Leaving a child alone in the hospital

azdesertrat

New member
All the crap I've been through over the years & I STILL hate, hate, hate needles! So sorry for your baby's pain. She (& you too Mom) will be in our prayers for a much smoother stay. CF SUCKS!!!
 

azdesertrat

New member
All the crap I've been through over the years & I STILL hate, hate, hate needles! So sorry for your baby's pain. She (& you too Mom) will be in our prayers for a much smoother stay. CF SUCKS!!!
 

azdesertrat

New member
All the crap I've been through over the years & I STILL hate, hate, hate needles! So sorry for your baby's pain. She (& you too Mom) will be in our prayers for a much smoother stay. CF SUCKS!!!
 

imported_Momto2

New member
Jeez, I am so sorry for you and your daughter, having been there, done that, got the sticker. : (
They used to spend hours trying to get lines into me, and no knockout drugs. Its not fun.
Hang in there, hugs to you both. Watching it as a mom would be very traumatic.
 

imported_Momto2

New member
Jeez, I am so sorry for you and your daughter, having been there, done that, got the sticker. : (
They used to spend hours trying to get lines into me, and no knockout drugs. Its not fun.
Hang in there, hugs to you both. Watching it as a mom would be very traumatic.
 

imported_Momto2

New member
Jeez, I am so sorry for you and your daughter, having been there, done that, got the sticker. : (
<br />They used to spend hours trying to get lines into me, and no knockout drugs. Its not fun.
<br />Hang in there, hugs to you both. Watching it as a mom would be very traumatic.
<br />
 

elliesmom

New member
Jennifer sorry to hear about your bad day today. My daughter is 18 and at her last hospital stay this past winter one of us stayed with her the whole time. W would leave to go to the cafe for dinner, but brought it back to the room. She likes us to be there and she is a very independent young women, we spend time playing cards, games, watching movies etc. It helps with the boredom, plus I get to hear what the dr. says. We generally trade one stays and one goes home, but she is our only child and we can work it out with our employers. You can only do what you can do and no one should judge you until they walk in a your shoes. Right now scarier than leaving her in the hospital is that we left her at college last week and I only hope she is doing therapies and eating, but that is a different board....
 

elliesmom

New member
Jennifer sorry to hear about your bad day today. My daughter is 18 and at her last hospital stay this past winter one of us stayed with her the whole time. W would leave to go to the cafe for dinner, but brought it back to the room. She likes us to be there and she is a very independent young women, we spend time playing cards, games, watching movies etc. It helps with the boredom, plus I get to hear what the dr. says. We generally trade one stays and one goes home, but she is our only child and we can work it out with our employers. You can only do what you can do and no one should judge you until they walk in a your shoes. Right now scarier than leaving her in the hospital is that we left her at college last week and I only hope she is doing therapies and eating, but that is a different board....
 

elliesmom

New member
Jennifer sorry to hear about your bad day today. My daughter is 18 and at her last hospital stay this past winter one of us stayed with her the whole time. W would leave to go to the cafe for dinner, but brought it back to the room. She likes us to be there and she is a very independent young women, we spend time playing cards, games, watching movies etc. It helps with the boredom, plus I get to hear what the dr. says. We generally trade one stays and one goes home, but she is our only child and we can work it out with our employers. You can only do what you can do and no one should judge you until they walk in a your shoes. Right now scarier than leaving her in the hospital is that we left her at college last week and I only hope she is doing therapies and eating, but that is a different board....
 
K

Keepercjr

Guest
Jennifer

So sorry about what your daughter has to endure <img src="i/expressions/face-icon-small-sad.gif" border="0"> I am 30 but was not hospitalized as a child (was diagnosed at 6 months old). My brother who had CF was hospitalized a lot as a child and he was never left alone - and I mean never. I can't even tell you how many mistakes that my mom prevented from happening. I did miss my mom a lot while my brother was in the hospital but he really wanted her there instead of my dad (and he was her baby).

