is the age they start to quit.  They start getting interested in playing xbox.  So dont panic and spend time with him, give him attention and make him feel secure.  The best thing you can do is be with him and he will become more secure.  Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance.  Our patience, understanding, love and affection gives them the strength to grow.  Christine
 

sa5m1996

New member
Hi Jeff, Im going through the same thing. My daughter was daignosed last year 14, but had had symptoms. No one figured it out until I went to a asmtha allergy specialist. My daughter is definitely scared and has outburst. She doesnt want to do her medicine. She fights with me day and night. Im drained. When it first became apparent that she had CF, I was very careful of what she was told and I also was careful of the amount of information she learned and the timing of informationas we were in the process oflearning about this disease with her. They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps. I think to some degree they are going to be mad and will be mad rightfully so. This is frustrating to them, time consuming and medicine is anunnecessary thing to doand will be this way until they are older and can understand better. She milks the disease too, but she needs to get that extra attention right now. I spend all my time after work with her. She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding about the disease and is accepting her circumstances to some degree. Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there. As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports. If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor. If he was an average athlete, sat on the bench, this is theage they start to quit. They start getting interested in playing xbox. So dont panic and spend time with him, give him attention and make him feel secure. The best thing you can do is be with him and he will become more secure. Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance. Our patience, understanding, love and affection gives them the strength to grow. Christine
 

sa5m1996

New member
<BR>Hi Jeff, Im going through the same thing. My daughter was daignosed last year 14, but had had symptoms. No one figured it out until I went to a asmtha allergy specialist. My daughter is definitely scared and has outburst. She doesnt want to do her medicine. She fights with me day and night. Im drained. When it first became apparent that she had CF, I was very careful of what she was told and I also was careful of the amount of information she learned and the timing of informationas we were in the process oflearning about this disease with her. They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps. I think to some degree they are going to be mad and will be mad rightfully so. This is frustrating to them, time consuming and medicine is anunnecessary thing to doand will be this way until they are older and can understand better. She milks the disease too, but she needs to get that extra attention right now. I spend all my time after work with her. She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding about the disease and is accepting her circumstances to some degree. Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there. As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports. If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor. If he was an average athlete, sat on the bench, this is theage they start to quit. They start getting interested in playing xbox. So dont panic and spend time with him, give him attention and make him feel secure. The best thing you can do is be with him and he will become more secure. Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance. Our patience, understanding, love and affection gives them the strength to grow. Christine
 

sa5m1996

New member
Hi Jeff, Im going through the same thing.  My daughter was daignosed last year 14, but had had symptoms.  No one figured it out until I went to a asmtha allergy specialist.  My daughter is definitely scared and has outburst.  She doesnt want to do her medicine.  She fights with me day and night.  Im drained.  When it first became apparent that she had CF, I was very careful  of what she was told and I also was careful of the amount of information she learned and the timing of information as we were in the process of learning about this disease with her.  They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps.  I think to some degree they are going to be mad and will be mad rightfully so.  This is frustrating to them, time consuming and medicine is an unnecessary thing to do and will be this way until they are older and can understand better.  She milks the disease too, but she needs to get that extra attention right now.  I spend all my time after work with her.  She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding  about the disease and is accepting her circumstances to some degree.  Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there.  As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports.  If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor.  If he was an average athlete, sat on the bench, this is the age they start to quit.  They start getting interested in playing xbox.  So dont panic and spend time with him, give him attention and make him feel secure.  The best thing you can do is be with him and he will become more secure.  Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance.  Our patience, understanding, love and affection gives them the strength to grow.  Christine
 

sa5m1996

New member
Hi Jeff, Im going through the same thing. My daughter was daignosed last year 14, but had had symptoms. No one figured it out until I went to a asmtha allergy specialist. My daughter is definitely scared and has outburst. She doesnt want to do her medicine. She fights with me day and night. Im drained. When it first became apparent that she had CF, I was very careful of what she was told and I also was careful of the amount of information she learned and the timing of informationas we were in the process oflearning about this disease with her. They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps. I think to some degree they are going to be mad and will be mad rightfully so. This is frustrating to them, time consuming and medicine is anunnecessary thing to doand will be this way until they are older and can understand better. She milks the disease too, but she needs to get that extra attention right now. I spend all my time after work with her. She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding about the disease and is accepting her circumstances to some degree. Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there. As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports. If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor. If he was an average athlete, sat on the bench, this is theage they start to quit. They start getting interested in playing xbox. So dont panic and spend time with him, give him attention and make him feel secure. The best thing you can do is be with him and he will become more secure. Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance. Our patience, understanding, love and affection gives them the strength to grow. Christine
 

