Leaving a child alone in the hospital

Printer

Active member
I'm really curious, how many of you attend a CF Center for hospitalization and does the hospital require a private room and "contact precautions? Does your hospital have a CF floor?
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<br />Bill
 

jendonl

New member
We came home from the hospital yesterday and we're doing home IVs.  I certainly have a new appreciation for everyone who has done this before.  The rest of the time in the hospital was mostly uneventful and much better than the first day, though we are all very glad to be home.  I stayed with her the whole time as I expected that I would and i know i will until she tells me to leave and maybe not even then.  They had to do two blood draws the next day to test her Tobi levels and the lab technician was really good.  She gave my dd the option to get her finger pricked instead of a needle.  She also warmed up her finger before  which allowed the blood to flow more freely so it didn't require too much squeezing.  My dd commented several times that the finger prick just stung a little, it was much better than a needle.  I though it was so great that we had another way of getting small blood samples (though it won't help with the annual 8 vials.) but they decided that her glucose levels were high and they wanted to do a fasting glucose test so they needed a blood sample the next day.  A different technician came in a 5:30 in the morning (so why does it have to be at 5:30 in the morning?) and just started in with the band around her arm.  She wakes up, very upset and struggling.  This technician seemed irritated that we wanted the finger prick instead and irrirtated again that we asked to warm it up first.  She made the whole thing a traumatic ordeal.  I hope it doesn't turn her off finger pricks.Keepercjr - she was very blond when she was younger but her hair is now a very light brown- though I have red highlights.  I have noticed that pain medication and anesthesia does not have as much affect on me.  I have had several procedures where the doctors were surprised that I was still awake and feeling it and they had to increase the medication.  So maybe she is similar.  Even when she was supposedly asleep with the IV anesthesia, she was still jerking her arm every time they did something so I know she could still feel it.Bill - we are at a CF center.  The hospital has a Pulmonary ward where kids with asthma, CF, etc. stay.  They do practice contact precautions.  CFers with any kind of bug have to wear masks when the leave the room and are not allowed to play in the play rooms.  Everyone coming into the room has to wear a gown.  They must wear a mask if they do anything with her.
 

jendonl

New member
We came home from the hospital yesterday and we're doing home IVs. I certainly have a new appreciation for everyone who has done this before. The rest of the time in the hospital was mostly uneventful and much better than the first day, though we are all very glad to be home. I stayed with her the whole time as I expected that I would and i know i will until she tells me to leave and maybe not even then. They had to do two blood draws the next day to test her Tobi levels and the lab technician was really good. She gave my dd the option to get her finger pricked instead of a needle. She also warmed up her finger before which allowed the blood to flow more freely so it didn't require too much squeezing. My dd commented several times that the finger prick just stung a little, it was much better than a needle. Ithough it was so great that we had another way of getting small blood samples (though it won't help with the annual 8 vials.) but they decided that her glucose levels were high and they wanted to do a fasting glucose test so they needed a blood sample the next day. A different technician came in a 5:30 in the morning (so why does it have to be at 5:30 in the morning?) and just started in with the band around her arm. She wakes up, very upset andstruggling. This technician seemed irritated that we wanted the finger prick instead and irrirtated again that we asked to warm it up first. She made the whole thing a traumatic ordeal. I hope it doesn't turn her off finger pricks.Keepercjr - she was very blond when she was younger but her hair is now a very light brown- thoughI have red highlights. I have noticed that pain medication and anesthesia does not have as much affect on me. I have had several procedures where the doctors were surprised that I was still awake and feeling it and they had to increase the medication. So maybe she is similar. Even when she was supposedly asleep with the IV anesthesia, she was still jerking her arm every time they did something so I know she could still feel it.Bill - we are at a CF center. The hospital has a Pulmonary ward where kids with asthma, CF, etc. stay. They do practice contact precautions. CFers with any kind of bug have to wear masks when the leave the room and are not allowed to play in the play rooms. Everyone coming into the room has to wear a gown. They must wear a mask if they do anything with her.
 

