Thank you all so much for you replies. I wish I could say that he is having growning pains, but he has barely grown in two years. He probably is deficient in something that is causing the pains. He also has mild autism and adhd, so he is being treated with a biomedical approach where he has a dairy free diet (partially gluten free) and takes minerals and supplements including calcium and magnesium as well as probiotics. We had a lot of testing done concerning his "gut" and he had absolutely no good bacteria in his body, which was interesting. I also wonder if he does turn out to have CF if he has been doing so well this long because of the biomedical treatment he has been on. His intenstinal problems improved so much after we started the biomedical treatment. As a matter of fact, when we began the special diet a few years ago he gained two pounds in one month which was huge! But then he tapered off again and he goes back and fourth, gains a pound-loses 2 and so on. We may get the results of his genetic test today. If he does have CF, I feel like we will be able to move on and start making him grow and feel better. I am glad I found this site because I have learned so much between here and the CFF site. Thanks for your support.
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Leg cramps/pain
- Thread starter asiewny
- Start date
Thank you all so much for you replies. I wish I could say that he is having growning pains, but he has barely grown in two years. He probably is deficient in something that is causing the pains. He also has mild autism and adhd, so he is being treated with a biomedical approach where he has a dairy free diet (partially gluten free) and takes minerals and supplements including calcium and magnesium as well as probiotics. We had a lot of testing done concerning his "gut" and he had absolutely no good bacteria in his body, which was interesting. I also wonder if he does turn out to have CF if he has been doing so well this long because of the biomedical treatment he has been on. His intenstinal problems improved so much after we started the biomedical treatment. As a matter of fact, when we began the special diet a few years ago he gained two pounds in one month which was huge! But then he tapered off again and he goes back and fourth, gains a pound-loses 2 and so on. We may get the results of his genetic test today. If he does have CF, I feel like we will be able to move on and start making him grow and feel better. I am glad I found this site because I have learned so much between here and the CFF site. Thanks for your support.
Thank you all so much for you replies. I wish I could say that he is having growning pains, but he has barely grown in two years. He probably is deficient in something that is causing the pains. He also has mild autism and adhd, so he is being treated with a biomedical approach where he has a dairy free diet (partially gluten free) and takes minerals and supplements including calcium and magnesium as well as probiotics. We had a lot of testing done concerning his "gut" and he had absolutely no good bacteria in his body, which was interesting. I also wonder if he does turn out to have CF if he has been doing so well this long because of the biomedical treatment he has been on. His intenstinal problems improved so much after we started the biomedical treatment. As a matter of fact, when we began the special diet a few years ago he gained two pounds in one month which was huge! But then he tapered off again and he goes back and fourth, gains a pound-loses 2 and so on. We may get the results of his genetic test today. If he does have CF, I feel like we will be able to move on and start making him grow and feel better. I am glad I found this site because I have learned so much between here and the CFF site. Thanks for your support.
Thank you all so much for you replies. I wish I could say that he is having growning pains, but he has barely grown in two years. He probably is deficient in something that is causing the pains. He also has mild autism and adhd, so he is being treated with a biomedical approach where he has a dairy free diet (partially gluten free) and takes minerals and supplements including calcium and magnesium as well as probiotics. We had a lot of testing done concerning his "gut" and he had absolutely no good bacteria in his body, which was interesting. I also wonder if he does turn out to have CF if he has been doing so well this long because of the biomedical treatment he has been on. His intenstinal problems improved so much after we started the biomedical treatment. As a matter of fact, when we began the special diet a few years ago he gained two pounds in one month which was huge! But then he tapered off again and he goes back and fourth, gains a pound-loses 2 and so on. We may get the results of his genetic test today. If he does have CF, I feel like we will be able to move on and start making him grow and feel better. I am glad I found this site because I have learned so much between here and the CFF site. Thanks for your support.
Thank you all so much for you replies. I wish I could say that he is having growning pains, but he has barely grown in two years. He probably is deficient in something that is causing the pains. He also has mild autism and adhd, so he is being treated with a biomedical approach where he has a dairy free diet (partially gluten free) and takes minerals and supplements including calcium and magnesium as well as probiotics. We had a lot of testing done concerning his "gut" and he had absolutely no good bacteria in his body, which was interesting. I also wonder if he does turn out to have CF if he has been doing so well this long because of the biomedical treatment he has been on. His intenstinal problems improved so much after we started the biomedical treatment. As a matter of fact, when we began the special diet a few years ago he gained two pounds in one month which was huge! But then he tapered off again and he goes back and fourth, gains a pound-loses 2 and so on. We may get the results of his genetic test today. If he does have CF, I feel like we will be able to move on and start making him grow and feel better. I am glad I found this site because I have learned so much between here and the CFF site. Thanks for your support.
MicheleGazelle
New member
FWIW:
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
MicheleGazelle
New member
FWIW:
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
MicheleGazelle
New member
FWIW:
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
MicheleGazelle
New member
FWIW:
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
Good luck with all this.
