Legs and teeth

[babyluke]

They have mentioned rickets and that was our regular pediatrician's main concern when we first started to notice that he is SO bow legged. We have been to a regular ortho. and he is in the process of referring us to a pediatric ortho. (we don't have one in our state--isn't that insane!) So we are waiting on that. The CF clinic says that all of his levels are good, so they do not think that it is a vitamin deficiency and the ortho. says his spine is fine and that with rickets there is usually an issue with the spine as well. I just don't know. He is still really tiny and his weight is a huge concern for everyone, so I am not convinced that it is unrelated to his CF. He takes his multivitamin (ADEK's) everyday and an iron supplement. He gets pediasure via his feeding tube. I am just not sure what else to do. His weight and nutrition is a constant source of stress for us. I feel like we have tried everything and nothing is working and now not only do I have the worry over the impact his weight has on his lung/health issues, now I feel like he is going to be physically "deformed" because of it. Sorry for the vent session. Thank you to everyone who has responded. I feel a lot better about the whole teeth thing--seems that is pretty normal for CFer's, now I just have to figure out the leg thing. He may just have to move to Texas and become a cowboy. lol. Thanks again!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/CF

 

[babyluke]

They have mentioned rickets and that was our regular pediatrician's main concern when we first started to notice that he is SO bow legged. We have been to a regular ortho. and he is in the process of referring us to a pediatric ortho. (we don't have one in our state--isn't that insane!) So we are waiting on that. The CF clinic says that all of his levels are good, so they do not think that it is a vitamin deficiency and the ortho. says his spine is fine and that with rickets there is usually an issue with the spine as well. I just don't know. He is still really tiny and his weight is a huge concern for everyone, so I am not convinced that it is unrelated to his CF. He takes his multivitamin (ADEK's) everyday and an iron supplement. He gets pediasure via his feeding tube. I am just not sure what else to do. His weight and nutrition is a constant source of stress for us. I feel like we have tried everything and nothing is working and now not only do I have the worry over the impact his weight has on his lung/health issues, now I feel like he is going to be physically "deformed" because of it. Sorry for the vent session. Thank you to everyone who has responded. I feel a lot better about the whole teeth thing--seems that is pretty normal for CFer's, now I just have to figure out the leg thing. He may just have to move to Texas and become a cowboy. lol. Thanks again!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/CF

 

[babyluke]

They have mentioned rickets and that was our regular pediatrician's main concern when we first started to notice that he is SO bow legged. We have been to a regular ortho. and he is in the process of referring us to a pediatric ortho. (we don't have one in our state--isn't that insane!) So we are waiting on that. The CF clinic says that all of his levels are good, so they do not think that it is a vitamin deficiency and the ortho. says his spine is fine and that with rickets there is usually an issue with the spine as well. I just don't know. He is still really tiny and his weight is a huge concern for everyone, so I am not convinced that it is unrelated to his CF. He takes his multivitamin (ADEK's) everyday and an iron supplement. He gets pediasure via his feeding tube. I am just not sure what else to do. His weight and nutrition is a constant source of stress for us. I feel like we have tried everything and nothing is working and now not only do I have the worry over the impact his weight has on his lung/health issues, now I feel like he is going to be physically "deformed" because of it. Sorry for the vent session. Thank you to everyone who has responded. I feel a lot better about the whole teeth thing--seems that is pretty normal for CFer's, now I just have to figure out the leg thing. He may just have to move to Texas and become a cowboy. lol. Thanks again!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/CF

 

[babyluke]

They have mentioned rickets and that was our regular pediatrician's main concern when we first started to notice that he is SO bow legged. We have been to a regular ortho. and he is in the process of referring us to a pediatric ortho. (we don't have one in our state--isn't that insane!) So we are waiting on that. The CF clinic says that all of his levels are good, so they do not think that it is a vitamin deficiency and the ortho. says his spine is fine and that with rickets there is usually an issue with the spine as well. I just don't know. He is still really tiny and his weight is a huge concern for everyone, so I am not convinced that it is unrelated to his CF. He takes his multivitamin (ADEK's) everyday and an iron supplement. He gets pediasure via his feeding tube. I am just not sure what else to do. His weight and nutrition is a constant source of stress for us. I feel like we have tried everything and nothing is working and now not only do I have the worry over the impact his weight has on his lung/health issues, now I feel like he is going to be physically "deformed" because of it. Sorry for the vent session. Thank you to everyone who has responded. I feel a lot better about the whole teeth thing--seems that is pretty normal for CFer's, now I just have to figure out the leg thing. He may just have to move to Texas and become a cowboy. lol. Thanks again!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/CF