sa5m1996

New member
<BR>Hi Jeff, Im going through the same thing. My daughter was daignosed last year 14, but had had symptoms. No one figured it out until I went to a asmtha allergy specialist. My daughter is definitely scared and has outburst. She doesnt want to do her medicine. She fights with me day and night. Im drained. When it first became apparent that she had CF, I was very careful of what she was told and I also was careful of the amount of information she learned and the timing of informationas we were in the process oflearning about this disease with her. They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps. I think to some degree they are going to be mad and will be mad rightfully so. This is frustrating to them, time consuming and medicine is anunnecessary thing to doand will be this way until they are older and can understand better. She milks the disease too, but she needs to get that extra attention right now. I spend all my time after work with her. She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding about the disease and is accepting her circumstances to some degree. Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there. As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports. If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor. If he was an average athlete, sat on the bench, this is theage they start to quit. They start getting interested in playing xbox. So dont panic and spend time with him, give him attention and make him feel secure. The best thing you can do is be with him and he will become more secure. Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance. Our patience, understanding, love and affection gives them the strength to grow. Christine
 

sa5m1996

New member
Hi Jeff, Im going through the same thing.  My daughter was daignosed last year 14, but had had symptoms.  No one figured it out until I went to a asmtha allergy specialist.  My daughter is definitely scared and has outburst.  She doesnt want to do her medicine.  She fights with me day and night.  Im drained.  When it first became apparent that she had CF, I was very careful  of what she was told and I also was careful of the amount of information she learned and the timing of information as we were in the process of learning about this disease with her.  They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps.  I think to some degree they are going to be mad and will be mad rightfully so.  This is frustrating to them, time consuming and medicine is an unnecessary thing to do and will be this way until they are older and can understand better.  She milks the disease too, but she needs to get that extra attention right now.  I spend all my time after work with her.  She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding  about the disease and is accepting her circumstances to some degree.  Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there.  As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports.  If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor.  If he was an average athlete, sat on the bench, this is the age they start to quit.  They start getting interested in playing xbox.  So dont panic and spend time with him, give him attention and make him feel secure.  The best thing you can do is be with him and he will become more secure.  Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance.  Our patience, understanding, love and affection gives them the strength to grow.  Christine
 

sa5m1996

New member
Hi Jeff, Im going through the same thing. My daughter was daignosed last year 14, but had had symptoms. No one figured it out until I went to a asmtha allergy specialist. My daughter is definitely scared and has outburst. She doesnt want to do her medicine. She fights with me day and night. Im drained. When it first became apparent that she had CF, I was very careful of what she was told and I also was careful of the amount of information she learned and the timing of informationas we were in the process oflearning about this disease with her. They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps. I think to some degree they are going to be mad and will be mad rightfully so. This is frustrating to them, time consuming and medicine is anunnecessary thing to doand will be this way until they are older and can understand better. She milks the disease too, but she needs to get that extra attention right now. I spend all my time after work with her. She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding about the disease and is accepting her circumstances to some degree. Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there. As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports. If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor. If he was an average athlete, sat on the bench, this is theage they start to quit. They start getting interested in playing xbox. So dont panic and spend time with him, give him attention and make him feel secure. The best thing you can do is be with him and he will become more secure. Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance. Our patience, understanding, love and affection gives them the strength to grow. Christine
 

sa5m1996

New member
<BR>Hi Jeff, Im going through the same thing. My daughter was daignosed last year 14, but had had symptoms. No one figured it out until I went to a asmtha allergy specialist. My daughter is definitely scared and has outburst. She doesnt want to do her medicine. She fights with me day and night. Im drained. When it first became apparent that she had CF, I was very careful of what she was told and I also was careful of the amount of information she learned and the timing of informationas we were in the process oflearning about this disease with her. They can only, like us absorb so much information at a time and some things werent necessary to tell her until she was ready to hear it. She still is mad as hell, mad sometimes at the world but the more affection I give her, the more time I give her making her feel secure just by being with her helps. I think to some degree they are going to be mad and will be mad rightfully so. This is frustrating to them, time consuming and medicine is anunnecessary thing to doand will be this way until they are older and can understand better. She milks the disease too, but she needs to get that extra attention right now. I spend all my time after work with her. She is a sophmore and is having trouble going back to school and separating from me. But as she is getting older she is developing and understanding about the disease and is accepting her circumstances to some degree. Be positive, give lots attention baby them if they need it, even if he is a boy they need affection too and hang in there. As for the sports, this is the age where they decide if they want to continue or they start decreasing the time they put into sports. If he is very athletic and he was always the kid to play no matter what, if he before he was diagnosed a die hard athlete and he doesnt want to return, seek help with a doctor. If he was an average athlete, sat on the bench, this is theage they start to quit. They start getting interested in playing xbox. So dont panic and spend time with him, give him attention and make him feel secure. The best thing you can do is be with him and he will become more secure. Watch what you say in front of him, he can only take so much and give him lots of hugs and reasurrance. Our patience, understanding, love and affection gives them the strength to grow. Christine
 
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