jendonl

New member
<p>We came home from the hospital yesterday and we're doing home IVs. I certainly have a new appreciation for everyone who has done this before. The rest of the time in the hospital was mostly uneventful and much better than the first day, though we are all very glad to be home. I stayed with her the whole time as I expected that I would and i know i will until she tells me to leave and maybe not even then. <p>They had to do two blood draws the next day to test her Tobi levels and the lab technician was really good. She gave my dd the option to get her finger pricked instead of a needle. She also warmed up her finger before which allowed the blood to flow more freely so it didn't require too much squeezing. My dd commented several times that the finger prick just stung a little, it was much better than a needle. Ithough it was so great that we had another way of getting small blood samples (though it won't help with the annual 8 vials.) but they decided that her glucose levels were high and they wanted to do a fasting glucose test so they needed a blood sample the next day. A different technician came in a 5:30 in the morning (so why does it have to be at 5:30 in the morning?) and just started in with the band around her arm. She wakes up, very upset andstruggling. This technician seemed irritated that we wanted the finger prick instead and irrirtated again that we asked to warm it up first. She made the whole thing a traumatic ordeal. I hope it doesn't turn her off finger pricks.<p>Keepercjr - she was very blond when she was younger but her hair is now a very light brown- thoughI have red highlights. I have noticed that pain medication and anesthesia does not have as much affect on me. I have had several procedures where the doctors were surprised that I was still awake and feeling it and they had to increase the medication. So maybe she is similar. Even when she was supposedly asleep with the IV anesthesia, she was still jerking her arm every time they did something so I know she could still feel it.<p>Bill - we are at a CF center. The hospital has a Pulmonary ward where kids with asthma, CF, etc. stay. They do practice contact precautions. CFers with any kind of bug have to wear masks when the leave the room and are not allowed to play in the play rooms. Everyone coming into the room has to wear a gown. They must wear a mask if they do anything with her.
 

hmw

New member
1/ Yes, we go to a CFF-accredited hospital.

2/ Yes, CF kids have private rooms, contact & droplet precautions, *everyone* that enters the room is gowned, gloved & masked, (and the kids receive a fresh neb cup for every treatment.) CF kids are not allowed in the playroom, must wear a mask if out of the room for any reason otherwise, and are in isolation once they culture certain bugs. So- cross-contamination and infection control is taken very seriously.

3/ No, there is no 'CF floor.' They are distributed among the 3 med/surg floors. I like it this way, since I feel nurses caring for more than one CF patient at a time, even with all the precautions, increases risk of cross-contamination.

4/ Just to add: home IV's are encouraged once a child is stable and there is a good support system at home able to keep up the regimen of extra tx along with the IV schedule. This further minimizes chance of picking up something new at the hospital and there is just no place like home!!
 

hmw

New member
1/ Yes, we go to a CFF-accredited hospital.

2/ Yes, CF kids have private rooms, contact & droplet precautions, *everyone* that enters the room is gowned, gloved & masked, (and the kids receive a fresh neb cup for every treatment.) CF kids are not allowed in the playroom, must wear a mask if out of the room for any reason otherwise, and are in isolation once they culture certain bugs. So- cross-contamination and infection control is taken very seriously.

3/ No, there is no 'CF floor.' They are distributed among the 3 med/surg floors. I like it this way, since I feel nurses caring for more than one CF patient at a time, even with all the precautions, increases risk of cross-contamination.

4/ Just to add: home IV's are encouraged once a child is stable and there is a good support system at home able to keep up the regimen of extra tx along with the IV schedule. This further minimizes chance of picking up something new at the hospital and there is just no place like home!!
 

hmw

New member
1/ Yes, we go to a CFF-accredited hospital.
<br />
<br />2/ Yes, CF kids have private rooms, contact & droplet precautions, *everyone* that enters the room is gowned, gloved & masked, (and the kids receive a fresh neb cup for every treatment.) CF kids are not allowed in the playroom, must wear a mask if out of the room for any reason otherwise, and are in isolation once they culture certain bugs. So- cross-contamination and infection control is taken very seriously.
<br />
<br />3/ No, there is no 'CF floor.' They are distributed among the 3 med/surg floors. I like it this way, since I feel nurses caring for more than one CF patient at a time, even with all the precautions, increases risk of cross-contamination.
<br />
<br />4/ Just to add: home IV's are encouraged once a child is stable and there is a good support system at home able to keep up the regimen of extra tx along with the IV schedule. This further minimizes chance of picking up something new at the hospital and there is just no place like home!!
 

peter

New member
Jennifer. Glad you are in a more secure area (at home) without those impractical scheduled perfunctory hospital services billing items; whether they are needed so frequently or no (probably not). You really started a robust discussion here and we can feel all the energy and emotion related to this topic. These exchanges help everyone keep up the good fight and their confidence to speak up in the off site locations.!!!
 

peter

New member
Jennifer. Glad you are in a more secure area (at home) without those impractical scheduled perfunctory hospital services billing items; whether they are needed so frequently or no (probably not). You really started a robust discussion here and we can feel all the energy and emotion related to this topic. These exchanges help everyone keep up the good fight and their confidence to speak up in the off site locations.!!!
 

peter

New member
Jennifer. Glad you are in a more secure area (at home) without those impractical scheduled perfunctory hospital services billing items; whether they are needed so frequently or no (probably not). You really started a robust discussion here and we can feel all the energy and emotion related to this topic. These exchanges help everyone keep up the good fight and their confidence to speak up in the off site locations.!!!
 
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