 

[babyluke]

They have mentioned rickets and that was our regular pediatrician's main concern when we first started to notice that he is SO bow legged. We have been to a regular ortho. and he is in the process of referring us to a pediatric ortho. (we don't have one in our state--isn't that insane!) So we are waiting on that. The CF clinic says that all of his levels are good, so they do not think that it is a vitamin deficiency and the ortho. says his spine is fine and that with rickets there is usually an issue with the spine as well. I just don't know. He is still really tiny and his weight is a huge concern for everyone, so I am not convinced that it is unrelated to his CF. He takes his multivitamin (ADEK's) everyday and an iron supplement. He gets pediasure via his feeding tube. I am just not sure what else to do. His weight and nutrition is a constant source of stress for us. I feel like we have tried everything and nothing is working and now not only do I have the worry over the impact his weight has on his lung/health issues, now I feel like he is going to be physically "deformed" because of it. Sorry for the vent session. Thank you to everyone who has responded. I feel a lot better about the whole teeth thing--seems that is pretty normal for CFer's, now I just have to figure out the leg thing. He may just have to move to Texas and become a cowboy. lol. Thanks again!
<br />Angela, Mom to 7 terrific kids, including Luke, 2 years old w/CF

 

[hmw]

Does your child have reflux? If so, that can also cause dental issues.

To clarify the cause of rickets (Jennifer and Liza are both right, really... but here is how it happens, according to the <a target=_blank class=ftalternatingbarlinklarge href="http://www.mayoclinic.com/health/rickets/DS00813/DSECTION=causes">Mayo Clinic site: Rickets</a>
<div class="FTQUOTE"><begin quote><b>Causes</b>
By Mayo Clinic staff

Vitamin D acts as a hormone to regulate calcium and phosphorus levels in your bones. If you don't get enough vitamin D, your body won't absorb calcium and phosphorus properly. When your body senses the imbalance of calcium and phosphorus in your bloodstream, it reacts by taking calcium and phosphorus from your bones to raise blood levels to where they need to be. This softens or weakens the bone structure, which can result in skeletal deformities, such as bowlegs or improper curvature of the spine. Osteomalacia is the adult version of rickets.

You absorb vitamin D from two sources:

* <b>Sunlight</b>. Your skin produces vitamin D when it's exposed to sunlight.
* <b>Food</b>. Your intestines absorb vitamin D that's found naturally in the foods you eat, or added to it during processing, or from supplements or multivitamins you may take.

Rickets can also be caused by conditions that impair vitamin D absorption, such as the surgical removal of all or part of the stomach (gastrectomy) and celiac disease, in which the small intestine doesn't absorb certain nutrients from food. Additionally, conditions that impair the absorption of any fat soluble vitamin, which includes A, D, E and K, increases the risk of rickets.

Other causes of rickets include:

* <b>Hereditary rickets (X-linked hypophosphatemia)</b>, an inherited form of rickets caused by the inability of the kidneys to retain phosphorus, or a complication of renal tubular acidosis, a condition in which your kidneys are unable to excrete acids into urine
* <b>Lack of exposure to sunlight</b>, which stimulates the body to make vitamin D</end quote></div>

 

[hmw]

Does your child have reflux? If so, that can also cause dental issues.

To clarify the cause of rickets (Jennifer and Liza are both right, really... but here is how it happens, according to the <a target=_blank class=ftalternatingbarlinklarge href="http://www.mayoclinic.com/health/rickets/DS00813/DSECTION=causes">Mayo Clinic site: Rickets</a>
<div class="FTQUOTE"><begin quote><b>Causes</b>
By Mayo Clinic staff

Vitamin D acts as a hormone to regulate calcium and phosphorus levels in your bones. If you don't get enough vitamin D, your body won't absorb calcium and phosphorus properly. When your body senses the imbalance of calcium and phosphorus in your bloodstream, it reacts by taking calcium and phosphorus from your bones to raise blood levels to where they need to be. This softens or weakens the bone structure, which can result in skeletal deformities, such as bowlegs or improper curvature of the spine. Osteomalacia is the adult version of rickets.