As an adult I've been hospitalized a few times and one of my parents still stayed most of the day with me (and when my DH got off work he would swing by). I also know though that I can and DO advocate for myself.

One other thing - is your daughter by chance a red head or close to it? I have auburn hair (so not a true redhead but still in the redhead family) and I am very very resistant to any kind of anesthesia including numbing cream. Recent studies have shown that most redheads have some level of resistance. I need a lot of extra numbing at the dentist and last summer I had a few procedures they tried to do under sedation but they could not get me sedated enough and had to resort to general anesthesia. Oh and I need 3 hours of numbing cream before accessing my port or I can still feel it. Most people only require 1 hour.

Hopefully she can go home soon!
 
K

Keepercjr

Guest
Jennifer

So sorry about what your daughter has to endure <img src="i/expressions/face-icon-small-sad.gif" border="0"> I am 30 but was not hospitalized as a child (was diagnosed at 6 months old). My brother who had CF was hospitalized a lot as a child and he was never left alone - and I mean never. I can't even tell you how many mistakes that my mom prevented from happening. I did miss my mom a lot while my brother was in the hospital but he really wanted her there instead of my dad (and he was her baby).

As an adult I've been hospitalized a few times and one of my parents still stayed most of the day with me (and when my DH got off work he would swing by). I also know though that I can and DO advocate for myself.

One other thing - is your daughter by chance a red head or close to it? I have auburn hair (so not a true redhead but still in the redhead family) and I am very very resistant to any kind of anesthesia including numbing cream. Recent studies have shown that most redheads have some level of resistance. I need a lot of extra numbing at the dentist and last summer I had a few procedures they tried to do under sedation but they could not get me sedated enough and had to resort to general anesthesia. Oh and I need 3 hours of numbing cream before accessing my port or I can still feel it. Most people only require 1 hour.

Hopefully she can go home soon!
 
K

Keepercjr

Guest
Jennifer
<br />
<br />So sorry about what your daughter has to endure <img src="i/expressions/face-icon-small-sad.gif" border="0"> I am 30 but was not hospitalized as a child (was diagnosed at 6 months old). My brother who had CF was hospitalized a lot as a child and he was never left alone - and I mean never. I can't even tell you how many mistakes that my mom prevented from happening. I did miss my mom a lot while my brother was in the hospital but he really wanted her there instead of my dad (and he was her baby).
<br />
<br />As an adult I've been hospitalized a few times and one of my parents still stayed most of the day with me (and when my DH got off work he would swing by). I also know though that I can and DO advocate for myself.
<br />
<br />One other thing - is your daughter by chance a red head or close to it? I have auburn hair (so not a true redhead but still in the redhead family) and I am very very resistant to any kind of anesthesia including numbing cream. Recent studies have shown that most redheads have some level of resistance. I need a lot of extra numbing at the dentist and last summer I had a few procedures they tried to do under sedation but they could not get me sedated enough and had to resort to general anesthesia. Oh and I need 3 hours of numbing cream before accessing my port or I can still feel it. Most people only require 1 hour.
<br />
<br />Hopefully she can go home soon!
 

jonimackey

New member
My stepson was recently in the hospital for a week. His mother left him alone at night and wouldn't get there in the morning until around 11 and then would leave around 5. He was so angry that no one was with him that he started throwing things at the nurses and threatened a few doctors. they also forgot to give him his enzymes before he would eat. I think if you can't stay there the whole time. find someone to take shifts.
 

jonimackey

New member
My stepson was recently in the hospital for a week. His mother left him alone at night and wouldn't get there in the morning until around 11 and then would leave around 5. He was so angry that no one was with him that he started throwing things at the nurses and threatened a few doctors. they also forgot to give him his enzymes before he would eat. I think if you can't stay there the whole time. find someone to take shifts.
 

jonimackey

New member
My stepson was recently in the hospital for a week. His mother left him alone at night and wouldn't get there in the morning until around 11 and then would leave around 5. He was so angry that no one was with him that he started throwing things at the nurses and threatened a few doctors. they also forgot to give him his enzymes before he would eat. I think if you can't stay there the whole time. find someone to take shifts.
 
