late diagnosis

jodijp

New member
Welcome from one newby to another! <img src="i/expressions/face-icon-small-happy.gif" border="0">

Add me to the list - dx at 25 after the birth of my second child. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jodijp

New member
Welcome from one newby to another! <img src="i/expressions/face-icon-small-happy.gif" border="0">

Add me to the list - dx at 25 after the birth of my second child. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jodijp

New member
Welcome from one newby to another! <img src="i/expressions/face-icon-small-happy.gif" border="0">

Add me to the list - dx at 25 after the birth of my second child. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jodijp

New member
Welcome from one newby to another! <img src="i/expressions/face-icon-small-happy.gif" border="0">

Add me to the list - dx at 25 after the birth of my second child. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jodijp

New member
Welcome from one newby to another! <img src="i/expressions/face-icon-small-happy.gif" border="0">

Add me to the list - dx at 25 after the birth of my second child. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

H2OSPORTSMOM

New member
emerenta18 My son is in the proess of genetic testing right now at 18. He had some symptoms around 13 that docs didn't take us serious. In my search for more info on later age CF diagnosis I too found this sight. I showed some of my info from this sight to my doc just to get him to do a sweat test. I am curious to know what symptoms and what genes you have been identifyed with.? I think that the later you are diagnosed may be a good thing, but you must know if you want to fight this unpredictable disease. God Bless You !
 

H2OSPORTSMOM

New member
emerenta18 My son is in the proess of genetic testing right now at 18. He had some symptoms around 13 that docs didn't take us serious. In my search for more info on later age CF diagnosis I too found this sight. I showed some of my info from this sight to my doc just to get him to do a sweat test. I am curious to know what symptoms and what genes you have been identifyed with.? I think that the later you are diagnosed may be a good thing, but you must know if you want to fight this unpredictable disease. God Bless You !
 

H2OSPORTSMOM

New member
emerenta18 My son is in the proess of genetic testing right now at 18. He had some symptoms around 13 that docs didn't take us serious. In my search for more info on later age CF diagnosis I too found this sight. I showed some of my info from this sight to my doc just to get him to do a sweat test. I am curious to know what symptoms and what genes you have been identifyed with.? I think that the later you are diagnosed may be a good thing, but you must know if you want to fight this unpredictable disease. God Bless You !
 

H2OSPORTSMOM

New member
emerenta18 My son is in the proess of genetic testing right now at 18. He had some symptoms around 13 that docs didn't take us serious. In my search for more info on later age CF diagnosis I too found this sight. I showed some of my info from this sight to my doc just to get him to do a sweat test. I am curious to know what symptoms and what genes you have been identifyed with.? I think that the later you are diagnosed may be a good thing, but you must know if you want to fight this unpredictable disease. God Bless You !
 

H2OSPORTSMOM

New member
emerenta18 My son is in the proess of genetic testing right now at 18. He had some symptoms around 13 that docs didn't take us serious. In my search for more info on later age CF diagnosis I too found this sight. I showed some of my info from this sight to my doc just to get him to do a sweat test. I am curious to know what symptoms and what genes you have been identifyed with.? I think that the later you are diagnosed may be a good thing, but you must know if you want to fight this unpredictable disease. God Bless You !
 
E

emerenta18

Guest
hi h20sportmom,im sorry to hear of what you are going through right now and i hope you get an an answer either way.well i had a few symptoms,i think the main reason i wasnt diagnosed was because i was pancreas sufficient and was a chubby little child <img src="i/expressions/face-icon-small-smile.gif" border="0"> i had my adenoids removed at 5 and i had chest infections every year and sinusitis,when i hit puberty the cough worsened and i had chronic sinusitis,after recurring anti biotics and steroids not working i was sent to an ent surgeon who said i had polyps in my nose and a deviated septum that was blocking off my sinuses and causing a nasal drip to my chest so i had several ops to correct my nose,the cough got worse so i was sent to another doctor,diagnosed with asthma and then tested for cf a second time(with the ent surgeon a sweat test was ordered,i was told i had been sent for one but i actually hadnt,i was having so many test that my family didnt notice the difference,the imaginary test came back negative) and i tested positive for cf,so thats how it happened,doctors can be very doubting,they thought my mother was exaggerating all the time and of course she wasnt so persevere if you arent happy with what they are telling you.oh also i have one common cf gene delta f508 (i think) and a rare one that im not sure of,ill find out and tell you what it is,i hope this has helped a bit and good luck with your son,i hope he's healthy <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