You absorb vitamin D from two sources:

* <b>Sunlight</b>. Your skin produces vitamin D when it's exposed to sunlight.
* <b>Food</b>. Your intestines absorb vitamin D that's found naturally in the foods you eat, or added to it during processing, or from supplements or multivitamins you may take.

Rickets can also be caused by conditions that impair vitamin D absorption, such as the surgical removal of all or part of the stomach (gastrectomy) and celiac disease, in which the small intestine doesn't absorb certain nutrients from food. Additionally, conditions that impair the absorption of any fat soluble vitamin, which includes A, D, E and K, increases the risk of rickets.

Other causes of rickets include:

* <b>Hereditary rickets (X-linked hypophosphatemia)</b>, an inherited form of rickets caused by the inability of the kidneys to retain phosphorus, or a complication of renal tubular acidosis, a condition in which your kidneys are unable to excrete acids into urine
* <b>Lack of exposure to sunlight</b>, which stimulates the body to make vitamin D</end quote></div>

 

[hmw]

Does your child have reflux? If so, that can also cause dental issues.

To clarify the cause of rickets (Jennifer and Liza are both right, really... but here is how it happens, according to the <a target=_blank class=ftalternatingbarlinklarge href="http://www.mayoclinic.com/health/rickets/DS00813/DSECTION=causes">Mayo Clinic site: Rickets</a>
<div class="FTQUOTE"><begin quote><b>Causes</b>
By Mayo Clinic staff

Vitamin D acts as a hormone to regulate calcium and phosphorus levels in your bones. If you don't get enough vitamin D, your body won't absorb calcium and phosphorus properly. When your body senses the imbalance of calcium and phosphorus in your bloodstream, it reacts by taking calcium and phosphorus from your bones to raise blood levels to where they need to be. This softens or weakens the bone structure, which can result in skeletal deformities, such as bowlegs or improper curvature of the spine. Osteomalacia is the adult version of rickets.

You absorb vitamin D from two sources:

* <b>Sunlight</b>. Your skin produces vitamin D when it's exposed to sunlight.
* <b>Food</b>. Your intestines absorb vitamin D that's found naturally in the foods you eat, or added to it during processing, or from supplements or multivitamins you may take.

Rickets can also be caused by conditions that impair vitamin D absorption, such as the surgical removal of all or part of the stomach (gastrectomy) and celiac disease, in which the small intestine doesn't absorb certain nutrients from food. Additionally, conditions that impair the absorption of any fat soluble vitamin, which includes A, D, E and K, increases the risk of rickets.

Other causes of rickets include:

* <b>Hereditary rickets (X-linked hypophosphatemia)</b>, an inherited form of rickets caused by the inability of the kidneys to retain phosphorus, or a complication of renal tubular acidosis, a condition in which your kidneys are unable to excrete acids into urine
* <b>Lack of exposure to sunlight</b>, which stimulates the body to make vitamin D</end quote></div>

 

[hmw]

Does your child have reflux? If so, that can also cause dental issues.

To clarify the cause of rickets (Jennifer and Liza are both right, really... but here is how it happens, according to the <a target=_blank class=ftalternatingbarlinklarge href="http://www.mayoclinic.com/health/rickets/DS00813/DSECTION=causes">Mayo Clinic site: Rickets</a>
<div class="FTQUOTE"><begin quote><b>Causes</b>
By Mayo Clinic staff

Vitamin D acts as a hormone to regulate calcium and phosphorus levels in your bones. If you don't get enough vitamin D, your body won't absorb calcium and phosphorus properly. When your body senses the imbalance of calcium and phosphorus in your bloodstream, it reacts by taking calcium and phosphorus from your bones to raise blood levels to where they need to be. This softens or weakens the bone structure, which can result in skeletal deformities, such as bowlegs or improper curvature of the spine. Osteomalacia is the adult version of rickets.

You absorb vitamin D from two sources:

* <b>Sunlight</b>. Your skin produces vitamin D when it's exposed to sunlight.
* <b>Food</b>. Your intestines absorb vitamin D that's found naturally in the foods you eat, or added to it during processing, or from supplements or multivitamins you may take.