MicheleGazelle
New member
FWIW:
<br />Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
<br />
<br />Good luck with all this.
<br />Both my sons are ASD. My oldest son also has CF and is the more severely ASD of the two boys. Treating him for CF and putting 20 pounds on him in one year did a lot for his ASD issues. (He went from 103 to 123 pounds, almost a 20% weight gain.) I continue to see gains in my kids social skills and other ASD areas with addressing the underlying health issues of both sons. They are now 19 and 21.
<br />
<br />Good luck with all this.
Craig also gets leg pains, but his physiotherapist had a look at his legs and she says that he has hyper-extension in his knees. That is that his knees bend beyond where they should, its only very slight, but its enough for over muscle stretching. Its particularly bad after a long walk.
Craig
Craig
Craig also gets leg pains, but his physiotherapist had a look at his legs and she says that he has hyper-extension in his knees. That is that his knees bend beyond where they should, its only very slight, but its enough for over muscle stretching. Its particularly bad after a long walk.
Craig
Craig
Craig also gets leg pains, but his physiotherapist had a look at his legs and she says that he has hyper-extension in his knees. That is that his knees bend beyond where they should, its only very slight, but its enough for over muscle stretching. Its particularly bad after a long walk.
Craig
Craig
Craig also gets leg pains, but his physiotherapist had a look at his legs and she says that he has hyper-extension in his knees. That is that his knees bend beyond where they should, its only very slight, but its enough for over muscle stretching. Its particularly bad after a long walk.
Craig
Craig
Craig also gets leg pains, but his physiotherapist had a look at his legs and she says that he has hyper-extension in his knees. That is that his knees bend beyond where they should, its only very slight, but its enough for over muscle stretching. Its particularly bad after a long walk.
<br />
<br />Craig
<br />
<br />Craig
sk8rgrrrl4life
New member
i've been having this isssue for over 6 years and lately its gotten worse to a dibilitatting point turns out i go to the doctor nothing they do xrays and sonograms nothing so they send me to a nurologist and i was diagnosed with dystonia. dystonia is where a chemical in your brain that works with motor skills such as moving the muscles as in contracting and relaxing doesnt send out enough so for example when you walk one muscle contracts and the other relaxes for a normal person but someone with dystonia it always contracts so i take as needed valium and clynazipan (idk how to spell it) and soon dopomine which is the chemical in the brain that its lacking so take your son to a nuerologist just to be safe he'll at least get some reliefe
sk8rgrrrl4life
New member
i've been having this isssue for over 6 years and lately its gotten worse to a dibilitatting point turns out i go to the doctor nothing they do xrays and sonograms nothing so they send me to a nurologist and i was diagnosed with dystonia. dystonia is where a chemical in your brain that works with motor skills such as moving the muscles as in contracting and relaxing doesnt send out enough so for example when you walk one muscle contracts and the other relaxes for a normal person but someone with dystonia it always contracts so i take as needed valium and clynazipan (idk how to spell it) and soon dopomine which is the chemical in the brain that its lacking so take your son to a nuerologist just to be safe he'll at least get some reliefe
sk8rgrrrl4life
New member
i've been having this isssue for over 6 years and lately its gotten worse to a dibilitatting point turns out i go to the doctor nothing they do xrays and sonograms nothing so they send me to a nurologist and i was diagnosed with dystonia. dystonia is where a chemical in your brain that works with motor skills such as moving the muscles as in contracting and relaxing doesnt send out enough so for example when you walk one muscle contracts and the other relaxes for a normal person but someone with dystonia it always contracts so i take as needed valium and clynazipan (idk how to spell it) and soon dopomine which is the chemical in the brain that its lacking so take your son to a nuerologist just to be safe he'll at least get some reliefe
sk8rgrrrl4life
New member
i've been having this isssue for over 6 years and lately its gotten worse to a dibilitatting point turns out i go to the doctor nothing they do xrays and sonograms nothing so they send me to a nurologist and i was diagnosed with dystonia. dystonia is where a chemical in your brain that works with motor skills such as moving the muscles as in contracting and relaxing doesnt send out enough so for example when you walk one muscle contracts and the other relaxes for a normal person but someone with dystonia it always contracts so i take as needed valium and clynazipan (idk how to spell it) and soon dopomine which is the chemical in the brain that its lacking so take your son to a nuerologist just to be safe he'll at least get some reliefe
sk8rgrrrl4life
New member
i've been having this isssue for over 6 years and lately its gotten worse to a dibilitatting point turns out i go to the doctor nothing they do xrays and sonograms nothing so they send me to a nurologist and i was diagnosed with dystonia. dystonia is where a chemical in your brain that works with motor skills such as moving the muscles as in contracting and relaxing doesnt send out enough so for example when you walk one muscle contracts and the other relaxes for a normal person but someone with dystonia it always contracts so i take as needed valium and clynazipan (idk how to spell it) and soon dopomine which is the chemical in the brain that its lacking so take your son to a nuerologist just to be safe he'll at least get some reliefe