P

patrish22

Guest
Having raised 3 with CF, I stayed until they were older and they requested time on their own. It is important to keep an eye on what is going on. Mistakes happen! Both my girls have type I diabetes. During one hospitalization one girl's sugars were running high. Yes, IV antibiotics can influence this but her's was particularly high. Then we discovered that someone had been giving her a Dextrose IV! Once this was rectified her glucose levels were where they should be. I felt better staying to keep an eye on things (so did they). Base it on the child too. My son enjoyed independence at the hospital at an earlier age then his sisters. I would leave it up to them as they got older. Even then, with the girls, Saturday night Pizza and a DVDs were fun! For teens, gage it on the individual, but I agree to stay with the little ones. Even as young adults, sometimes they just wanted Mom or Dad around. Don't ever feel badly about staying! Do what you feel is right, you know your child best. Bottom line, when anyone is sick, its nice to have a loving care giver. A parent's (caregiver's) loving touch can be the best form of medicine. You are not babying your child by staying. Now as adults, they all have told me that there were times when they woke and were glad to see Mom or Dad there.
 
P

patrish22

Guest
Having raised 3 with CF, I stayed until they were older and they requested time on their own. It is important to keep an eye on what is going on. Mistakes happen! Both my girls have type I diabetes. During one hospitalization one girl's sugars were running high. Yes, IV antibiotics can influence this but her's was particularly high. Then we discovered that someone had been giving her a Dextrose IV! Once this was rectified her glucose levels were where they should be. I felt better staying to keep an eye on things (so did they). Base it on the child too. My son enjoyed independence at the hospital at an earlier age then his sisters. I would leave it up to them as they got older. Even then, with the girls, Saturday night Pizza and a DVDs were fun! For teens, gage it on the individual, but I agree to stay with the little ones. Even as young adults, sometimes they just wanted Mom or Dad around. Don't ever feel badly about staying! Do what you feel is right, you know your child best. Bottom line, when anyone is sick, its nice to have a loving care giver. A parent's (caregiver's) loving touch can be the best form of medicine. You are not babying your child by staying. Now as adults, they all have told me that there were times when they woke and were glad to see Mom or Dad there.
 
P

patrish22

Guest
<BR>Having raised 3 with CF, I stayed until they were older and they requested time on their own. It is important to keep an eye on what is going on. Mistakes happen! Both my girls have type I diabetes. During one hospitalization one girl's sugars were running high. Yes, IV antibiotics can influence this but her's was particularly high. Then we discovered that someone had been giving her a Dextrose IV! Once this was rectified her glucose levels were where they should be. I felt better staying to keep an eye on things (so did they). Base it on the child too. My son enjoyed independence at the hospital at an earlier age then his sisters. I would leave it up to them as they got older. Even then, with the girls, Saturday night Pizza and a DVDs were fun! For teens, gage it on the individual, but I agree to stay with the little ones. Even as young adults, sometimes they just wanted Mom or Dad around. Don't ever feel badly about staying! Do what you feel is right, you know your child best. Bottom line, when anyone is sick, its nice to have a loving care giver. A parent's (caregiver's) loving touch can be the best form of medicine. You are not babying your child by staying. Now as adults, they all have told me that there were times when they woke and were glad to see Mom or Dad there.
 

Printer

Active member
I'm really curious, how many of you attend a CF Center for hospitalization and does the hospital require a private room and "contact precautions? Does your hospital have a CF floor?

Bill
 

Printer

Active member
I'm really curious, how many of you attend a CF Center for hospitalization and does the hospital require a private room and "contact precautions? Does your hospital have a CF floor?

Bill
 
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