Rickets can also be caused by conditions that impair vitamin D absorption, such as the surgical removal of all or part of the stomach (gastrectomy) and celiac disease, in which the small intestine doesn't absorb certain nutrients from food. Additionally, conditions that impair the absorption of any fat soluble vitamin, which includes A, D, E and K, increases the risk of rickets.

Other causes of rickets include:

* <b>Hereditary rickets (X-linked hypophosphatemia)</b>, an inherited form of rickets caused by the inability of the kidneys to retain phosphorus, or a complication of renal tubular acidosis, a condition in which your kidneys are unable to excrete acids into urine
* <b>Lack of exposure to sunlight</b>, which stimulates the body to make vitamin D</end quote>

 

[hmw]

Does your child have reflux? If so, that can also cause dental issues.
<br />
<br />To clarify the cause of rickets (Jennifer and Liza are both right, really... but here is how it happens, according to the <a target=_blank class=ftalternatingbarlinklarge href="http://www.mayoclinic.com/health/rickets/DS00813/DSECTION=causes">Mayo Clinic site: Rickets</a>
<br /><div class="FTQUOTE"><begin quote><b>Causes</b>
<br />By Mayo Clinic staff
<br />
<br />Vitamin D acts as a hormone to regulate calcium and phosphorus levels in your bones. If you don't get enough vitamin D, your body won't absorb calcium and phosphorus properly. When your body senses the imbalance of calcium and phosphorus in your bloodstream, it reacts by taking calcium and phosphorus from your bones to raise blood levels to where they need to be. This softens or weakens the bone structure, which can result in skeletal deformities, such as bowlegs or improper curvature of the spine. Osteomalacia is the adult version of rickets.
<br />
<br />You absorb vitamin D from two sources:
<br />
<br /> * <b>Sunlight</b>. Your skin produces vitamin D when it's exposed to sunlight.
<br /> * <b>Food</b>. Your intestines absorb vitamin D that's found naturally in the foods you eat, or added to it during processing, or from supplements or multivitamins you may take.
<br />
<br />Rickets can also be caused by conditions that impair vitamin D absorption, such as the surgical removal of all or part of the stomach (gastrectomy) and celiac disease, in which the small intestine doesn't absorb certain nutrients from food. Additionally, conditions that impair the absorption of any fat soluble vitamin, which includes A, D, E and K, increases the risk of rickets.
<br />
<br />Other causes of rickets include:
<br />
<br /> * <b>Hereditary rickets (X-linked hypophosphatemia)</b>, an inherited form of rickets caused by the inability of the kidneys to retain phosphorus, or a complication of renal tubular acidosis, a condition in which your kidneys are unable to excrete acids into urine
<br /> * <b>Lack of exposure to sunlight</b>, which stimulates the body to make vitamin D</end quote>
<br />
<br />

 

[babyluke]

Thank you for that post Harriet. I had never actually read any good (and easy to understand) explanation of rickets. I am still concerned that it is rickets, although they have rechecked his levels at clinic and say that he is fine on his vitamin levels. And he had terrible reflux as an infant and had to have the nissen procedure done. But that was before he had teeth, I think.

 

[babyluke]

Thank you for that post Harriet. I had never actually read any good (and easy to understand) explanation of rickets. I am still concerned that it is rickets, although they have rechecked his levels at clinic and say that he is fine on his vitamin levels. And he had terrible reflux as an infant and had to have the nissen procedure done. But that was before he had teeth, I think.

 

[babyluke]

Thank you for that post Harriet. I had never actually read any good (and easy to understand) explanation of rickets. I am still concerned that it is rickets, although they have rechecked his levels at clinic and say that he is fine on his vitamin levels. And he had terrible reflux as an infant and had to have the nissen procedure done. But that was before he had teeth, I think.

 

[babyluke]

Thank you for that post Harriet. I had never actually read any good (and easy to understand) explanation of rickets. I am still concerned that it is rickets, although they have rechecked his levels at clinic and say that he is fine on his vitamin levels. And he had terrible reflux as an infant and had to have the nissen procedure done. But that was before he had teeth, I think.

 

[babyluke]

Thank you for that post Harriet. I had never actually read any good (and easy to understand) explanation of rickets. I am still concerned that it is rickets, although they have rechecked his levels at clinic and say that he is fine on his vitamin levels. And he had terrible reflux as an infant and had to have the nissen procedure done. But that was before he had teeth, I think.