emerenta18

Guest
hi h20sportmom,im sorry to hear of what you are going through right now and i hope you get an an answer either way.well i had a few symptoms,i think the main reason i wasnt diagnosed was because i was pancreas sufficient and was a chubby little child <img src="i/expressions/face-icon-small-smile.gif" border="0"> i had my adenoids removed at 5 and i had chest infections every year and sinusitis,when i hit puberty the cough worsened and i had chronic sinusitis,after recurring anti biotics and steroids not working i was sent to an ent surgeon who said i had polyps in my nose and a deviated septum that was blocking off my sinuses and causing a nasal drip to my chest so i had several ops to correct my nose,the cough got worse so i was sent to another doctor,diagnosed with asthma and then tested for cf a second time(with the ent surgeon a sweat test was ordered,i was told i had been sent for one but i actually hadnt,i was having so many test that my family didnt notice the difference,the imaginary test came back negative) and i tested positive for cf,so thats how it happened,doctors can be very doubting,they thought my mother was exaggerating all the time and of course she wasnt so persevere if you arent happy with what they are telling you.oh also i have one common cf gene delta f508 (i think) and a rare one that im not sure of,ill find out and tell you what it is,i hope this has helped a bit and good luck with your son,i hope he's healthy <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

emerenta18

Guest
hi h20sportmom,im sorry to hear of what you are going through right now and i hope you get an an answer either way.well i had a few symptoms,i think the main reason i wasnt diagnosed was because i was pancreas sufficient and was a chubby little child <img src="i/expressions/face-icon-small-smile.gif" border="0"> i had my adenoids removed at 5 and i had chest infections every year and sinusitis,when i hit puberty the cough worsened and i had chronic sinusitis,after recurring anti biotics and steroids not working i was sent to an ent surgeon who said i had polyps in my nose and a deviated septum that was blocking off my sinuses and causing a nasal drip to my chest so i had several ops to correct my nose,the cough got worse so i was sent to another doctor,diagnosed with asthma and then tested for cf a second time(with the ent surgeon a sweat test was ordered,i was told i had been sent for one but i actually hadnt,i was having so many test that my family didnt notice the difference,the imaginary test came back negative) and i tested positive for cf,so thats how it happened,doctors can be very doubting,they thought my mother was exaggerating all the time and of course she wasnt so persevere if you arent happy with what they are telling you.oh also i have one common cf gene delta f508 (i think) and a rare one that im not sure of,ill find out and tell you what it is,i hope this has helped a bit and good luck with your son,i hope he's healthy <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

emerenta18

Guest
hi h20sportmom,im sorry to hear of what you are going through right now and i hope you get an an answer either way.well i had a few symptoms,i think the main reason i wasnt diagnosed was because i was pancreas sufficient and was a chubby little child <img src="i/expressions/face-icon-small-smile.gif" border="0"> i had my adenoids removed at 5 and i had chest infections every year and sinusitis,when i hit puberty the cough worsened and i had chronic sinusitis,after recurring anti biotics and steroids not working i was sent to an ent surgeon who said i had polyps in my nose and a deviated septum that was blocking off my sinuses and causing a nasal drip to my chest so i had several ops to correct my nose,the cough got worse so i was sent to another doctor,diagnosed with asthma and then tested for cf a second time(with the ent surgeon a sweat test was ordered,i was told i had been sent for one but i actually hadnt,i was having so many test that my family didnt notice the difference,the imaginary test came back negative) and i tested positive for cf,so thats how it happened,doctors can be very doubting,they thought my mother was exaggerating all the time and of course she wasnt so persevere if you arent happy with what they are telling you.oh also i have one common cf gene delta f508 (i think) and a rare one that im not sure of,ill find out and tell you what it is,i hope this has helped a bit and good luck with your son,i hope he's healthy <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

emerenta18

Guest
hi h20sportmom,im sorry to hear of what you are going through right now and i hope you get an an answer either way.well i had a few symptoms,i think the main reason i wasnt diagnosed was because i was pancreas sufficient and was a chubby little child <img src="i/expressions/face-icon-small-smile.gif" border="0"> i had my adenoids removed at 5 and i had chest infections every year and sinusitis,when i hit puberty the cough worsened and i had chronic sinusitis,after recurring anti biotics and steroids not working i was sent to an ent surgeon who said i had polyps in my nose and a deviated septum that was blocking off my sinuses and causing a nasal drip to my chest so i had several ops to correct my nose,the cough got worse so i was sent to another doctor,diagnosed with asthma and then tested for cf a second time(with the ent surgeon a sweat test was ordered,i was told i had been sent for one but i actually hadnt,i was having so many test that my family didnt notice the difference,the imaginary test came back negative) and i tested positive for cf,so thats how it happened,doctors can be very doubting,they thought my mother was exaggerating all the time and of course she wasnt so persevere if you arent happy with what they are telling you.oh also i have one common cf gene delta f508 (i think) and a rare one that im not sure of,ill find out and tell you what it is,i hope this has helped a bit and good luck with your son,i hope he's healthy <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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