Ok, I have two really bizarre and unrelated questions but I did not want to post two different times. So here it goes.
1. Our son Luke (he is two) is extremely "bow-legged". He was an early walker (he walked at 9 months, but was about the size of a 6 month old) and everyone assumed it would just get better. Well it has not. We have seen a regular orthopedic doctor and now they are sending us to a pediatric specialist. The CF clinic does not feel it is related to his CF and I cannot find anything out about that either. So my question is--anybody elses kid ever have this problem or have you every read anything about CF kids and bone issues?
2. So I finally got up the guts to take away the bottle this week because I noticed that Luke's teeth seem discolored on the back of his top teeth. I feel like the world's worste mother because I think it is because I let him keep the bottle so long. But it was the only way he would drink the pediasure. I have had to bolus feed him through his tube through out the day now. Anyway, I have also heard that the vitamin/iron supplments and the breathing treatments can affect their teeth. So my second question is--do you do anything special to protect your kid's teeth? We brush his teeth twice a day and we have stopped the bottle cold turkey, but what else can I do? Our dentist generally does not see kids until three, but should I try to take him to the dentist, now?
Thanks for any advice. I am not sure anyone else has ever dealt with any of this stuff. Given our run of luck, it would not surprise me if we are just one big odd medical mess!
Angela, Mom to 7 terrific kids, including Luke 2 yrs. old w/cf
1. Our son Luke (he is two) is extremely "bow-legged". He was an early walker (he walked at 9 months, but was about the size of a 6 month old) and everyone assumed it would just get better. Well it has not. We have seen a regular orthopedic doctor and now they are sending us to a pediatric specialist. The CF clinic does not feel it is related to his CF and I cannot find anything out about that either. So my question is--anybody elses kid ever have this problem or have you every read anything about CF kids and bone issues?
2. So I finally got up the guts to take away the bottle this week because I noticed that Luke's teeth seem discolored on the back of his top teeth. I feel like the world's worste mother because I think it is because I let him keep the bottle so long. But it was the only way he would drink the pediasure. I have had to bolus feed him through his tube through out the day now. Anyway, I have also heard that the vitamin/iron supplments and the breathing treatments can affect their teeth. So my second question is--do you do anything special to protect your kid's teeth? We brush his teeth twice a day and we have stopped the bottle cold turkey, but what else can I do? Our dentist generally does not see kids until three, but should I try to take him to the dentist, now?
Thanks for any advice. I am not sure anyone else has ever dealt with any of this stuff. Given our run of luck, it would not surprise me if we are just one big odd medical mess!
Angela, Mom to 7 terrific kids, including Luke 2 yrs. old w/cf